Sickle Cell

Sickle Cell Sickle cell disease (SCD) describes a group of inherited red blood cell disorders.

Soulage Foundation for sickle cell is a non-governmental,non-profit organization with a clear vision of alleviating the sufferings of people with sickle cell disorder in every way possible.

04/01/2022

Please let's hear from you.

04/01/2022

Happy New Year to all our Warriors. It's been a while.

07/09/2017

Have u heard of Priapism?

Sickle cell disease is the most common cause of ischemic priapism

Priapism is a condition in which a p***s remains erect for hours in the absence of stimulation or after stimulation has ended.

There are three types: ischemic (low-flow), nonischemic (high-flow), and recurrent ischemic (intermittent). Most cases are ischemic. Ischemic priapism is generally painful while nonischemic priapism is not

12/07/2017

Hydroxyurea
The first approved drug for the causative treatment of sickle-cell anaemia, hydroxyurea, was shown to decrease the number and severity of attacks in a study in 1995 and shown to possibly increase survival time in a study in 2003. This is achieved, in part, by reactivating fetal haemoglobin production in place of the haemoglobin S that causes sickle-cell anaemia. Hydroxyurea had previously been used as a chemotherapy agent, and there is some concern that long-term use may be harmful, but this risk has been shown to be either absent or very small and it is likely that the benefits outweigh the risk
(source; wikipedia)

28/06/2017

heard of sickle cell retinopathy?
its my first time of hearing about it tho, and this is what i heard, i hope it is useful
it is damage of the retina in the eyes, it occurs when red blood cells get stucked or trapped in blood vessels in the retina. when this happens, the trapped cells can cause
1. a decrease in blood flow which leads to potentially permanent damage of the retina
2. bleeding of the eye which happens when the eye makes new blood vessels which comes out weaker and thinner than the original and then break open and bleed.
when the retina becomes damaged, changes n eyesight may occur.
THIS DAMAGE MAY LEAD TO BLINDNESS IF IT IS NOT TREATED

(watch out for description of the symptoms coming up on the next post) hope this was useful to some extent

28/06/2017
Sickle Cell walk in Lagos to commemorate the World 17/6/2017
18/06/2017

Sickle Cell walk in Lagos to commemorate the World 17/6/2017

join us with other sickle cell foundations at Eko Atlantic for Sickle cell walk
15/06/2017

join us with other sickle cell foundations at Eko Atlantic for Sickle cell walk

pictures from the just concluded free TCD test. more pictures coming up
09/06/2017

pictures from the just concluded free TCD test. more pictures coming up

02/06/2017

TCD
do you know that a child with sickle cell has the tendency of having stroke if not properly cared for? yes, i said STROKE, as in S-T-R-O-K-E as in that type that i thought only happens to adult, as in that type that makes their speech go off, their hands and legs get paralysed and they start drooling.
the first time i heard this, i was shocked, i thought they were joking not until i saw a child with it and i was like OMG! this boy, 6 years, couldnt walk his hands were paralysed (forgive me if i dont use the ryt medical terms) the boy couldnt eat well and his mum had to feed him and even with that half of the food was still coming out of his mouth and i stood there in shock , seriously a 6 years old!!!!!!!
imagine a child going through so much, a child that cant still express his or her feelings yet not to talk of explaining how the pain is, adults go through this thing and it takes them months if not years to recover from stroke thats if they do all the exercise and physiotherapy thingy not to now think of a child, i mean what exercise are you gonna tell a 2 year old to do?

so there is something called transcranial doppler test TCD, this test is done so as to know the tendency of the child having stroke so one can work towards that not happenng, so normally its either the child is standard or at high risk. it means that every sickle cell child has to be cared for specially an carefully

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