Myeloma New Zealand

20/11/2025

Are you interested in joining a North Shore (Auckland) coffee catch up group for those affected by myeloma? Please email Sue to find out more.

19/11/2025

Hi everyone, our next virtual coffee group is next week at 11am on Friday 28 November. Hosted by patient Michael Woods, you are welcome to attend and meet other patients/care partners.

As with our previous online catch ups, this is very informal with no theme or topic - it's like having coffee with friends, just in front of your computer or phone.
Please register at https://us06web.zoom.us/meeting/register/U3iWQb6cRiO_0Ev3KGzj2g

Once registered you will be emailed a link to join the meeting. If you have any questions you can email us on admin@multiplemyeloma.org.nz

A big thanks to Mike for hosting!

Welcome! You are invited to join a meeting: Myeloma NZ online coffee catch up/virtual support group. After registering, you will receive a confirmation email about joining the meeting.

16/11/2025

Absolutely amazing efforts today from myeloma patient Toby and his friend Ben who both ran 50kms at the same time in different countries (Australia and Vietnam) to raise money and awareness for myeloma.

Thank you so so much to the both of you. This is the second year in a row that they've both done this too!

It's not too late to donate - you can donate by heading to their givealittle page:

https://givealittle.co.nz/fundraiser/miles-for-myeloma-round-2

15/11/2025

Myeloma NZ's feedback on Pharmac's consultation regarding the OFI list is now on our website. If you want to give feedback to Pharmac you are able to do so until tomorrow.

News Myeloma New Zealand’s feedback to Pharmac’s proposal to decline some medicine funding applications on the Options for Investment list Nov 16, 2025 | NewsPhamac have proposed to decline some medicine funding applications on the Options for Investment list. You can read about their proposal h...

03/11/2025

Do you remember last year when myeloma patient Toby and his friend Ben ran an amazing 50km to raise money for Myeloma New Zealand? This year they are doing it again! We're so incredibly grateful and having been inspired by their amazing effort, we are kicking off Move for Myeloma this November.

Move for Myeloma is a way that you can also support Myeloma New Zealand during the month of November, while doing something that is good for all of us - movement. If a 50km run is not quite your thing, you might want to get out for some walks with family or friends, maybe a bike ride or a shorter run. Even trying some chair exercises is a great way to get moving. You might want to do something one off or throughout the month of November.

You can get involved with Move for Myeloma in a couple of ways:
(1) Create your own fundraiser on Give a Little that links direct to Myeloma NZ, explain what movement you'll be doing this November and ask family and friends to donate in support. You can keep people updated on the Give a Little page.

To do this, head to our Give a Little page and click the "Fundraise" button. You then create a page for you which links your fundraising to the Myeloma NZ Give a Little page.

(2) Alternatively, you can donate to Toby and Ben's page which links to Myeloma NZ's, as a way to thank and acknowledge them for their support, and to give back to Myeloma NZ and provide support for our ongoing work.

If you are going to be in Sydney or Hai Phong on Sunday 16 November, you can also head along and support Toby and Ben in person.

Myeloma NZ's Give a Little page: https://givealittle.co.nz/org/myelomanz

Ben and Toby's Give a Little page:
https://givealittle.co.nz/fundraiser/miles-for-myeloma-round-2

21/10/2025

Myeloma patients Toby and Nic talk to RNZ about leaving New Zealand to access better treatments overseas https://www.rnz.co.nz/news/national/576564/aussies-welcoming-to-blood-cancer-patient-who-may-need-drug-unfunded-in-nz

Toby and Nic can now access better treatments that we don't have in New Zealand, so they're sharing their story to advocate for others. Thank you to both of you for doing that.

Toby Fuller who has had chemotherapy and a stem cell transplant may need a drug that isn't funded in New Zealand.

14/10/2025

Very sad news to receive this morning. Dr Durie did amazing things for myeloma patients, from support to research and everything in between. His death will be a big loss to the myeloma community. Thank you Dr Durie for everything you have done.

It is with great sadness that the International Myeloma Foundation (IMF) shares the news of the death of Dr. Brian G.M. Durie, co-founder of the organization. Read the press release: https://mmsm.link/4q95XLn

11/10/2025

Pharmac recently received an application for belantamab mafodotin, which their Cancer Treatments Advisory Committee (CTAC) is considering next month.

Myeloma NZ has sent a submission to Pharmac about this much needed treatment. A big thank you to the two patients who are on belantamab as part of a trial, for allowing us to tell their story.

You can read this submission and others on our website https://multiplemyeloma.org.nz/submissions/

For updates on the application you can check Pharmac's website https://connect.pharmac.govt.nz/apptracker/s/global-search/Belantamab%20mafodotin

Submissions Submission to Pharmac on belantamab mafodotin Submission to Pharmac on belantamab mafodotin   Download BloodC ancer Alliance June 2024 Letter ‘13 Medicines’ policy – seeking reassurance from Government that commitments to blood cancer patients will not be forgotten. Open letter fr...

11/10/2025

We want to see you on October 15! Join us virtually at our Living Well with Myeloma webinar to learn how you can prevent and manage infections with myeloma. Register today at https://mmsm.link/47Xevyk

03/10/2025

This is the longer interview with myeloma patient Tawhai and his wife Lani.

03/10/2025

Myeloma patient Tawhai and his wife Lani speak to Tahu News.

https://www.facebook.com/share/r/19r3j8u4XC/

30/09/2025

Tomorrow! Join IMF NLB Member Beth Faiman PhD, MSN, APN-BC, BMTCN, AOCN, FAAN, FAPO, live on 9/30 for a Q&A on myeloma in honor of Blood Cancer Awareness Month! Hit "Going" & remember to turn on event notifications to receive an alert when we go LIVE