07/25/2024
I love what I am doing now, with Windchime Wishes Limited and John-boy's Place, but I do miss this time of year on campus at USA, with excited new students rolling through for orientation and campus events welcoming all back from the summer!!
BUT, what I am doing now is more than just a hobby or a business, and although there are many times that I feel as though I am in this all alone, I know that in spirit, I am joined by so many like-minded individuals and groups. Thank you to all who continue to support this mission of mine.
I've just recently learned that one of my pALS who stayed at the house last fall has passed away in Florida, and she was a super sweet lady who was SO happy to spend time there with her two sons, making those memories. They had actually planned a surprise return trip for her in about 6 weeks, but as ALS does, it called the shots and didn't let that happen. It hurts me to my core that ANYONE has to lose their life to this monster, but it is equally hard when I have a connection to a patient or family. My prayers are with Cheryl Teribury's sons and family at this difficult time. I feel their pain and loss deeply.
Please find a way to donate to ALS research and/or organizations that help those living with ALS... ALS TDI, I AM ALS, Team Gleason, Jerameys Journey MS / ALS Crazy Neurological Stuff, Team Drea Foundation, Racing for ALS, ALS Uncensored, Her ALS Story, and so many more.