A Compressed Angel. Trinitys Fight For Life, Napier (2026)

16/02/2026

. 🩷 ✨🎉 21 & NEW CLUES 🎉✨🩷

As we step into a new year, the past couple of days have brought information we have been searching for, for a very long time… answers that were never available to us before.

Within the last 48 hours we have been contacted by biological relatives who we have had no previous connection with.

Through those conversations we have learned that there is a significant history of complex health issues that closely mirror many of the symptoms Trinity has faced throughout her life.

While we are choosing to keep the details and identities private out of respect for those involved, this information is incredibly important, and we are extremely grateful to them for making contact to let us know.

For the first time, there is clear evidence that Trinity’s condition does not exist in isolation and that there may be an underlying hereditary component.

This adds further weight to what has always been evident in her day-to-day care — that Trinity is living with a genuine, complex medical condition requiring ongoing clinical support, and it strengthens the need for continued investigation and appropriate treatment pathways.

🎂🩷🥳 🎈 CELEBRATION 🎈🥳❤️🎂

Right in the middle of all of this… our girl turned 21 🎂🥹💗

Her celebration was held at home, surrounded by her closest friends and loved ones.

A garden filled with pink florals 🌸, laughter, music, and the kind of joy that only comes when someone has fought so hard to simply be well enough to still be with us.

Makeup done, beautiful dress on, her people beside her, and that powerful spark that refuses to go out ✨

Twenty-one years of resilience.
Twenty-one years of fighting a body that has never made things easy.
Twenty-one years of still choosing joy wherever she can 🎉
Twenty-one years of LOVING

💞 We are so incredibly proud of her 💞

💖 we are so grateful for you all here 💖

Your support continues to make it possible for us to:
• seek specialist opinions
• pursue genetic and investigative pathways
• access the treatments that keep her stable at home
• and keep building a future that is bigger than hospital walls

This new information has given us something we haven’t had in a long time — validation and momentum ✨
We will share more as we are able, but for now please know how deeply grateful we are to have you walking beside us 💜
With love and gratitude always,

💫 The Angels family 💫

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

07/02/2026

🦮💞🐎 A PIECE OF HER HEART 🐎💞🦮

Yesterday, the girls were scooped up by a beautiful friend and taken to Norsewood to visit another dear soul and spend the day at the Vikings Fair which the Gypsy Travellers had joined for the weekend.

Something that used to be part of their yearly rhythm when the gypsy fair came through town.

A simple day.
Fresh air.
Familiar laughter.
Friendship and love.

Moments that almost felt like “before.”
But this time… we came home with photos that made our hearts both ache and swell all at once.

There were horses there. And of course, the part of our Angel that systemic failures and false narratives tore away from her life came rushing back to the surface.

The way she connects with animals isn’t something you can teach, it’s something that lives in her bones. And watching them respond to her in that same quiet, knowing way… there truly are no words.
It was beautiful.
It was painful.
It was a reminder of who she has always been underneath all of this.

These animals, this life, run just as deeply in both our girls veins.

So standing there, watching that spark flicker again, we were hit with that familiar mix of pride, grief, love, and frustration all tangled together.

Because this is the reality we keep being confronted with:
how much was taken from her, and how fiercely we are still fighting to help her reclaim pieces of it.

There are conversations happening again with the hospital. Words that sound hopeful. But hope is complicated when you’ve been burned before.

Trust doesn’t come easily after everything this girl has endured.

We were never meant to be in this position, having to fundraise enormous amounts just to:
* access testing
* pull her back from nutritional failure
* treat severe Vitamin C deficiency and acute scurvy
* reduce seizures
* search for the root cause of her health collapse.
* provide her with the hospital level care that was so wrongly ripped from her

Step by step, with the help of this incredible community, we have built something that works. There are still things we need to find answers to and solutions for but everything we have so far is massive.
Home management that has reduced hospital admissions and given her some quality of life back. Stability. Safety. Dignity.

And now we sit in this strange space of hope and fear at the same time… worried that the very systems we are trying to work alongside again could try and take away the things that are finally helping her.

So the question we are facing now is this:
How do we all move forward on the same page?

How do we build on what has already been achieved so her quality of life can improve, not go backwards?

We are still waiting on some results, but with what we already know, much of the picture is becoming clearer. We are not fighting blindly anymore. We are fighting informed, experienced, and supported, because of all of you.

And days like yesterday remind us exactly why.

