Adrenal Insufficiency United

Adrenal Insufficiency United We are a group of concerned family members who are striving to bring everyone of any age or disorder

Anyone and everyone affected by Adrenal Insufficiency is welcome in this group. We will work to compile resources from all organizations working with those with Adrenal Insufficiency and make them available to all. Only by working together will we be able to make the policy changes needed to treat Adrenal Insufficiency properly in the field. Preventing further complications and death from Adrenal Crisis is our mission. Adrenal Insufficiency United is here to help educate and create awareness for Adrenal Insufficiency.....it's not a support page in the sense that we pose questions and talk back and forth like our support group. DISCLAIMER: Adrenal Insufficiency United is an organization of concerned family members, friends and affected adults. We are not a medical organization, and information contained in this website or on our pages is only intended to provide resources for those affected with Adrenal Insufficiency. No information on our website or pages is to be taken as medical advice. Please consult with your physician before making any changes to your medical regimes. Links to other websites, doctors, and resources are done as a service to those seeking additional information and support. We do not endorse or recommend any specific organizations or doctors and are simply listing then as resources for individuals to research on their own. AIU is not responsible for the content of other publications or websites reached from our links.

Yr 4 of EMS World week didn't disappoint! 🚑💉 "WINNING THE RACE TO SPECIALIZED EMERGENCY CARE!" ~World Trauma Symposi...
11/06/2025

Yr 4 of EMS World week didn't disappoint!
🚑💉 "WINNING THE RACE TO SPECIALIZED EMERGENCY CARE!"
~World Trauma Symposium - Tuesday
~ National Association of Emergency Medical Technicians 50th Anniversary Awards
~ 3 Days Exhibiting
~ 3 first time, accredited "Learning Sessions":
Specialized Emergency Care - The Basics & Bleeding Disorders
Mobile Integrated Health Resources (emphasis on Specialty Pharmacies)
~ Approx 1000 personnel educated
~ A kick-butt photo wall was a hit!

THANK YOU Sanofi US, , , Adrenal Insufficiency United and Dr. Brian Froelke for all the support!

Because Everyone Is a Patient Sometimes Whether it’s a loved one’s prescription or your own first diagnosis, we all find...
11/01/2025

Because Everyone Is a Patient Sometimes

Whether it’s a loved one’s prescription or your own first diagnosis, we all find ourselves navigating the healthcare system sooner or later.

The Healthcare Navigation Project believes knowledge should come before the crisis, not after.

That’s why we’re hosting Let’s Talk Pharmacy!, a live virtual event created for anyone who wants to better understand how to communicate with pharmacists, use available support programs, and take charge of their own care.

Join us on Wednesday, November 12th, 2025 for a conversation led by:
Lauren Kopsick, Founder, The Healthcare Navigation Project
Kerri Engebrecht, Executive Director, Adrenal Insufficiency United
Briana O’Dwyer, Director of Practice Services, MedicoCX
You will leave with actionable new skills!

🕛 Choose your session: 12–1 PM or 7–8 PM EST
💻 Register here: https://donorbox.org/events/833798
✅ Build self-advocacy skills before you need them
✅ Learn what pharmacists can really do to support you
✅ Discover resources that make medications more accessible
💗 Your donation helps us bring these programs to schools, prisons, social workers, employees, school-based health centers, chronic and rare disease patients, caregivers and others...places where healthcare literacy can change lives.

Together, we can make learning healthcare navigation as common as learning first aid.

**This is a live Zoom Event. A link will be sent to your email the morning of the event, November 12th, 2025...looking forward to meeting you! Use the QR code below to register!

Here is a way to make your voice heard. We have over 500 responses in less than two weeks!!Results from this 9 question ...
10/31/2025

Here is a way to make your voice heard. We have over 500 responses in less than two weeks!!

Results from this 9 question multiple choice needs assessment (optional 5 short-answer questions too!) will be shared with our board and Medical Advisory Board to help determine steps forward for .

Adrenal Insufficiency United is also using results from this to help with funding requests for our April Summit on Adrenal Insufficiency in Minneapolis and 2026 programming & overall focus.

We want to know your experience, your needs.

Please take a few minutes to fill this out (and share where appropriate and with permission from group admin).

link - https://bit.ly/4n2ZI90

A huge thank you to this team that was at EMS World in Indianapolis last week. At the last minute, Kerri Engebrecht coul...
10/28/2025

A huge thank you to this team that was at EMS World in Indianapolis last week. At the last minute, Kerri Engebrecht could not attend, but our member Tammy Ullery, who was going to be helping out, handled the adrenal insufficiency piece!!

I am so thankful for this group, many of whom are very aware of adrenal insufficiency. They have spoken with thousands of EMS personnel from throughout the country on the importance of prompt and accurate medical attention for a potential adrenal crisis, along with over 30 other conditions that require specialized emergency care.

Thank you to Danny's Dose Alliance and Darlene Shelton for leading the way on this and having AIU as part of this important event and mission.

For those with adrenal insufficiency and interested in the next steps. Watch here for early 2026, when the hope is to have a working group on this, like the one we have now for immunotherapy.

