AADMD UMFCD Bucharest Chapter

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AADMD UMFCD Bucharest Chapter

Our motto: Stop the stigma. Start the awareness. Our mission: raising awareness about the quality of
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31/12/2023

Embracing the 𝐍𝐞𝐰 𝐘𝐞𝐚𝐫 with open hearts and a commitment to shatter stereotypes! 🎉✨
Here's to a 𝟐𝟎𝟐𝟒 filled with compassion, understanding, and a relentless pursuit of breaking the stigma surrounding rare diseases. Together, let's make every moment count and every voice heard. 🌟💙

New Year, Same Mission: 𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐒𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.
𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫

29/12/2023

Counting down the days until 𝐑𝐚𝐫𝐞 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 𝐃𝐚𝐲 on 𝐅𝐞𝐛𝐫𝐮𝐚𝐫𝐲 𝟐𝟗, 𝟐𝟎𝟐𝟒! Only 𝟐 𝐦𝐨𝐧𝐭𝐡𝐬 𝐥𝐞𝐟𝐭 to raise awareness and support those facing unique health challenges.
Let's join hands in raising awareness and fostering understanding. Every voice makes a difference.
Together, united, for a cause that matters. 💙🌟

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

25/12/2023

Wishing you a Merry Christmas filled with joy, laughter, and the warmth of festive moments!
From all of us at AADMD UMFCD Bucharest Chapter, may your day be merry and bright and the spirit of the season bring warmth to your hearts and inspire moments of kindness.
Merry Christmas! 🥳✨🎄

28/02/2023

Did u know that 𝐥𝐞𝐬𝐬 𝐭𝐡𝐚𝐧 𝟔% 𝐨𝐟 𝐭𝐡𝐞 𝐰𝐨𝐫𝐥𝐝 suffers from a 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞?

Yet somehow that small percentage represents the suffering of 𝟑𝟎𝟎 𝐦𝐢𝐥𝐥𝐢𝐨𝐧 𝐩𝐞𝐨𝐩𝐥𝐞. Keep in mind that this number does not include their caretakers, family and friends whose lives have also been drastically altered.

Even though medical knowledge and technology have greatly advanced there is still not enough scientific and quality information to help everyone. Furthermore, common symptoms can mask the underlying conditions of the people suffering from a rare disease and thus lead to a misdiagnosis.

Today we choose to celebrate and commemorate those who have fought and are still fighting the good fight, together, with our friends from

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

27/02/2023

We continue the 7-part series with the last rare disease, 𝐕𝐨𝐧 𝐖𝐢𝐥𝐥𝐞𝐛𝐫𝐚𝐧𝐝'𝐬 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 (𝐕𝐖𝐃), an inheritable disorder, named after 𝐅𝐢𝐧𝐧𝐢𝐬𝐡 𝐩𝐡𝐲𝐬𝐢𝐜𝐢𝐚𝐧 𝐄𝐫𝐢𝐤 𝐯𝐨𝐧 𝐖𝐢𝐥𝐥𝐞𝐛𝐫𝐚𝐧𝐝, in which your blood doesn't clot properly. People with the disease have low levels of the same name factor which promotes blood cell adhesion when you bleed, therefore if you don't have enough of it or it's not functioning effectively, bleeding won't stop as quickly. 𝐕𝐨𝐧 𝐖𝐢𝐥𝐥𝐞𝐛𝐫𝐚𝐧𝐝'𝐬 𝐃𝐢𝐬𝐞𝐚𝐬𝐞 is represented by the color red ❤️

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

26/02/2023

𝐓𝐡𝐞 𝐬𝐢𝐱𝐭𝐡 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 of the 7-part series is 𝐌𝐮𝐜𝐨𝐩𝐨𝐥𝐲𝐬𝐚𝐜𝐜𝐡𝐚𝐫𝐢𝐝𝐨𝐬𝐢𝐬 (𝐌𝐏𝐒), a group of genetic conditions in which the body is unable to properly deconstruct mucopolysaccharides (long chains of sugar molecules that are found all through the body). As a consequence, these sugars buildup in cells, blood and connective tissue which can result in an array of health problems. 𝐌𝐮𝐜𝐨𝐩𝐨𝐥𝐲𝐬𝐚𝐜𝐜𝐡𝐚𝐫𝐢𝐝𝐨𝐬𝐢𝐬 is represented by the color orange 🧡

