HAE Pakistan

01/11/2025

Upcoming event

Registration for the 2026 Global Angioedema Leadership Conference is now open 😁 🙌

Building on the remarkable success of the 2024 HAEi Global Leadership Workshop and the ACARE Global Angioedema Forum 2024, we are delighted to announce that registration for the 2026 Global Angioedema Leadership Conference – a joint HAEi and ACARE event – is now open.

The conference is for Key Patient Opinion Leaders from our 105 member countries, alongside key physicians, scientists, researchers, and industry representatives from the angioedema community.

Featuring 2 dynamic programs across 2 days under the theme, 'Make a Difference', the conference will take place in Madrid, Spain, from 26 to 29 March 2026.

Register for the conference on our website 👉👉 https://buff.ly/UkXR7b6

23/10/2025

The 46th International Conference of the Pakistan Association of Pathologists (PAP) was held at the Pearl Continental Hotel, Lahore. The event brought together leading experts, researchers, and clinicians from across the country to discuss the latest developments and research in the field of pathology and related medical sciences.

Dr. Hussain Aslam represented HAE Pakistan at the conference and delivered an awareness lecture on Hereditary Angioedema (HAE). His presentation focused on improving understanding of the disease, emphasizing early diagnosis, and promoting access to effective treatment options for patients.

The session was well received by participants, who appreciated the valuable insights and the efforts of HAE Pakistan in raising awareness about this rare genetic condition.

HAE Pakistan remains committed to continued collaboration with the medical community to enhance awareness, diagnosis, and management of Hereditary Angioedema across the country.

24/09/2025

Good news for people with HAE in the EU, Iceland, Liechtenstein, Norway and Switzerland 🙌

A new medicine for HAE, called Ekterly (sebetralstat), has received approval from the European Commission (EC) and the Swiss Agency for Therapeutic Products, Swissmedic, for the symptomatic treatment of acute attacks of hereditary angioedema (HAE) in adults and adolescents aged 12 years and older.

The EC approval applies to all 27 EU member states as well as Iceland, Liechtenstein, and Norway.

Read more about the approval on our website 👉👉 https://buff.ly/cWEs2b7

24/09/2025

Exciting news for young people in the HAE community: Applications for HAEi LEAP 2026 are officially open 🙌

HAEi LEAP is an educational program, developed by HAEi, that allows young people to learn new skills and develop as individuals, and advocates.

The program is for young people who want to develop skills in advocacy, project management, and public speaking, and more, and it includes:

🎓 Online courses and practical exercises
✈️ A 3-day in-person seminar in Copenhagen, Denmark
🤝 A hands-on project with their local Member Organization

This is a chance to grow as an advocate and make a real impact!

Applications are now open – head over to the HAEi LEAP website to learn more about the program and how to apply: https://buff.ly/sgJHADY

25/08/2025

📣 News from South Asia, Germany, Austria, Switzerland, and Israel

In the latest edition of our Global Perspectives magazine, F***y Schappler, HAEi's Regional Patient Advocate for South Asia, Germany, Austria, Switzerland, and Israel, reports from her region 🌍 🌎 🌏

Read all about the activities and initiatives in F***y's region 👉👉 https://buff.ly/qUOOAQG

🗞️ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips 📱 head over to the Global Perspectives online version 👉👉https://buff.ly/xNm48Ps

23/08/2025

🌟 New issue of Global Perspectives in the fully online format available now 🙌

The second 2025 edition of Global Perspectives is now available in its fully online format, allowing you to translate the latest news from our global community into your preferred language.

This issue includes:

✔️ News from HAEi’s Regional Advocacy team
✔️ News from HAEi Countries Around the Globe
✔️ hae day :-) 2025 is a record breaker
✔️ LEAP 2025: The students start an incredible advocacy journey
✔️ Update from ACARE

This issue also includes several special features:
✔️ Key to better care in HAE
✔️ The HAE Insight Series
✔️ A key African medical congress
✔️ A postcard from Baltimore
✔️ HAE with normal C1-IHN

and much, much more …

Please share with anybody who would find the magazine interesting to read.

Head over to the magazine website and read this year's second edition of Global Perspectives 👉👉 https://buff.ly/xNm48Ps

18/08/2025

NEW! Our guide 'Understanding HAE' is now available in 24 languages, with Afrikaans being the last added 😁 🙌

The guide is filled with practical information on HAEn and its impact on the individual and their life, including:

✔️HAE types, symptoms, and attack triggers
✔️How to diagnose and treat HAE
✔️HAE and children, women, and pregnancy
✔️Tips for traveling with HAE
✔️A presentation of HAEi and the many resources offered by HAEi.

Do you want to read the guide – and even have it translated into your language? Jump to our website to learn more 👉👉 https://buff.ly/49yZbXN

17/08/2025

Suggestion for a weekend activity: Take time off and relax 😊 🙌
Most HAE attacks occur spontaneously with no apparent reason or trigger. However, in some cases, a cause can be identified, e.g.:
😐 Emotional and mental stress can trigger an attack.
🩹 Infections, minor injuries, and mechanical stimuli such as pressure can also induce an attack.
🦷 Dental procedures or surgery to remove the tonsils are particularly critical, as they can cause swelling in the larynx.
👩 Hormonal factors are another known cause of HAE attacks. For example, the frequency of episodes can be higher in women taking oral contraceptives containing estrogen, products for menopausal complaints, or who have menstruation.
Find out more about HAE in the FAQ on our website 👉👉 https://buff.ly/3hG1Vs8

15/08/2025

Our guide 'Women with HAE' is now available in 18 languages 🙌

This guide focuses on the unique challenges faced by women with HAE and covers three life stages: childhood 👧 family planning and pregnancy 🤰 and menopause and aging 👩🦳 .

With the help of our Member Organization, the guide is being translated into more and more languages and is now available in 18 languages, with Afrikaans being the last added.

Head over to our website to download and read the guide in your preferred language 👉👉 https://buff.ly/9U19XZ1

15/08/2025

Emergency Rooms Poster in urdu

11/08/2025

Recording Available Now
The recording of our Awareness Webinar on Hereditary Angioedema in Pakistan is now available for viewing. Don’t miss the opportunity to learn about HAE, its symptoms, diagnosis, and treatment options from experts in the field.
https://tinyurl.com/czzkf428

29/07/2025

It's on Thursday