Because underneath the medical lines, the feeding tubes, the endless appointments…
she is still that girl whose soul settles beside animals, whose heart feels most at home in fields and fresh air.

That girl is still there.

And she is worth every single step of this fight.

❤️ Thank you for walking it with us ❤️

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

04/02/2026

🌈 🩷 🦮 HOLDING ONTO LIFE 🦮 🩷 🌈

✨️ This. ✨️

This is what your support gives her.

Grass under her feet. Fresh air. A game with Juno. A moment where she gets to just be a young woman, even while still hooked up to the things that keep her going.

Because this is real life for our Angel.

Joy and medical gear. Outdoors and IV lines. Laughter in between the hard.

Behind the scenes, things are still tough. She is facing a number of weeks’ wait for her feeding tube replacement, which means pain management is a real challenge right now.

The treatments through the cannabis clinic are helping significantly with sleep and her autonomic symptoms, but pain relief is slower to achieve and will take time and careful titration with no guaranteesof success.

🩷 And yet… life continues. 🩷

Plans have been quietly ticking along for her upcoming 21st 🎉 in between our Angel researching study options to keep her brilliant brain engaged.

Most days she’s managing to get out walking with Juno, which is a complete godsend for them both, and she’s been able to spend good quality time with friends too.

These windows of normal life don’t happen by accident. They happen because of the care, equipment, treatments, and home support your generosity helps us maintain.

Every donation helps protect more days like this — days where she is living, not just surviving. And we are endlessly grateful for every single one of you who helps make that possible. 💛🐾

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

31/01/2026

📘💔 WHEN THE SYSTEM FAILS 💔📘

Some of you will recognise the name Chris Valli ... one of the journalists who bravely helped shine a light on how our Trinity has been mistreated and failed by the health system.

Chris has now released his own book, Put the Phone Away, sharing his personal story of being let down by the very system he served, the toll that took on his mental health, and the burnout that followed.

His story is different to Trinity’s, but the theme is painfully familiar.
Trusting a system.
Doing the “right” things.
And still ending up unheard, unsupported, and harmed.

It takes courage to speak publicly about experiences like this. To be honest about mistakes. To talk about breaking points. To show what really happens behind the scenes when systems fail people instead of protecting them.

We are deeply grateful to Chris — not just for telling his own story, but for using his voice to help tell Trinity’s.

Journalism like his is one of the reasons our girl hasn’t disappeared quietly into the cracks.

If you’ve ever wondered how people end up burnt out, broken, or battling institutions just to be treated with dignity, this book helps explain the human cost.

📖 Put the Phone Away has just been released, and if this message resonates, you might like to consider purchasing a copy to support honest storytelling that challenges the systems meant to protect people.

Stories change things.
Voices matter.

And truth, even when uncomfortable, is powerful.

Thank you, Chris, for standing in the uncomfortable space where truth lives, for yourself, and for families like ours. 🤍

21/01/2026

. 🏡 🐾 💚 HEALING AT HOME 💚 🐾 🏡

Our Angel is finally home again and absolutely over the moon to be back in her own space, surrounded by the comforts of home and easing back into her familiar routine with Juno and everyday life.

There is something incredibly healing about sleeping in your own bed, hearing the usual sounds of home and having your four-legged shadow close by again.

Her recovery from the obstruction is still ongoing, and the girls are keeping a very close eye on her fluid balance as dehydration remains a real risk.

Thankfully they are managing to stay on top of hydration and replace at least some electrolytes at home, which is a huge relief and makes a big difference to how she feels day to day.

If all continues to go well, she will soon be booked in to have her feeding tube replaced.

We are really excited about this step, as it should make symptom management much easier and open the door to carefully trying trickle enteral feeds again. Even small steps forward feel enormous after everything she has been through.

We also want to acknowledge the incredible care Trinity received during this admission.

The team were thorough, attentive, and genuinely kind, and it made such a difference to both her physical recovery and her confidence after a very rough period.

The staff were also so lovely with Juno, giving her patience, reassurance, and plenty of positive attention, which helped turn what could have been a frightening first hospital admission into a really positive one alongside her mum.

At this stage Juno was still heading home at night with Anna to give her a break and avoid her becoming overwhelmed in such an intense environment, and we are so grateful for how understanding and supportive everyone was of that too.

As always, thank you from the bottom of our hearts for the continued kindness, messages, donations, prayers, and quiet support behind the scenes. You carry us more than you probably realise, and we are endlessly grateful to have you walking this road with us.

