MSS (Marshall Smith Syndrome) Research Foundation

Startpagina
Nederland
The Hague
MSS (Marshall Smith Syndrome) Research Foundation

Marshall-Smith syndrome is rare disease. Donations: RABOBANK - NL83 RABO 0140 3511 59. MSS Foundation, The Hague, The Netherlands.

The Marshall-Smith syndrome is a rare disease indeed. Worldwide only a small number of children are known, who suffer from this disease. Due to serious breathing disorder and associated complications, children often die soon after birth or during early childhood.

07/03/2021

Fragment uit de uitzending van 14 maart 2009 over kwaliteit van leven voor ernstig meervoudig beperkte kinderen

08/12/2018

23/12/2017

Thank you all for your support in 2017 and previous years. We are very thankful for what we achieved for MSS worldwide. We wish you a merry Christmas and a wonderful 2018!

16/12/2017

Dutch celebration 10th anniversary MSS Foundation for support of so many sponsors.

16/12/2017

Enjoy this Short clip of the MSS Family Event 2017.

Short clip of the MSS Family Event 2017 (September 2017) in the RonaldMcDonald Kindervallei in Valkenburg, The Netherlands. A gathering of families with a MS...

15/12/2017

This afternoon (15 December 2017) special celebration of the MSS Foundation 10th anniversary

29/10/2017

6-9 October 2017, The Netherlands

08/10/2017

20min... we are going live on Facebook Family Event 2017

30/07/2017

Today is International Day of Friendship. Happy day to all our special MSS friends worldwide. Hope to see and meet you all in October or some other day!

11/06/2017

Wow! Patient version of the standards of care are ready. Now in Dutch, soon translated in English. (We need help/funds for the other languages.)

Adres

Oeverbiesstraat 20
The Hague
2548WP

Telefoon

+31703356956

Website

http://www.marshallsmith.org/

Meldingen

Wees de eerste die het weet en laat ons u een e-mail sturen wanneer MSS (Marshall Smith Syndrome) Research Foundation nieuws en promoties plaatst. Uw e-mailadres wordt niet voor andere doeleinden gebruikt en u kunt zich op elk gewenst moment afmelden.