05/12/2022
Today we will finally get some solid answers around Indies treatment plan from here ! Unfortunately , although her tumor is gone the biopsy still came back with rhabdomyosarcoma cells present in the scar tissue 😭
So our team were consulting with a team in Sydney to discuss whether Brachy therapy ( a type of radiation) would be beneficial for Indie . The side effects of this treatment are pretty nasty and some would directly effect Indies quality of life , another one of the catch-22 situations where you feel like no option is the right option 💔
Upon trying to do some of my own research into it , I came across this sentence ;
“Given the rarity of pediatric vaginal tumors, few studies have reported the oncological outcomes of patients treated with brachy therapy”
My thoughts ? Well f**k , what exactly are we basing the next step of indies treatment on if there’s next to no study’s been done on it - trying to trust the team who undoubtedly know so much more than we do but it is HARD
Indie remains stronger than ever in her fight 💪🏼 it’s actually hard to know when she’s becoming unwell these days as she can still be running around laughing with a temp that’s through the roof 🤯 She spent 3 nights in hospital last week with an infection but this didn’t bother her ! Now we are just 2 days out from the 7th round of chemo , that was the fastest 3 weeks ever !
We don’t know what the future holds yet and we may not even after today but we are making the most of all the good days ,
Indies beautiful bright smile and love of the simple things in life is enough to keep us going ❤️
