20/07/2025
The ๐๐ป๐๐ฒ๐ด๐ฟ๐ฎ๐๐ฒ๐ฑ ๐ ๐ผ๐น๐ฒ๐ฐ๐๐น๐ฎ๐ฟ ๐๐ฒ๐ฟ๐บ๐ฎ๐๐ผ๐น๐ผ๐ด๐ ๐ฃ๐ฟ๐ผ๐ด๐ฟ๐ฎ๐บ (๐ถ๐ ๐ข๐๐) of the Southern Philippines Medical Center has launched the ๐๐-๐๐๐ฅ๐ ๐ฃ๐ฟ๐ผ๐ท๐ฒ๐ฐ๐ a nationwide initiative led by Dr. Bryan Guevara to support individuals and families living with epidermolysis bullosa (EB).
Epidermolysis bullosa (EB) is a rare, inherited skin condition that causes the skin and mucous membranes to be so fragile they blister or tear with even the slightest friction. Living with EB requires intensive, lifelong wound care and support.
The ๐๐-๐๐๐ฅ๐ ๐ฃ๐ฟ๐ผ๐ท๐ฒ๐ฐ๐ strengthens support for EB patients across the country through four key pillars: ๐๐ผ๐ป๐ป๐ฒ๐ฐ๐, ๐๐ฐ๐ฐ๐ฒ๐๐, ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต, and ๐๐ฑ๐๐ฐ๐ฎ๐๐ฒ.
In partnership with ๐ฃ๐๐ผ๐ฟ๐ถ๐ฎ๐๐ถ๐ ๐ฃ๐ต๐ถ๐น๐ถ๐ฝ๐ฝ๐ถ๐ป๐ฒ๐, founded by Mr. Josef de Guzman and led by its president Mr. Paul Albert Mendoza, the project helped form ๐๐๐๐ฅ๐ ๐ฃ๐ต๐ถ๐น๐ถ๐ฝ๐ฝ๐ถ๐ป๐ฒ๐. This national patient network ๐๐ผ๐ป๐ป๐ฒ๐ฐ๐๐ Filipino families affected by EB into a growing community of support and advocacy.
As part of its commitment to ๐๐ฐ๐ฐ๐ฒ๐๐, the project hosted a wound care workshop led by Dr. Clarisse Mendoza and Dr. Jen-Christina Lourdes Segovia Santos. Caregivers learned safe and practical methods for handling daily wound care, which is an essential part of EB management.
EB-CARE also focuses on ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต. Through collaboration with Prof. Chao-Kai Hsu of ๐ก๐ฎ๐๐ถ๐ผ๐ป๐ฎ๐น ๐๐ต๐ฒ๐ป๐ด ๐๐๐ป๐ด ๐จ๐ป๐ถ๐๐ฒ๐ฟ๐๐ถ๐๐ and local partners at the ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต ๐๐ป๐๐๐ถ๐๐๐๐ฒ ๐ณ๐ผ๐ฟ ๐ง๐ฟ๐ผ๐ฝ๐ถ๐ฐ๐ฎ๐น ๐ ๐ฒ๐ฑ๐ถ๐ฐ๐ถ๐ป๐ฒ, the project seeks better diagnostics and treatment options.
๐๐ฑ๐๐ฐ๐ฎ๐๐ถ๐ผ๐ป is a core part of the program. Patients and healthcare providers receive essential information on identifying and managing EB. This helps ensure quicker diagnosis and better quality of life for those affected.
The EB-CARE Project is supported by the Philippine Dermatological Society and funded in part by a ๐๐ฒ๐ฟ๐บ๐๐ถ๐ป๐ธ grant from the International Foundation of Dermatology and the International League of Dermatological Societies.
Epidermolysis bullosa may be rare, but no one facing it should feel alone. To learn more, join DEBRA Philippines, or support EB initiatives, you may contact us at imold.mindanaoph@gmail.com or +639777578834 or visit our page and send us a message.