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

17/01/2026

. 🥰🤞🦮 GENTLE PROGRESS 🦮🤞🥰

Another day and yet another ward change but a day where there are definitely hopeful signs that things are on the improve for our girl.

Her abdomen is softening and the distention is starting to decrease. She is still in alot of pain when moving but has improved management when resting.

She was told this morning that if things keep tracking in the right direction, tomorrow may see her freed from the horrid nose noodle.

There was a bit of a mis communication around them using Trinity’s central line, but an immediate response from the teams nurse practitioner got that sorted, and with perfect timing as today they lost access with her veins when they tried for another blood test.

Both the girls have been very relieved that the hospital has taken some action around the low magnesium and have done 2 infusions so far to try and get the levels up.

As this is the first full admission for Juno, Anna has been careful to keep her within her coping ranges and has her home from late afternoons and nights as to try not overwhelm her. She is coping with everything incredibly well and steps into her role perfectly as soon as she arrives at the hospital which for a still very young dog is actually incredible.

The girls are so grateful to all the staff for helping set Juno up for success by giving her plenty of positive experiences and those who are nervous of dogs communicating it so everyone is able to be set up for success.

As grateful as the girls are that Trinity has been recieving the appropriate care needed at this time, it really has brought to light just how much it has meant to the both of them to have the level of management they have established at home with community support and how much freedom that brings to be able to enjoy more of life.

Tonight Anna will be busy stocktaking the latest delivery of medical supplies which are yet to be unpacked, and a stark reminder of what it takes to do home management correctly and safely.

As always, we are forever thankful to you all for making those moments possible.

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

14/01/2026

. 🏥 😢 💔 BACK IN HOSPITAL 💔 😢 🏥

💥 Complex Care 💥

The past few weeks have been incredibly rough for Trinity.

With her feeding tube broken, she had no choice but to increase her oral intake, something her body simply cannot tolerate long term.

Yesterday that strain finally came to a head with another bowel obstruction that required a trip into hospital.

This admission marked Trinity’s first time back under the Complex Care team. Their initial introduction 18 months ago, as Anna has very openly described, was nothing short of a freaking joke.

Returning to this space came with a lot of understandable fear and distrust.
Despite that history, the girls made the decision to try again. This time, that willingness has already shown meaningful improvement.

Having direct contact with the team meant the transition through ED was as smooth as it could possibly be in a hospital that is constantly sitting in Code Red.

Getting Trinity in earlier, before the obstruction reached crisis point, gave the surgical team the opportunity to attempt a conservative approach. Decompressing her gut via an NG tube may help avoid surgery altogether.

The pain team did not hesitate. They arrived as quickly as they could once they recieved the call, set her up with a PCA, a patient controlled morphine pump, and ensured she received the precious IV fluids her body so desperately needs.

There was even a small moment of humour. With the hospital so full, our girl has landed back in the paediatric ward where she spent much of her childhood. A strange kind of full circle moment. With much of the same care she used to get before everything was so traumatically ripped from her.

This afternoon Trinity has symptom management, close monitoring, and something just as important, peace of mind that one way or another things will move forward duringthis admission.

One of the most powerful moments came quietly.
The nurse practitioner from the team looked at her and said simply, “We believe you.”
Those words opened the door to an emotional release and the beginning of healing after three years of relentless physical suffering and deep emotional trauma.

Does this mean everything is suddenly okay?
Absolutely not.

We are still fully funding all of Trinity’s home care privately and will continue to do so unless a miracle happens and the hospital is both willing and able to reinstate the support she once had.

But for today there is care.
There is relief.
And there is a small, hard earned step toward fragile trust.

Through it all, Juno has been an absolute superstar. Settling quietly with her mum, making friends with the staff and asking very politely when she needs a much deserved break, either to go home for a couple of hours or a quiet walk over the hospital grounds where she can defrag from the hustle and bustle.

Thank you to everyone who continues to stand beside our girl 💛

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

10/01/2026

💫💖✨ SHINING FOR TRINITY ✨️💖💫

💡🎅🎄CHRISTMAS 2025 🎄🎅💡

What an incredible community we are blessed to be part of.

Through the generosity, kindness, and pure Christmas spirit of Mark Williams and the wider Hawke’s Bay community, Shining for Trinity, Christmas 2025 raised an astounding $2,811.40.

