Cure GM1 Foundation

Cure GM1 Foundation The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 Gangliosidosis.

Awareness -> Funding -> Hope
Donate to Save Children: https://www.curegm1.org/donate
The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children.

The power of companionship goes beyond words.Highly trained service dogs can help children build confidence, increase in...
03/24/2026

The power of companionship goes beyond words.
Highly trained service dogs can help children build confidence, increase independence, and bring comfort during everyday challenges.
Read more: https://tinyurl.com/482hb6tw

With broken hearts, we remember sweet Batul, whose light touched this world far too briefly. Taken by infantile GM1, her...
03/23/2026

With broken hearts, we remember sweet Batul, whose light touched this world far too briefly. Taken by infantile GM1, her life was small in time but immeasurable in love.

“To lose a child is to lose a piece of your soul that can never be replaced—only carried with you in love, forever.”

Holding Batul’s family close in thought and prayer. May her memory be a gentle blessing and her spirit forever shine.

Happy National Puppy Day! Today, we’re remembering the special service dogs at our in-person annual conference last year...
03/23/2026

Happy National Puppy Day! Today, we’re remembering the special service dogs at our in-person annual conference last year. These amazing companions remind us of the power of connection, care, and unconditional love.

Early registration is now open for our virtual conference: curegm1.org/conference

Join a powerful community of families, researchers, and advocates coming together to share knowledge, support, and hope....
03/21/2026

Join a powerful community of families, researchers, and advocates coming together to share knowledge, support, and hope. Early registration helps you plan ahead and ensures you don’t miss out on this meaningful event.

👉 Register now: curegm1.org/conference

Today we celebrate a very special little boy who brings so much light, love, and strength into the world.  At just three...
03/20/2026

Today we celebrate a very special little boy who brings so much light, love, and strength into the world. At just three years old, you’ve already shown what courage truly looks like. You are deeply loved, fiercely cherished, and surrounded by people who are cheering you on every single day.

Keep shining, Dominic. The world is brighter because of you!

03/19/2026

Your support can help accelerate the research needed to bring this therapy to forward to a clinical trial. Every share, donation, and conversation raises awareness for GM1 families who urgently need treatment options.
Please join us in supporting this critically important work.
MORE: curegm1.org/ert-project

03/19/2026

Your support can help accelerate the research needed to bring this therapy to forward to a clinical trial. Every share, donation, and conversation raises awareness for GM1 families who urgently need treatment options.

Please join us in supporting this critically important work.

MORE: curegm1.org/ert-project
GIVE: curegm1.org/donate

When a child is diagnosed with conditions like cerebral palsy, developmental delay, or even just requires speech therapy...
03/18/2026

When a child is diagnosed with conditions like cerebral palsy, developmental delay, or even just requires speech therapy, it’s easy to focus only on immediate support and services. Genetic testing could provide important answers. Those answers matter deeply.

LEARN: curegm1.org/gm1-gangliosidosis-symptoms

This St. Patrick’s Day, we’re sending a little extra luck to those living with rare diseases. “Where there is hope, ther...
03/17/2026

This St. Patrick’s Day, we’re sending a little extra luck to those living with rare diseases.

“Where there is hope, there is life.” — Anne Frank

May today bring strength, resilience, and moments of light to every rare warrior and their loved ones.

Learn more about the current status of AAV gene therapy as a potential treatment for GM1 gangliosidosis.  READ: curegm1....
03/16/2026

Learn more about the current status of AAV gene therapy as a potential treatment for GM1 gangliosidosis.

READ: curegm1.org/aav-gene-therapy-for-gm1

From research updates and advocacy stories to practical guidance for families, our blogs are intended to empower and eng...
03/15/2026

From research updates and advocacy stories to practical guidance for families, our blogs are intended to empower and engage.

Together, informed voices strengthen the movement towards possible treatments.

🔗 Explore and start reading: https://curegm1.org/category/blogs/

We invite you to become part of Friends of Cure GM1 Group, a community dedicated to raising awareness, supporting famili...
03/14/2026

We invite you to become part of Friends of Cure GM1 Group, a community dedicated to raising awareness, supporting families, and accelerating research for a cure for GM1 gangliosidosis. Stay connected and engage with others who care deeply about our critically important cause.

JOIN on FB: facebook.com/groups/1484265111658631

Address

PO Box 6890
Albany, CA
94706

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