Maryland Down Syndrome Advocacy Coalition - MDAC

Maryland Down Syndrome Advocacy Coalition - MDAC Founded in 2007, MDAC is a coalition of MD self-advocates, family members, other allies, and Ds orgs

ABOUT US...

The Maryland Down Syndrome Advocacy Coalition (MDAC), founded in 2007 and reenvisioned in 2021, is a collaboration of self-advocates, family members, other allies, and Down syndrome organizations from across the State of Maryland that is committed to ensuring that people with Down syndrome have the opportunity, encouragement, and support required to lead a self-determined life. MISSION...

The Maryland Down syndrome Advocacy Coalition advocates for laws, regulations, and policies that improve the quality of life for people with Down syndrome, as well as the family members and professionals who support them. VISION...

Each person with Down syndrome in Maryland has access to the same rights, privileges, and opportunities available to other Maryland residents. GUIDING PRINCIPLES...

-Our Guiding Principles

-Disability rights are human rights.

-Diversity, equity, and inclusion for all people with Down syndrome and other intellectual disabilities and their families guide MDAC’s work.

-People with Down syndrome and other intellectual disabilities are able to make informed choices about all aspects of their lives.

-Students with Down syndrome and other intellectual disabilities are lifelong learners, and should have access to high quality public education throughout elementary and secondary school and postsecondary education.

-People with Down syndrome and their families need access to high quality, affordable child care and early intervention services.

-People with Down syndrome and other intellectual disabilities can be successful in competitive integrated employment when given appropriate supports and opportunities.

-Adults with Down syndrome and other intellectual disabilities should control where and with whom they live, have the freedom to choose their daily routines and other activities, and have opportunities to rent or buy their own homes.

-Home and community-based services (HCBS) and long term services and supports should be readily available, easily accessible, fully funded, flexible, and implemented as soon as the need arises.

-People with Down syndrome need equitable, high quality, and affordable physical and mental health care.

-All forms of transportation, including public transportation, provide a critical means for people with disabilities to access employment, education, health care and community life.

-People with Down syndrome are able to participate in all aspects of civic life, including accessible voting, contributing to legislative advocacy, and communicating their views publicly.

12/02/2025

Tell Me More Tuesday (TMMT): Celebrating 50 Years of IDEA

November 29 marked the 50th anniversary of the Individuals with Disabilities Education Act (IDEA)—the landmark law that guarantees students with disabilities the right to a free, appropriate public education.
In the latest episode of AUCD’s Disability Policy for All, Stephanie Smith Lee, NDSC’s Co-Director of Policy & Advocacy and former OSEP Director at the U.S. Department of Education, joins AUCD Senior Advocacy Specialist Liz Weintraub for an important conversation.

They discuss what’s happening inside the Department of Education right now, what potential changes could mean for students with disabilities, and why IDEA’s 50th anniversary matters more than ever. Stephanie breaks down the roles of OSERS, OCR, and the Department in protecting students’ rights—and highlights what Congress and the administration must do to keep IDEA’s promises alive for the next 50 years.

Students with disabilities deserve the opportunity to learn, thrive, and reach their full potential - just like everyone else.

Watch the full conversation here: https://youtu.be/xIek7vdWuvw?si=ILs5dlUsCNwByGAA

12/02/2025

Today marks the 50th anniversary of the Individuals with Disabilities Education Act (IDEA)! MSDE is proud to support Maryland’s educators, students, and families as we continue working together to build inclusive and supportive learning environments for every learner. This , we celebrate the progress we’ve made and the work that remains to ensure every learner thrives.

11/19/2025

ACTION ALERT!🚨

11/19/2025
This Saturday is a FREE IEP CLINIC with Special Education Attorney Allie Rosenblatt. It is virtual - completely accessib...
11/06/2025

This Saturday is a FREE IEP CLINIC with Special Education Attorney Allie Rosenblatt. It is virtual - completely accessible as long as one has access to the Internet.

RSVP TODAY by 12 noon - if we do not have at least 6 sign-ups, we will cancel out of respect for Attorney Rosenblatt's time: https://secure.qgiv.com/for/downsyndromeassocmaryland/event/iepclinic/

https://www.facebook.com/events/1421956579007962/?active_tab=discussion

IEP Clinic Join us for a personalized IEP (Individualized Education Program) Clinic designed to support families and caregivers navigating the special education process. During this small group session, you'll have the opportunity to meet with experienced professionals who can review your child’s ...

11/05/2025

Please view my statement on today’s SNAP benefits update.

11/02/2025

National Down Syndrome Congress, together with other national organizations, invites you to join a Virtual Town Hall on Tuesday, November 4, 2025, at 4:00 PM ET.

Recent actions at the U.S. Department of Education threaten the Individuals with Disabilities Education Act (IDEA) and the rights of over 8 million children with disabilities.

This urgent conversation will bring together parents, educators, and advocates to stand up for students with disabilities and to protect IDEA — the cornerstone law ensuring every child has the right to a free appropriate public education.

