15/11/2025
๐๐ World Sanfilippo Awareness Day
๐Today weโre honouring World Sanfilippo Awareness Day, a moment to recognise the incredible strength, love, and resilience of those living with Sanfilippo syndrome โ including our amazing Ollie - son of Charlotte, one of our pharmacists.
๐Sanfilippo is a rare, life-limiting genetic condition that slowly takes away a childโs abilities over time. It is often referre to as terminal Childhood Dementia. Ollie is so much more than his diagnosis. He is joy, determination, and courage. Every day, he teaches us what really matters: finding happiness in small moments, embracing fun wherever it appears, and loving with your whole heart.
๐Today we celebrate Ollie, stand with families around the world, and raise awareness in the hope of better understanding, more support, and โ one day โ a cure.
๐Check out Ollieโs story here: https://m.youtube.com/watch?v=IUdEW2C78oc
Tomorrow, weโll all be wearing purple instore to raise awareness about this devastating disease. We will have a collection instore supportingthe Childhood Dementia Initiative.
Ollie Schimanski lives with a debilitating rare condition, similar to childhood dementia, Sanfilippo syndrome. His family shares their positive approach deal...