06/03/2025
SUDEP Action is 30 years old this year.
The charity wasn’t started by doctors, researchers, clinicians, or medical professionals. It was started by five bereaved women wanting answers. Five women who wanted to know why their sons, daughters and partners – who were young and healthy, but lived with epilepsy – had died suddenly, unexpectedly and without explanation.
SUDEP Action, formerly known as Epilepsy Bereaved, began thirty years ago as a movement of grieving people who knew what they were being told wasn’t right and wanted to change things for the better.
That’s still our goal. We’ve come a long way since 1995 but there’s still a long way to go.
Read more: www.sudep.org/sudep-action-at-30/
