Hole In The Heart

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United States
Albuquerque, NM
Hole In The Heart

Promoting awareness of holes in the heart & Congenital Heart Defects.

Hole in the Heart was formed to promote awareness of holes in the heart and congenital heart defects (CHDs), to create partnerships between providers and experts to increase detection of CHDs earlier in life, and to advocate best practices for the detection and diagnosis of CHDs.

01/15/2026

✨ Big News! ✨

Hole In The Heart has been chosen as a Buffalo Exchange (Albuquerque) Tokens for Bags nonprofit partner! 👜❤️

We’re thrilled to be teaming up with Buffalo Exchange (Albuquerque)—shopping with purpose, promoting awareness of congenital heart defects, and doing it all while looking super chic. ✨👗

When you shop, be sure to drop your token into Hole In The Heart's collection box to help make a real impact for New Mexico families affected by Congenital Heart Defects (CHDs).

Thank you, Buffalo Exchange (Albuquerque), for supporting our mission and proving that fashion can fuel change. Let’s make 2026 stylish and meaningful! 🫶

👉 Visit: Ways to Help Hole in the Heart
https://holeintheheartasd.org/ways-to-help/

01/13/2026

We’re proud to share that Kelsey Leibenhaut, MSN, RN, CNEn, member of the Hole In The Heart Healthcare Advisory Board and a dedicated CHD (Congenital Heart Defect) parent advocate, attended the 2026 Disability Rights Awareness Days (DRAD) pre-legislative-session forum held on Saturday, January 10.

Kelsey brings both clinical expertise and lived experience to the table, helping elevate the voices of families affected by congenital heart defects and advancing policies that support disability rights, access, and inclusive care across the lifespan. Her advocacy reflects our commitment to showing up, listening, and leading with purpose as we work toward meaningful systems change in New Mexico.

Thank you, Kelsey, for representing Hole In The Heart, our CHD community and standing up for heart families and disability rights. 💙❤️

01/07/2026

The road ahead isn’t always easy, but meaningful progress takes patience, persistence, and purpose. At Hole In The Heart, we remain committed to our mission: raising awareness of congenital heart defects (CHD), advocating for timely detection, and building partnerships that improve care for families.

Our Goals This Year:
💛 Watch Their Hearts Initiative — Launching our flagship awareness campaign focused on timely detection, screening, and education for families and providers.
💛 CHD Parent Education During CHD Awareness Week (February 7-14) — Providing reliable education and resources to help families confidently advocate for their child.
💛 Strong Partnerships — Collaborating with healthcare systems, community leaders, and advocates to expand the reach of Hole In The Heart.
💛 Speaking & Education — Participating in family and healthcare conferences to elevate CHD education and advocate for best practices.

The journey may be long—but every step forward brings us closer to better outcomes for every heart. 💛 Join us.

www.HoleInTheHeartASD.org

12/31/2025

As the year draws to a close, we don’t want to leave anything unsaid 💛

Thank you for every conversation, every answered email, and every person who took the time to support and strengthen our mission.
Thank you for the small, quiet victories and the meaningful mission breakthroughs.
Thank you for every act of kindness—especially from those who came to our table with understanding, respect, guidance, and inspiration.

All of this made this year feel lighter, especially on the days we wanted to quit.

We hope the coming year brings success, joy, and unexpected wins—for all of us. 🎉

With gratitude and love,
Hole In The Heart ❤️

12/30/2025

We know congenital heart defects are common.
What we don’t always have is the full picture.

The CDC notes that the U.S. struggles to collect complete, up-to-date data on CHDs. While nearly 1 in 100 babies are born with a congenital heart defect, there is limited information on which CHDs, where gaps in care exist, and how families are impacted long term.

In New Mexico, this missing data matters.
You can’t fix what you can’t fully see.

That’s why our work focuses on awareness, education, and timely detection—so fewer children and families fall through the cracks, and lived experience helps inform systems that data alone can’t.

CHD awareness isn’t just about numbers.
It’s about visibility, access, and accountability.

JOIN US: HoleInTheHeartASD@yahoo.com

12/23/2025

🎄Congenital heart defects are the most common birth defect, yet their impact is still widely overlooked. At Hole In The Heart, we advocate every day to raise awareness, educate communities, and promote timely detection—because recognizing CHDs sooner can change and save lives. ❤️

This season, help us shine a light on how common CHDs truly are and why watching their hearts matters. ✨

12/19/2025

Happy Holidays from all of us at Hole In The Heart💛

This season, we’re celebrating hope, strength, and community—and wishing every family health, warmth, and peace. May your days be filled with joy, connection, and healthy hearts.