Words genuinely can’t express the depth of our gratitude. Every coin dropped, every note donated, every moment spent admiring the lights and choosing to give, it all adds up to something far bigger than a number.

This support is huge for our family. It helps us maintain the level of care Trinity needs at home, keeping her as stable and supported as possible while we take the next crucial steps toward investigating options for addressing her abdominal vascular compressions.

💞 To Mark, thank you for once again turning Christmas magic into real, tangible hope. You are deeply treasured by our girls 💞

💫 To everyone who stopped, donated, shared, or supported, please know you are part of Trinity’s journey in a very real way.

From the bottom of our hearts, thank you for shining so brightly for our girl

08/01/2026

💥 ⚔️ 🔥 FIGHTING FOR HOPE 🔥 ⚔️ 💥

There are moments in this journey where courage doesn’t look like grand gestures.... it looks like two determined women walking back into a hospital that completely broke their trust, and choosing hope anyway.

Today, Trinity and Anna faced one of those moments.
They returned to meet with the team who previously caused one of the many highly distressing and traumatic experiences Trinity has had within the public health system.

Anxiety was sky-high. Trust was non existent.

After the initial rejection of her desperately needed PEG-J replacement, Trinity had reached a point many wouldn’t admit out loud, she was done.

She was just so tired. Tired of fighting. Tired of being dismissed. Tired of hurting, tired of being treated like their guinea pig, tired of constantly suffering because of their total lack of support.

Since the tube broke, Trinity’s quality of life has dropped significantly. Things that were already hard became harder still. Symptoms intensified. Daily life became more exhausting. Stability slipped further out of reach. And it would have been so easy to give up, to walk away, to say “enough.”

But she didn’t.

Our Angel didn’t walk in powerless this time — she walked in prepared.
She carried her binder.
She carried her strength.
She carried the quiet determination of someone who has learned she deserves to be heard… even when she’s exhausted.
And for the first time… she was.

The girls were met with acknowledgement that the hard work at home, the dedication, the private care, community support, the organisation, the sleepless nights, the relentless advocating is helping Trinity. They listened. They respected.

They recognised Trinity as the capable young woman she is.

After a brief misunderstanding, Trinity calmly and bravely advocated for herself, explaining what she needed and why. And instead of being dismissed… she was supported.

It was agreed that replacing her completely broken and non functioning PEG-J with a low-profile PEG-J is the right step forward.
It was agreed that this matters. It is a very necessary part of her ongoing needs to maintain symptom management and quality of life.

And finally it was agreed that Trinity deserves that piece of care.

Anna says she is quietly sitting back to see if their actions match their words and will give them a bit of a chance once she is walking into recovery when Trinity actually has the replacement in 😅

There was also encouraging support around her involvement with the cannabis clinic, with plans to seek Neurologist backing so she may have access to stronger, safer symptom control, hopefully reducing reliance on the heavy medications she has had to survive on for so long.

The girls have also asked for a dedicated meeting to challenge the misdiagnosis from Auckland and push for the right hospital care to be reinstated. There is no confirmation yet… but there is finally movement. Finally respect. Finally hope.

This wasn’t just a meeting.
It was a potential turning point.

It was Trinity taking back her voice, and being heard.

We cannot thank this community enough.
Every message, every share, every donation, every ounce of belief has helped the girls stand stronger, walk braver, and keep fighting for the care Trinity deserves.

But this journey is still long, and much of Trinity’s ongoing care, private medical support, and essential treatments remain self-funded. As momentum finally builds, we need to be ready to take the next steps, including securing her PEG-J replacement, supporting ongoing medical advocacy, and keeping her stable and safe.

If you are able to help, whether by donating, sharing, or simply sending love, you are part of the reason Trinity can keep moving forward.

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

Together, we keep hope alive.
Together, we help her keep shining. ✨

15/12/2025

. 🩺 💔 CARE COMES AT A COST 💔 🩺.

One of the hardest things about living with complex health conditions involving autonomic dysfunction is explaining how something as simple as a hospital appointment can ripple out into days of physical fallout.

Before heading in, our Angel Trinity had actually been doing well. She was happy and relaxed.

She has actually had a few really decent days lately. Spending time with friends, getting out, laughing, living, and enjoying being a young woman again. Even the doctor and nurse practitioner commented on how much better she’s looking, which meant a lot to the girls. It’s an important acknowledgement that the support that Trinity’s private team and Anna has worked so hard to put in place is making a difference.