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

25/02/2023

𝐓𝐡𝐞 𝐟𝐢𝐟𝐭𝐡 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 of the 7-part series is 𝐎𝐬𝐭𝐞𝐨𝐠𝐞𝐧𝐞𝐬𝐢𝐬 𝐈𝐦𝐩𝐞𝐫𝐟𝐞𝐜𝐭𝐚 (𝐎𝐈), a bone disease, also known as 𝐛𝐫𝐢𝐭𝐭𝐥𝐞 𝐛𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞. Individuals with OI have fragile bones that break easily, frequently without an identifiable cause. Symptoms of OI can range from mild with only a few fractures to severe with many medical complications. 𝐎𝐬𝐭𝐞𝐨𝐠𝐞𝐧𝐞𝐬𝐢𝐬 𝐈𝐦𝐩𝐞𝐫𝐟𝐞𝐜𝐭𝐚 is represented by the color yellow 💛

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

25/02/2023

We continue the 7-part series with 𝐭𝐡𝐞 𝐟𝐨𝐮𝐫𝐭𝐡 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞, 𝐌𝐮𝐬𝐜𝐮𝐥𝐚𝐫 𝐃𝐲𝐬𝐭𝐫𝐨𝐩𝐡𝐲 (MD), a group of diseases that cause progressive limitation and loss of muscle mass. In MD, abnormal genes prevent the body from producing the necessary proteins to build healthy muscles. 𝐌𝐮𝐬𝐜𝐮𝐥𝐚𝐫 𝐃𝐲𝐬𝐭𝐫𝐨𝐩𝐡𝐲 is represented by the color 𝐠𝐫𝐞𝐞𝐧 💚

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

23/02/2023

𝐓𝐡𝐞 𝐭𝐡𝐢𝐫𝐝 𝐫𝐚𝐫𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 of the 7-part series we'll be highlighting this week is 𝐃𝐨𝐰𝐧 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞, a condition in which a person has an extra copy of the chromosome 21. The extra chromosome in 𝐃𝐨𝐰𝐧 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 changes the development of the baby, which can cause both mental and physical challenges for the baby. 𝐃𝐨𝐰𝐧 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 is represented by the color 𝐛𝐥𝐮𝐞 💙

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

23/02/2023

We continue with the second rare disease of the 7-part series we'll be highlighting this week:

Today we stand with those who are suffering from 𝐋𝐞𝐢𝐨𝐦𝐲𝐨𝐬𝐚𝐫𝐜𝐨𝐦𝐚, a rare type of cancer that mainly affects smooth muscles tissue of hollow organs and which is represented by the color 𝐢𝐧𝐝𝐢𝐠𝐨 💙

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

21/02/2023

Did u know that 𝐥𝐞𝐬𝐬 𝐭𝐡𝐚𝐧 𝟔% of the world suffers from a rare disease?

Yet somehow that small percentage represents the suffering of 𝟑𝟎𝟎 𝐦𝐢𝐥𝐥𝐢𝐨𝐧 people. Keep in mind that this number does not include their caretakers, family and friends whose lives have also been drastically altered.

Lets talk about one of the rare diseases of the 7-part series we'll be highlighting this following week:
Today we stand with those who are suffering from 𝐂𝐲𝐬𝐭𝐢𝐜 𝐅𝐢𝐛𝐫𝐨𝐬𝐢𝐬 (𝐂𝐅), a rare disease that can affect the respiratory and digestive system and which is represented by the color purple 💜

Join us in stopping the stigma and raising awareness!

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

15/01/2023

We fall, we break, we fail •but then• we rise, we heal, we overcome. 🫡
As we are always trying to overcome your expectations we decided to come with a little surprise. It’s been a month since our first article in DavilaDent by was released and you can find it on https://lsmdb.org/daviladent/ .

Check it out and let’s make this year even better together every day! 🥂

𝐀𝐀𝐃𝐌𝐃 𝐔𝐌𝐅𝐂𝐃 𝐁𝐮𝐜𝐡𝐚𝐫𝐞𝐬𝐭 𝐂𝐡𝐚𝐩𝐭𝐞𝐫
𝐒𝐭𝐨𝐩 𝐭𝐡𝐞 𝐬𝐭𝐢𝐠𝐦𝐚. 𝐒𝐭𝐚𝐫𝐭 𝐭𝐡𝐞 𝐚𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬.

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