Seizure Tracker

12/24/2025

As the year comes to a close, we’re reflecting on the strength and compassion that define this community. Whether you track daily, care for a loved one, support patients, or contribute to research and innovation, your efforts make a difference.

Thank you for showing up for each other in big and small ways.
Wishing you and your loved ones a peaceful, safe, and hopeful holiday season.

💜 With gratitude,
The Seizure Tracker Team

12/22/2025

A publication in Epilepsy Research analyzed data from 30,813 Seizure Tracker users, reporting on seven SUDEP risk factors and confirming a significantly elevated rate of GTC seizures in this cohort, the strongest evidence-based SUDEP risk marker.

This demonstrates the value of patient-reported data in supporting large-scale research and improving SUDEP risk evaluation efforts.

Study link: https://bit.ly/3KJuoPu

12/18/2025

Did you know that 80% of people with epilepsy have at least one identifiable seizure cycle?

Seizure Tracker’s reporting tools, including the “Time of Day” chart and daily seizure count graphs, can help you recognize patterns in your seizure timing, such as 24-hour rhythms or weekly cycles.

These patterns may help you and your doctor explore chronotherapy, an approach that times medication doses to when seizures are most likely to occur.

Learn more about identifying seizure cycles and how tracking can support more informed treatment decisions: https://bit.ly/47lCpS5

12/17/2025

“It’s nice to create reports that show long-term changes.”
— Michael W.

For Michael, tracking seizures over time helps reveal long-term patterns, making it easier to understand what’s changing, what’s working, and what to share with his care team.

Your story could empower someone else.
Share how tracking helps you and join the conversation:
👉 https://bit.ly/4ou1P7A

12/16/2025

Do you track ketone or glucose levels as part of your diet therapy plan?

The Keto-Mojo + Seizure Tracker integration lets you automatically send ketone and glucose readings from your Keto-Mojo meter directly into your Seizure Tracker account.

This makes it easier to:
• Consolidate ketone and glucose data in one place
• Compare diet therapy trends to seizure activity
• Share accurate information with your care team
• Monitor your Glucose Ketone Index (GKI) via the Keto-Mojo app

Real-time data can help support more informed decisions about diet therapy and seizure management.

Learn more: https://bit.ly/4rOUKAx

12/15/2025

Do you struggle with insurance coverage for your seizure medicine? Did you know that all states (USA) have some form of insurance department or commission? These state based agencies can help you dispute insurance company denials. Here is a success story of a family struggling to get specialized medicine that was helping reduce their son's seizures.

A little-known provision in the Affordable Care Act allows patients to ask state-run panels to review decisions made by health insurance providers.

12/11/2025

A new study using Seizure Tracker data shows that people living with both epileptic seizures (ES) and functional seizures (FS) have unique needs that aren’t fully captured in current quality-of-life tools.

People with ES + FS rated 38 different life areas as “critically important,” nearly three times more than people with epilepsy alone. These included:

💜 mental health and suicidal thoughts
💜 challenges with hospital or ER visits
💜 daily functioning, energy, and memory
💜 medication side effects

This research highlights why it is important to listen to people’s lived experiences and develop care tools that reflect what truly affects quality of life.

Read more about the study here: https://bit.ly/3KmMDuc

12/10/2025

Seizure Tracker’s Diary Tools give you a complete way to record and understand your seizure activity.

Log detailed seizure events, including timing, length, type, triggers, descriptions, post-event symptoms, mood, location, and optional video.
Plus, track medications, rescue meds, VNS magnet swipes, menstrual cycles, diet therapy, blood levels, daily variables, and more.

All entries sync into clear reports, timelines, and graphs you can share with your care team, helping everyone see the full picture.

Explore the full set of diary tools: https://bit.ly/4q1jjbt

12/07/2025

We’re thrilled to be attending the American Epilepsy Society Annual Meeting! If you’re at AES, we’d love for you to stop by Booth #338 to visit us.

Meet the Seizure Tracker team, learn what we’ve been working on, and see how our tools support patients, caregivers, clinicians, and researchers across the epilepsy community.

We’re looking forward to connecting with you and celebrating the incredible work happening across the field. Event info: https://bit.ly/49ZejNt

12/04/2025

It’s Infantile Spasms Awareness Week (Dec 1–7).

Infantile spasms affect 1 in 2,000 children and can look like quick head drops, body crunches, or subtle jerks, signs that are easy to miss but require immediate medical attention.

If you ever notice unusual repetitive movements, recording what you see can help your doctor act faster.

The Seizure Tracker app allows families to capture videos, log events, and share accurate details with their care team, supporting quicker recognition and better-informed evaluation.

Learn more about the signs: https://www.youtube.com/watch?v=kRt8muFfUQo&t=11s

Learn how to track: seizuretracker.com

Infantile Spasms (IS) are a medical emergency. Infantile Spasms are a rare, but serious type of seizure, occurring in 1 in 2,000 children, which can cause ca...

12/03/2025

Epilepsy looks different for everyone: children, adults, people with IDD, device users, those on diet therapy, and more.

That’s why Seizure Tracker works with researchers to study how seizures impact each group differently.

Better understanding = better outcomes.

Learn more: https://bit.ly/4rQuIwT

12/02/2025

Seizure Tracker allows you to document alert behaviors from seizure-alert dogs and seizure-detection devices, all in the same place you record seizure activity.

Whether it’s a trained dog, a smartwatch alert, a wearable device, or a caregiver’s observations, these early warnings can be logged and synced with your seizure data. This gives you and your care team a clearer understanding of what happens before, during, and after a seizure.

Tracking alerts helps you identify patterns, evaluate device performance, and improve safety planning.

Learn more: https://bit.ly/44oWd6D