29/10/2025
October 30th, 730 Days of Bravery, 730 Days ago our life Changed Forever.
Today marks 2 years since Bodhi’s diagnosis. 730 days that have reshaped every part of our lives as parents, as a family, and as human beings trying to navigate a world we never imagined we’d have to face.
Bodhi has endured more in these two years than anyone should ever have to face. Countless port accesses, over a thousand chemotherapy pills, lumbar punctures, IV treatments, endless medications, side effects, nausea, pain, and nights that feel unending. He has gone through procedures that no child should have to endure, and yet, with a courage that humbles us, he keeps going. Every day. Every moment. He’s fought battles most adults could not even imagine, and still he smiles, still he plays, still he teaches us what real bravery looks like.
And as parents, the past two years have been a journey into a world we never asked for but had to learn completely. We’ve had to master medical terminology, treatment protocols, and hospital systems, all while trying to remain calm in front of him, while our hearts were breaking inside. The fear is deep, raw, and never fully leaves you, the fear of needles, of infections, of reports, of setbacks, of the unknown. It is a shadow that walks beside you every single day.
Alongside it is the grief, grief for the childhood we imagined, the carefree days we dreamed of, the life we envisioned for our children and ourselves that now looks so different.
We have cried in waiting rooms. We have held each other in exhaustion and terror. We have celebrated small victories with tears of relief and joy. We have learned what it truly means to fight, not just for Bodhi, but for every day, every moment, every opportunity to make life as full and happy as it can possibly be under these circumstances.
And yet, even amidst all the fear and grief, there has been incredible beauty. Bodhi’s spirit shines brighter than anything we could have imagined. His laughter is contagious. His stubbornness is inspiring. His joy is a reminder that even in darkness, light can exist.
We have watched our little warrior grow stronger, braver, and more resilient than anyone could expect. We have witnessed him endure pain, discomfort, and fear and still find ways to love, to play, to be a child. Every procedure, every medication, every hospital visit has been a testament to how far he has come. And he has come so, so far.
We also want to give a huge shout-out to all the friends, family, and the amazing online community who have been with us along the way. Your love, support, encouragement, and kindness have lifted us when we couldn’t lift ourselves. We wouldn’t be where we are today without you, the ongoing support has truly been a blessing we will forever be thankful for.
Today, we honor Bodhi for his bravery, his heart, and the life he continues to live fully, despite the unimaginable challenges. We honor the journey we’ve walked as parents, the love, the fear, the grief, the sleepless nights, the endless learning, the advocacy, and the hope that refuses to let go.
To anyone reading this, this is our reality, and yet it is also our hope that life, even when it is turned upside down, can still be filled with love, courage, and light. Bodhi has taught us that. Every day.
Bodhi, you are our hero. You are our light. You are our heart. And we will continue to fight, love, and hope beside you for every single day that comes.