Thank you for standing with us and for being part of our CHD (Congenital Heart Defect) community. Your support continues to make a meaningful difference. ✨

12/17/2025

The Giving Season Isn’t Over Yet—Two Simple Ways to Make an Impact ❤️

Supporting Hole In The Heart doesn’t have to be complicated—and it starts right where you are.

✨ Follow, Like & Share
When you follow us and engage with our posts, you help spread awareness of congenital heart defects (CHDs) and amplify our message. Every like, comment, and share helps us reach more families and builds momentum for our 2026 programs and initiatives.

🛒 Shop to Watch Their Hearts
Your everyday grocery shopping can make a difference. By linking your Smith’s Rewards Card to Hole in the Heart, a portion of what you already spend goes directly toward supporting CHD awareness and education—at no extra cost to you.

💙 Small actions create meaningful change for families living with congenital heart defects.

📱 Follow & Connect:
Facebook: https://www.facebook.com/holeintheheartasd/
Instagram: https://www.instagram.com/holeintheheartasd/
TikTok: https://www.tiktok.com/
LinkedIn: https://www.linkedin.com/company/90438175/

🛍️ Shop to Watch Their Hearts:
https://www.holeintheheartasd.org/shop-to-watch-their-hearts/
Link your Smith’s Rewards Card here:
https://www.smithsfoodanddrug.com/i/community/smiths-inspiring-donations
(Search “Hole in the Heart” or use nonprofit ID JJ574)

12/12/2025

📣 Calling Parents in Northwest New Mexico

Hole In The Heart is seeking parents in the Northwest region of New Mexico who are open to sharing their experiences seeking out-of-state healthcare for their child(ren). Your insight is incredibly valuable.

We are partnering with Parents Reaching Out to create a comprehensive parent resource that will support families navigating the challenges of traveling out of state for specialized medical care. Your story can help other families feel prepared, supported, and empowered. ❤️

If you’re interested in participating or want more information, please email us or send a DM.

Together, we can make the journey easier for New Mexico families. 💙🏥

12/11/2025

❤️ Exciting Partnership Announcement! ❤️

Hole In The Heart is proud to partner with the New Mexico Alliance of Health Councils! Their mission to strengthen community health through local collaboration, advocacy, and improved access to care aligns deeply with our commitment to building strong partnerships across New Mexico’s healthcare community.

Together, we share a vision of empowering families, providers, and community leaders with the knowledge needed to support timely detection and awareness of congenital heart defects (CHD).

This partnership reflects our ongoing dedication to working hand-in-hand with health advocates statewide — and we are truly thankful for the continued growth that allows us to reach more New Mexico families.

💙 Together, we’re working to Watch Their Hearts.

12/09/2025

🎄 This holiday season, give the gift of awareness.
Congenital heart defects (CHD) affect 1 in 100 births, and many aren’t visible at birth. Some babies even pass newborn screenings but still have an undiagnosed CHD.

❤️ Talk about family heart history.
❤️ Encourage expecting parents to ask for a fetal heart screening, whether their newborn passed the heart disease screening after birth, and to understand the importance of timely detection.

Awareness today can save a heart tomorrow.

www.HoleInTheHeartASD.org

Learn More:
• CDC – CHD Overview: https://www.cdc.gov/ncbddd/heartdefects
• CDC – CCHD Screening: https://www.cdc.gov/ncbddd/heartdefects/cchd-facts.html

12/01/2025

A huge thank you to Jazzercise Albuquerque University Area - Del Sol for rallying behind Shop To Watch Their Hearts during the month of November and encouraging members to link their Smith’s Rewards Cards to Hole In The Heart! ❤️ Every time you shop, a portion of your purchase goes directly to our Watch Their Hearts Initiative, which helps expecting and newborn parents recognize the warning signs of a possible missed congenital heart defect by promoting timely detection and awareness.

Our Shop To Watch Their Hearts campaign takes the place of Giving Tuesday this year — and the best part? It’s ongoing, and it’s not too late to link your card! 🛒❤️ www.holeintheheartasd.org/shop-to-watch-their-hearts/

You can support New Mexico families in 4 easy steps and make every grocery trip count. Thank you, Jazzercise Albuquerque University Area - Del Sol, for helping us build healthier futures, one heart at a time! 💛🫶

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Albuquerque, NM

Website

https://HoleInTheHeartASD.org/

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