Primary Immunodeficiency Namibia

Primary Immunodeficiency Namibia Your immune system helps your body fight infections. People with primary immunodeficiency (PI) have an immune system that does not work correctly.

Which means that people with PI are more likely to become very sick from infections.

20/11/2025

We are doing the necessary commitment to raise awareness for Antimicrobial Resistance Awareness Week 2025!

AMR Youth Symposium, Windhoek Namibia

Antimicrobial Resistance (AMR) Awareness Week is a global campaign held each November to raise awareness about the growi...
18/11/2025

Antimicrobial Resistance (AMR) Awareness Week is a global campaign held each November to raise awareness about the growing threat of antimicrobial resistance. AMR happens when germs like bacteria and viruses stop responding to medicines, making infections harder to treat.

The week encourages responsible use of antimicrobials, better infection prevention, and global cooperation to protect the effectiveness of lifesaving medicines for the future.

As a patient advocate for Primary Immunodeficiencies and a mother who's son daily diet was antibiotics (to his disadvantage) over time, I will be presenting at the Youth Symposium this Thursday at the Hage Geingob Campus - Medical School 👆


What an incredible great opportunity to raise awareness for Primary Immunodeficiencies (PID'S) at the recent Namibia Hea...
18/11/2025

What an incredible great opportunity to raise awareness for Primary Immunodeficiencies (PID'S) at the recent Namibia Health Exhibition 2025.

Something very close to my heart is none other then PID'S, and the reliance of Antibiotic use to keep infections under control while treating other symptoms.

Let's continue to spread awareness about the fact that there are more than 400 different types of PI 's globally.

17/11/2025

🧬 IPOPI is pleased to welcome the positive opinion issued by the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA). The CHMP has recommended granting EU marketing authorisation for Waskyra™, a groundbreaking ex vivo gene therapy for Wiskott-Aldrich Syndrome (WAS), a rare and life-threatening primary immunodeficiency.

“This marks a significant milestone for gene therapy in the European Union, offering new hope for patients with Wiskott-Aldrich Syndrome,” said Johan Prevot, IPOPI Executive Director and Board Member of the AGORA Foundation.

“This positive opinion will not only increase access to life-saving therapies for those affected by WAS but could also pave the way for the development of more innovative treatments for other primary immunodeficiencies and rare disorders,” added Martine Pergent, IPOPI President.

📢 A promising step forward for the PID community!

https://ipopi.org/ema-waskyra-wiskott-aldrich-syndrome/

08/11/2025

MYTH: Primary Immunodeficiency only affects children.

FACT: While some severe forms of PI become apparent in infancy, approximately 75% of diagnoses are made in adults.

📌 Primary Immunodeficiency doesn’t discriminate - all ages can become affected.

Let’s break the myths and share the facts. 💛 Stay tuned for more in our new Myth vs. Fact series!

07/10/2025

International Plasma Awareness Week

Plasma Powers Possibility
🆎🍀

Every drop counts....

07/10/2025

🌍 Celebrate International Plasma Awareness Week!

by creating a world of opportunities for patients who rely on life-saving plasma-derived medicines. These unique therapies help patients live and thrive — and none of it would be possible without the generosity of heroic plasma donors.

đź’› Wherever you are, join us in celebrating and spreading awareness!

💉 Your plasma donation might take just a moment of your day, but it’s a lifetime of impact for someone else.

🌍 World Patient Safety Day – 17 September 2025 🧡Today, we join the global community in raising awareness for World Patie...
17/09/2025

🌍 World Patient Safety Day – 17 September 2025 🧡

Today, we join the global community in raising awareness for World Patient Safety Day, a reminder that safe healthcare is a fundamental right for every patient.

At Primary Immunodeficiency Namibia (PIN), we stand committed to advocating for stronger healthcare systems, patient-centered care, and safety practices that protect the most vulnerable – including those living with primary immunodeficiency.

Emphasis is placed on patient safety, making it everyone’s business. From healthcare providers to policymakers, patients, and families, we all have a role to play in ensuring quality care without harm.

Together, let’s work towards a safer, more inclusive, and resilient healthcare system for all.

đź“© For more information or to connect with us:
📧 pidnamibia@gmail.com | 📱 0811423543

17/09/2025

🌍 IPOPI NMO Webchat – “Health Technology Assessment”

Today, we brought together patient leaders from 15 countries around the world to explore the importance of Health Technology Assessment (HTA) for Primary Immunodeficiency (PID) patient leaders, understanding HTA is essential — it directly impacts access to diagnosis and treatments, and ensuring the patient voice is heard is vital so that real patient experiences and needs are reflected in decisions.

✨ Highlights included:
🔹 Otilia Stanga – welcome and moderation
🔹 Leire Solís – introduction to HTA and key insights
🔹 “Inspire & Connect” breakout sessions to exchange experiences and strategies
🔹 Updates on upcoming Global Campaigns relevant to the PID community

A big thank you to all NMO representatives for joining this space of learning and collaboration — we look forward to seeing you again in December! 💙

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