Pediatric palliative care focuses on children, prenatal to young adult, with complex, chronic or serious conditions and their families, enhancing quality of life in partnership with cure-directed care. Our specialized team of providers includes:pediatric palliative care physicians, advanced practice providers, nurse case managers, social workers, bereavement coordinator, a chaplain, child life specialists, expressive, physical and occupational therapists, psychologists, pharmacists, a dietitian and trained volunteers. This team works in collaboration with your child’s other health care providers and specialists, helping to provide seamless care coordination and communication, and aiding you in making informed choices about difficult medical decisions. Palliative care patients receive comprehensive, interdisciplinary care to control pain and other symptoms. Your child receives support for emotional, psychological, practical, spiritual, educational and developmental issues which may contribute to suffering or interfere with healing. Care is customized for each patient and family, by allowing you to choose from a variety of available services, according to your needs. When a child faces a chronic condition or a serious illness, families often feel as if life has become a roller coaster ride. Palliative care is here to provide support along the journey, no matter what the outcome may be. Even if your child is in a neonatal or pediatric intensive care unit, or in an acute care setting, she can benefit from the pain control, symptom management, care coordination, or additional family support offered through our program. We care for children with both cancer and non-cancer diagnoses such as leukodystrophy, congenital heart disease, cerebral palsy and mitochondrial disease. We have found our care to be most beneficial when we begin the journey with the family at the time of diagnosis and continue with them for as long as they may need. Please note we reserve the right to remove any comments that don’t adhere to our policy of respectful interactions. We will delete comments that contain:
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