05/20/2020
A great perspective of how many parents with special needs children have been feeling! I’m so thankful to have been able to continue to provide OT services via telehealth.
When all of his services ended in March, seemingly overnight, I said out loud...we are going to lose him.
When we were offered telehealth appointments, I said what’s the point. They will never work.
When in-home therapy was mentioned I felt like covering my ears and stomping my feet and screaming about how hard I worked to get my son into a center and to find him the right services and that in-home would never work.
I was scared. Actually that’s an understatement. I was scared to death of losing everything my son had worked so hard to achieve.
I also felt like he was forgotten. Like him, and all the kids like him were just left in the wind when the world shut down.
But, most of that was on me. It was built up worry. And built up fear. All from fighting for so long.
See, special needs parents live in this upside down, inside out world where we are always fighting for equal and fair and for our kids to be seen and heard and valued.
So I think...a lot of that was on me. I was mad and with each regression Cooper had, I got more and more frustrated.
But, and if I know anything I know there is always a but, Cooper started thriving in other areas. Because our family dug in like we always do. We rallied. We focused our efforts and refused to give up.
We started in-home therapy last week and it’s going fantastic. We are doing telehealth occupational therapy and it’s adorable and we laugh and high five and do virtual fist bumps.
I guess I’m saying I have baggage. Emotional, deep, baggage. But it comes from a good place. There’s that ‘but’ again.
I just worry. But today I put that aside and just focused on the resilience of this kid and how proud I am of him.
And I want to say thank you to each and every person who works with (the cool) kids like mine. Thank you. ❤️