💬 Learn what’s happening now and what you can do
🤝 Connect with others who care.
📣 Take action to protect children with disabilities and the law that protects them.
🔗 Register now (space is limited):
https://us02web.zoom.us/webinar/register/WN_ROjpXDrPS76Hm2y3udCXbg #/registration

Co-Hosted by COPAA, Center for Learner Equity, The Arc, Council for Exceptional Children, National Center for Learning Disabilities, National Down Syndrome Congress

09/29/2025

A group of Medicaid recipients has sued the Maryland Department of Health for a "dysfunctional" system of determining eligibility for services that they say has denied services to those with intellectual and developmental disabilities.

You're invited! Attend a workgroup meeting to learn all about what MDAC is currently working on as well as our goals for...
09/27/2025

You're invited! Attend a workgroup meeting to learn all about what MDAC is currently working on as well as our goals for the future. All advocates and self-advocates are welcome!

> Adult Policy Workgroup: 1st Tuesday of the month at 1 p.m. (EST)
> K-12 Education Workgroup: 4th Monday of the month at 12 p.m. (EST)
> Birth-5 Workgroup: 4th Tuesday of the month at 7 p.m. (EST)

*Email MarylandDSAdvocacyCoalition@gmail.com to request a meeting link(s).*

It’s back to school season!
09/09/2025

It’s back to school season!

As students head back to school, we’re sharing resources to strengthen inclusive education.

These briefs were co-authored by NDSC Senior Education Policy Advisor, Ricki Sabia, in collaboration with the TIES Center at the University of Minnesota’s Institute on Community Integration. TIES develops evidence-based tools and partners with states, districts, and schools to help ensure students with disabilities, especially those with significant cognitive disabilities—are fully included in general education and community life.

Practical guidance for building stronger, more inclusive school communities for students with Down syndrome and all learners:
🔵 10 Reasons to Support Inclusive School Communities for ALL Students: https://ndsccenter.org/file_download/inline/ee844103-206e-4927-83c4-0b26a94bc4e1
🟡 Taking the Alternate Assessment Does NOT Mean Education in a Separate Setting!: https://ndsccenter.org/file_download/inline/7696be13-6660-4a5d-b6c0-e36b95ce57b2
🔵 Developing IEPs that Support Inclusive Education for Students with the Most Significant Cognitive Disabilities: https://ndsccenter.org/file_download/inline/c94481a6-0311-4f1d-8154-4e3f4f16a115

Explore more resources: https://ndsccenter.org/file_download/inline/717ebd38-15e7-4f39-8a4f-02ce92c48d36

As we reflect on the year gone by and take a collective deep breath in preparation for the year ahead, we want to thank ...
09/04/2025

As we reflect on the year gone by and take a collective deep breath in preparation for the year ahead, we want to thank you each and every one of you for being a part of MDAC - for responding to our calls for action, for showing up, for reading, learning, and sharing what’s happening with others, and for sharing your stories with us and with policymakers.

Our collective voice is unwavering and only growing stronger. We appreciate the opportunity to advocate alongside you.

We're pleased to share with you MDAC's 2025 Annual Update:
https://drive.google.com/file/d/17_fRYN-x92Ol3Z_1Ks3l-ySGseGQrgQH/view?usp=sharing

🎉 Advocacy WIN – but our work isn’t done yet!On July 31, the Senate Committee passed a bipartisan FY 2026 Labor-HHS-Educ...
08/02/2025

🎉 Advocacy WIN – but our work isn’t done yet!

On July 31, the Senate Committee passed a bipartisan FY 2026 Labor-HHS-Education funding bill (26–3), a major victory for students with disabilities and IDEA funding.
Thanks to NDSC and advocates nationwide, the committee report:
🔵 Protects IDEA funds from being block granted or eliminated, as proposed by the White House.
🟡 Keeps IDEA implementation within the Dept. of Education, not shifted to HHS.
🔵 Ensures funding is distributed as intended and avoids staffing cuts that could delay services.

A special shout-out to NDSC Policy & Advocacy Co-Director Stephanie Smith Lee, who led a bipartisan letter from former Dept of Education officials urging Congress to safeguard special education and to every advocate who contacted their Members of Congress to share their stories. Your advocacy made a difference!

Read the letter from former Dept of Education officials here: https://ndsccenter.org/file_download/inline/2225fa54-45a5-4f33-a538-ef4c36391648

But we can’t stop now! The full Senate still needs to vote, and the House must draft its bill. It’s possible the administration could try to rescind (stop appropriated funds from being spent) IDEA funds later.

📢 Take action today: https://bit.ly/NDSCActionAlerts
📖 Read more: https://www.k12dive.com/news/senate-appropriations-rejects-k-12-grant-consolidations-in-fy-26-bill/756504/?utm_source=Sailthru&utm_medium=email&utm_campaign=Issue:%202025-08-01%20K-12%20Dive%20%5Bissue:75511%5D&utm_term=K-12%20Dive

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Annapolis, MD

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