10/27/2025

Enjoy two days of education, support, and networking at the Cortisol Summit, a patient conference hosted by Cushing's Support and Research Foundation with co-hosts Adrenal Insufficiency United and Carney Complex Coalition. There will be optional social activities, including a party Saturday evening to celebrate CSRF's 30th anniversary!

Register here: https://csrf.net/CORTISOLSUMMIT2025/

10/26/2025

AIU took the word cloud that was shared on here the other day and turned it into a t-shirt/sweatshirt that is now available for sale on our website. The sweatshirt is oversized, so keep that in mind when ordering. All proceeds from this sale will go towards our April conference in Minneapolis.



https://united4rare.com/products/butterfly-word-cloud-unisex-classic-tee

Want to support AIU, but cannot donate directly? Do you shop at Walmart? You can now round-up your purchases at Walmart ...
10/23/2025

Want to support AIU, but cannot donate directly? Do you shop at Walmart? You can now round-up your purchases at Walmart to donate to Adrenal Insufficiency United.

Here's how -- log in to your account on Walmart.com. Select Services. Choose "Registries, Gifts and Lists". Near the bottom is "support charities", click on that. When you search for Adrenal Insufficiency United, it only works when I clear the zip code and leave that empty. Then just choose for any time you shop to round up to the nearest dollar, with proceeds going to AIU. Or the link below will take you to the page to opt in.

As always, we thank you for any support; every dollar matters in trying to bring awareness, education, and support to those with adrenal insufficiency and the medical community.



https://www.walmart.com/nonprofits/a2b5d9dd-b535-4222-aeeb-56960f61406d/profile

10/22/2025

Danny's Dose is proud to be presenting three sessions (CE accredited) at EMS world 2025. As the national leader in education and raising awareness on emergency care for those with rare and chronic conditions, Danny's Dose is bringing your story front and center to EMS Professionals, patients, and caregivers.

EMS World 2025--Every Call, Every Story and your story with your rare and chronic condition matters!

Join us in 2025 as we present emergency treatment guidelines for those with bleeding disorders and adrenal insufficiency at EMS World - Emergency Medical Services . These guidelines written by national experts in hematology, endocrinology, emergency medicine, and EMS professionals; provide patients, caregivers, and EMS the ability to recognize and understand where to start treatment for those with bleeding disorders and adrenal insufficiency.

Check out our website, keep these guidelines with you, and find expert emergency preparedness education and more.

https://www.dannysdose.org/treatment-guidelines

Take the opportunity to bring education, awareness, and support to everyone who is touched by a rare/ chronic condition and donate today.https://givebutter.com/dannysdose

Adrenal Insufficiency Coalition National Organization for Rare Disorders, Inc. (NORD) Insufficiency United

Over a week in to our needs assessment and almost 500 responses so far. Take a look at the word cloud made from response...
10/21/2025

Over a week in to our needs assessment and almost 500 responses so far. Take a look at the word cloud made from responses on the needs of the community in day to day management of their adrenal insufficiency.

While we see things like fatigue, nausea, communication. I also see works like hope, strength and resilience being used.

The detailed list is still being compiled and AIU is thrilled to be accumulating this data to hopefully help with future programming and also future funding so we can do more to help tis community.

To take part in this short needs assessment click here - https://bit.ly/4n2ZI90

And please share in groups where this is appropriate (always with permission from group moderators).

A huge thank you and shout to Jason Dunn for representing AIU at NORD’s Summit these last few days. Due to personal reas...
10/21/2025

A huge thank you and shout to Jason Dunn for representing AIU at NORD’s Summit these last few days. Due to personal reasons Kerri could not be there. Jason has a table set up with all our information, connecting with other nonprofits and making connections with pharmaceutical companies in our space. His professionalism and advocacy is outstanding and Adrenal Insufficiency United is fortunate to have him as part of our team. Thanks, Jason.

Did you know that AIU has a store? We have safety products, awareness items, and more. But we would love to know what el...
10/20/2025

Did you know that AIU has a store? We have safety products, awareness items, and more. But we would love to know what else you would like us to add. We have had requests for car decals, and I know that there are other wants/needs. Please comment here or message us with ideas!!

https://united4rare.com/collections/adrenal-insufficiency-united

Still time to register for Cortisol Summit in Phoenix, November 7-8. AIU will be there on Saturday, the 8th, with progra...
10/19/2025

Still time to register for Cortisol Summit in Phoenix, November 7-8. AIU will be there on Saturday, the 8th, with programming specific to those with adrenal insufficiency. You are also welcome to attend on the 7th if you register, where Cushing Support and Research Foundation will have programming the full day.

AIU is thrilled to have a few board members participating in this. First off, we would like to highlight Jason Dunn. Jason has been the medical liaison for AIU since jumping in to help at our large Portland conference in 2023. If you have had recent injection training through AIU, it is most likely from him!! At our Phoenix event, he will be leading a session on Adrenal Insufficiency and Tactical Planning - with how to strategically plan for daily life and in case of emergencies, so you can live with less fear. He will also have a breakout session on Low Cortisol vs. Adrenal Crisis, which will include injection training (please bring expired vials and syringes if you have extra).
Thank you, Jason, for all you do for AIU - see you in Phoenix!! To register to be there or for virtual access, follow this link - https://aiunited.org/lunch-learn/

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P. O. BOX 1202
Astoria, OR
97103

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