Cure GM1 Foundation

01/16/2026

It's time to get ready for Rare Disease Day by ordering your awareness gear in time for the big day next month. New designs are now available!

SHOP NOW: curegm1.org/gm1-store

01/15/2026

We’re committing $1.4 million toward enzyme replacement therapy (ERT) this year alone which is the largest investment in a single project that Cure GM1 has ever made.

READ MORE: https://conta.cc/4qpSZYV
PROJECT: curegm1.org/ert-project
GIVE: curegm1.org/donate

01/14/2026

Our unwavering commitment over time is necessary to make truly meaningful progress to advance research, drug development, awareness, and advocacy. Will you join us in our fight?

LEARN MORE: curegm1.org/ert-project

01/13/2026

This year, you can help change lives.

Every show of support brings us closer to hope, progress, and chances at life.

Learn more or support the ERT Project: curegm1.org/ert-project

01/12/2026

Will you make a plan for Rare Disease Month? Together, we can raise awareness, amplify rare voices, and show the world the incredible need for support for all those impacted by rare diseases.

MORE: curegm1.org/rare-disease-day

01/11/2026

"Losing a child is like losing a piece of your own soul. It changes you forever." -Anonymous

May sweet little Josias rest in peace and may his family find comfort at this heartbreaking time.

01/10/2026

A very happy belated birthday to Darian!

Read his story here: curegm1.org/darians-story

01/10/2026

A new initiative. Sign up for the newsletter to follow the rare disease news there.

CNBC Cures aims to raise awareness of rare diseases. Led by "Squawk Box" anchor Becky Quick, CNBC Cures was inspired by her family's own rare disease journey.

01/09/2026

The GM1 Census brings the global GM1 community together to share data that drives research, improves understanding of GM1, and attracts scientific and biotech interest.
SEE: curegm1.org/census

01/08/2026

Cure GM1 remains deeply committed to our mission and fight for life. Cure GM1 is a multi-faceted organization with a wealth of experience in a broad variety of domains, garnering public recognition, awards, and contributing to the scientific understanding of GM1 and to the literature for the disease.

JOIN US: curegm1.org/take-action

01/07/2026

Ongoing commitment and persistence are very much needed to make a meaningful difference for all those dying due to GM1. Please consider becoming a monthly donor. We have a new option below which offers no fees and a recurring giving.

MONTHLY NO COST OPTION: https://tinyurl.com/sevn3jjr