Sickle Cell Foundation Nigeria

Sickle Cell Foundation Nigeria A global nonprofit leader in the fight against sickle cell disorder (SCD), championing the prevention, care, cure, and control of SCD ❤️🌍

The formation of the Sickle Cell Foundation Nigeria was preceded by the formation of Sickle Cell Clubs around the country and of the Federation of Sickle Cell Clubs of Nigeria in 1991. The Sickle Cell Club is a non-governmental, non - profit making patient/parent support and advocacy organization that is basically unsuited to addressing some other important issues in sickle cell disorder (SCD) control, such as, research, capacity development, policy implementation, monitoring and evaluation in a sustained manner. In order to focus on these important issues, the Sickle Cell Foundation Nigeria was established in November 1994, as a non-governmental and non-profit making organisation dedicated to the proper care and control of sickle cell disorder in Nigeria.

As we enter the last chapter of the year, we’re grateful for every one that has supported us, every donor, and every par...
01/12/2025

As we enter the last chapter of the year, we’re grateful for every one that has supported us, every donor, and every partner who believed in our mission.

Here’s to a December filled with warmth, joy, and hope.

The COLLABORATE Rare Diseases Summit in Madrid brought together 50+ experts from over 30 countries and Sickle Cell Found...
21/11/2025

The COLLABORATE Rare Diseases Summit in Madrid brought together 50+ experts from over 30 countries and Sickle Cell Foundation Nigeria was honoured to be represented by our National Director/CEO.

This global convening focused on two urgent priorities:
🔹 Accelerating diagnosis of adult-onset rare diseases
🔹 Improving the transition from pediatric to adult care

Speaking at the summit, our National Director delivered a clear message: the time for action in Sub-Saharan Africa is NOW.

✔️ Identify key stakeholders
✔️ Engage policymakers
✔️ Recognise and name our rare diseases — from sickle cell disease and thalassaemia to haemophilia & neuromuscular disorders
✔️ Advocate for national policies and integration into existing health systems
✔️ Strengthen early diagnosis, access to treatment, research, registries & capacity

Africa does not need to reinvent the wheel: global best practices already exist. But we must adapt them urgently.
As people in SSA live longer, rare diseases will touch even more lives.

NO ONE must be left behind.

SSA, we move! 🌍

The past maybe out of our hands. But the future?You have a say in that.For couples at risk, Prenatal Diagnosis helps det...
18/11/2025

The past maybe out of our hands.
But the future?
You have a say in that.

For couples at risk, Prenatal Diagnosis helps determine your baby’s genotype early, giving you the knowledge you need to plan, prepare, and protect your family’s future.

Visit us today at the National Sickle Cell Centre, Idi-Araba, Surulere.

ICYMI: Joshua’s story is a reminder that awareness saves lives.From stigma to strength, his journey through Sickle Cell ...
17/11/2025

ICYMI: Joshua’s story is a reminder that awareness saves lives.

From stigma to strength, his journey through Sickle Cell Disorder is one you won’t forget.

🎧 Catch up on the latest episode of The Champions Pulse.

12/11/2025

He grew up in a home that didn’t understand his pain.

From endless hospital visits to herbal treatments that made things worse, Joshua learned early that surviving Sickle Cell Disorder takes strength, courage and adequate information.

This is a story about ignorance, resilience, and the fight to live fully in the face of stigma.

A true leader, a visionary philanthropist, and a beacon of hope.Today, we celebrate Chief Tunde J. Afolabi, MFR, whose g...
05/11/2025

A true leader, a visionary philanthropist, and a beacon of hope.

Today, we celebrate Chief Tunde J. Afolabi, MFR, whose generosity and dedication to the sickle cell cause inspire lasting change.🎊❤️

Under your exemplary leadership, countless lives have been touched, transformed, and given new meaning through the work of the Foundation.

You remain a shining example of selflessness and hope; a reminder that true impact comes from service to others.

Happy Birthday, Sir, from all of us at Sickle Cell Foundation Nigeria. ❤️

Today, we celebrate you Chief Tunde Afolabi, MFR — a remarkable leader whose 75 years reflect humility, vision, and a li...
05/11/2025

Today, we celebrate you Chief Tunde Afolabi, MFR — a remarkable leader whose 75 years reflect humility, vision, and a lifetime of impact.

Through your generosity and wisdom, the Sickle Cell Foundation Nigeria has become a beacon of hope and healing for thousands.
Your quiet strength, integrity, and compassion continue to inspire all who serve under this noble cause.

Sir, we honour you for your service, leadership, and enduring legacy.

“Sometimes, love isn’t enough. You need a system that works.” This week, revisit Dr. Samuel Akinyemi’s episode on The Ch...
03/11/2025

“Sometimes, love isn’t enough. You need a system that works.”

This week, revisit Dr. Samuel Akinyemi’s episode on The Champions Pulse, a moving reminder of how passion, family, and purpose can spark change in healthcare.

Join the conversation today. Link available in bio.

29/10/2025

Love made him a doctor, but not in the way you’d expect.
Dr. Samuel Akinyemi’s story shows what happens when the system fails… and family becomes the lifeline.

Until we live in a nation where everyone understands the real truths and complications around sickle cell disorder, awar...
29/10/2025

Until we live in a nation where everyone understands the real truths and complications around sickle cell disorder, awareness never stops.
Kindly share this post.

Which of these misconceptions have you come across lately?

Address

National Sicklecell Centre, Opp Lagos University Teaching Hospital(LUTH), Ishaga Road
Lagos
234001

Opening Hours

Monday 08:00 - 16:00
Tuesday 08:00 - 16:00
Wednesday 08:00 - 16:00
Thursday 08:00 - 16:00
Friday 08:00 - 16:00

Telephone

+2348035846666

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