03/16/2026
Life has been a little busy so I apologize for no updates. Jensen has enjoyed some days at home working on his cars and all. Since finishing his last dose of methotroxate, he has started physical therapy (we love it so far!) and was referred to be fitted for braces on his legs. His physical therapist asked that we postpone his fitting because our insurance would likely not cover his braces and she may be able to use a different type of brace that she can include as part of his PT. We had an appointment at children’s this past week to see if he needed any transfusions and thankfully he did not! 🙌🏻 We return in the morning to try and begin his next phase. As long as he meets counts, he will be admitted and be put under for a spinal tap. He will receive chemo in his spinal fluid and spend the week on the new Blina therapy. If he doesn’t meet counts, we will try again on Friday. After he is admitted, They will monitor him for any reactions to the Blina. They say that fever is likely to occur and they will complete a full septic work up as usual just in case. As long as he does well this week, we will attempt to bring him home with the “Blina Backpack.” This is the alternative to staying hospitalized for 28 days straight. He will go home with a pump in a little backpack that will administer his blina 24 hours a day, 7 days a week. His port will stay accessed the entire time and If he accidentally disconnects his line, we will have to spend somewhere around 12 hours at children’s and he could possibly have days added on to his therapy. We are going to try our best and pray that never happens. We will return to children’s every Tuesday and Friday to change his needle an swap out his blina bag. We will also have physical therapy every Wednesday in between. Since we will have a little more of a consistent schedule an the doctors say Jensen will be more himself during Blina, we are also going to attempt to return to speech therapy. Jensen & Mom’s days are about to stay jam packed and busy! 😮💨 we are so thankful for and love our prayer warriors. Please continue your praying. 🙏🏻
🧡 pray for safe travels tomorrow
🧡 pray Jensen meets counts and can proceed with his treatments.
🧡 pray for clear spinal fluid/ no cancer cells
🧡 pray for no reactions to the Blina therapy
🧡 pray we all adjust to our new busy schedule. Vast difference from either being home all day or at children’s all day!
🧡 pray these next 28 days go smoothly with no accidental disconnects.
🧡 pray for positive progress in both physical and mental health speech therapy.