Cure GM1 Foundation

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Cure GM1 Foundation

The Cure GM1 Foundation is dedicated to directly funding research for a cure for GM1 Gangliosidosis.

Awareness -> Funding -> Hope
Donate to Save Children: https://www.curegm1.org/donate
The only 501(c)(3) entirely dedicated to GM1, Founded by families impacted by GM1 gangliosidosis, a fatal disease that primarily impacts children.

04/13/2026

“After the dreaded diagnosis was given, it felt very lonely as there were no other families with GM1 in the UK, and knowledge was limited. All we were really told was that he would not live into his teens.” -Reece’s Mom

READ MORE: curegm1.org/reeces-story-2

04/12/2026

🎉 Turn your special day into something life-changing 💙
✨ It’s simple. Create a fundraiser. Share your story. Invite friends and family to give
Every dollar brings us closer to a therapy that could change lives.

04/11/2026

Hope is real, but it needs fuel. Research like this depends on people like us showing up, spreading the word, and supporting the mission.
Learn more and contribute: curegm1.org/ert-project

04/10/2026

Today we recognize the siblings of children living with GM1.
They grow up navigating complexity while showing resilience, empathy, and strength beyond their years, often in the background.
Your experience matters. Your voice matters. We see you.

04/09/2026

For families facing this diagnosis, the journey can feel overwhelming and isolating. Understanding is the first step toward hope, advocacy, and change.
This quick, easy to read guide explains it in simple, human terms with clarity and support.
https://tinyurl.com/2uasst83

04/08/2026

GM1 gangliosidosis is a rare genetic disorder that is typically inherited in an autosomal recessive pattern. This means a child must receive one affected gene from each parent to develop the condition.
MORE: curegm1.org/about-gm1

04/07/2026

The April 2026 Cure GM1 Catalyst is out. Don't miss important highlights and progress in research, advocacy, and community efforts to advance treatments.

Engage, be informed, and share:
https://tinyurl.com/54navx8b

04/06/2026

Progress shouldn’t be paused because of a lack of resources. Every breakthrough, every step forward, depends on support from people who believe this matters. Help make a difference today.
GIVE: curegm1.org/donate

04/05/2026

Today we celebrate hope, renewal, and the strength that binds us together. To every family, advocate, researcher, and supporter in the Cure GM1 community. Your resilience and love inspire us every single day.
May Easter bring you peace, joy, and renewed hope for brighter days ahead.

04/03/2026

When you're caring for a child with GM1, you need more than hope, you need a plan.
This blog breaks down a simple but powerful roadmap: Care. Protect. Grow.
A must-read for families navigating rare disease.
👉 https://tinyurl.com/4xw59p2m

04/02/2026

Wishing you a joyful and meaningful Passover.

May this season of freedom bring renewal, hope, and togetherness to your home. May the world find a path towards peace.

04/01/2026

This first-in-human Phase I study (NCT07479953) explores in utero delivery of AAV9 gene therapy, aiming to treat this devastating disease before birth—a bold step toward preventing neurological damage before it begins.

Grateful to the researchers, clinicians, families, and advocates driving this forward. The future of prenatal medicine is being written right now.

🔗 https://clinicaltrials.gov/study/NCT07479953

Address

PO Box 6890
Albany, CA
94706

Telephone

+15103062460

Website

http://www.curegm1.org/

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