But when autonomic dysfunction and histamine intolerance are part of the picture, the environment alone can be enough to overwhelm the body.

As soon as they arrived at the hospital, Trinity’s heart rate surged, before any difficult conversations or interactions took place. Outwardly she remained calm and composed, but her body clearly shifted into overdrive. This is a recognised feature of autonomic dysfunction, where travel, upright time, sensory overload, and stressful environments can trigger cardiovascular instability.

Physiological stress is also a known trigger for histamine release, which means these situations can provoke a full flare even without allergens or medications being involved.

💔 This is made even harder by the fact that Trinity’s PEG-J is currently completely unusable. Without it, her medications are not being absorbed reliably, she is unable to keep trickling vital enteral nutrition through and leaving the girls unable to properly support her body. 😢

At the moment, all that can be offered is supportive fluids and limited infusions via her central line — helpful, but not enough to fully stabilise things or control the pain and vomiting.

The doctor and nurse practitioner they saw were kind, compassionate, and genuinely trying to advocate for her, and the girls are grateful for that. However, advocacy still means further engagement with the same public system that previously blocked Trinity’s PEG-J replacement — a decision that continues to have very real physical consequences.

By the time they returned home, the delayed crash had hit. Trinity is now wiped out on the couch, riding out a full autonomic and histamine flare, paying the price for what was meant to be a routine appointment.

This isn’t about mindset or resilience.
It’s about a body doing its best in a system that keeps asking more than it can safely give.

The girls will continue to celebrate the good days, because they matter, and they’re hard-won, while also continuing to push for the care Trinity needs to stay stable.

If advocacy within the public system is not successful, Anna and the girls may once again be faced with having to pursue essential care privately, simply to prevent further unnecessary harm.

As always, thank you to everyone who continues to stand beside our Angel and support this journey, your kindness makes more of a difference than you will ever know 🤍

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

12/12/2025

. 💃💫🎄🎅 ️LIFTING SPIRITS 🎅️🎄💫💃

It has been a roller-coaster week for the girls, with challenges we will cover once we have more information from them.

For tonight though, they took a much needed break and headed back out to catch up with Mark Williams and bask in what really is the true spirit of the Christmas season.

There is something very magical and healing when Mark lights up his home for all.

A magical place where all your worries fade for awhile and get replaced by the precious childhood wonder as you bask in the absolute magic of his displays.

Mark himself inspires and uplifts, not just those who know him personally, but all that are blessed to enjoy the results of his months of hard work every single year.

Will this be the last post about the magic of Mark and his elves? Probably not, because tonight he told the girls that there are still more lights to be added and the girls take so much joy in sharing it all with us 💖

For now, we wish you all a peaceful loving weekend as we wait for the girls to process everything going on in the background and become ready to share it 💞

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

02/12/2025

✨🎄 🎅 SHINING FOR TRINITY 🎅🎄 ✨

Hawke’s Bay’s very own Christmas genius, Mark Williams, has once again gone above and beyond — lighting up his home and our community with the spirit of Christmas for the 25th year in a row.

Mark’s display is nothing short of phenomenal. Every corner of his property glows with heart, colour, and decades of dedication… and every year, he chooses a cause close to his heart to support through the donations given.

💖 This year, we are all feeling deeply humbled and unbelievably grateful that Mark has chosen to let his lights shine for our very own Angel, Trinity.💖

Naturally our girls couldn't wait to go and visit Mark and see this years display and have returned home with hearts and spirits lifted as they always are after time spent with him and are already planning their next visit when the dancers will also be performing.

Every coin placed in the donation box goes directly toward helping Trinity continue her fight here in New Zealand — supporting the specialist care, nutrition, and travel required to keep her stable and safe.

To Mark Williams thank you for your kindness, your generosity, and the joy you bring to thousands of families every December. And to everyone who visits the display and chooses to give… please know that your support truly helps keep our girl going.

🌟 The lights are shining bright, for Trinity, for hope, and for the community that continues to lift her up and keep her going. 🌟

https://givealittle.co.nz/cause/health-system-fails-our-18-year-old-save-a-life

A Compressed Angel. Trinitys Fight For Life

16/02/2026

07/02/2026

04/02/2026

31/01/2026

21/01/2026

17/01/2026

14/01/2026

10/01/2026

08/01/2026

15/12/2025

12/12/2025

02/12/2025

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