Adrenal Insufficiency United

12/22/2025

Adrenal Insufficiency United is working to bring you proactical tips to help manage your adrenal insufficiency. Here are some questions to ask your endocrinologist, if you already have a diagnosis.

Next week we will have questions to ask if you are looking for an endocrinologist or yet to reiceve a daignosis of adrenal insufficiency.

12/19/2025

It is hard living with an often misunderstood and invisible, life-threatening medical condition. In our recent needs assessment we asked, "What would you most like others in your life (family, friends, coworkers) to understand about adrenal insufficiency?"

How would you answer this question?

Do you want your answer to be part of the needs assessment that AIU is using to determine the needs of our community? Take a few minutes and fill out our 9 multiple-choice, 5 optional short answer survey here - https://bit.ly/4n2ZI90

12/17/2025

Here is the second in AIU's series on Adrenal Insufficiency 101. In our recent needs assessment, the most commonly asked for resource was basic information on adrenal insufficiency. Members wanted this not only for themselves, but for family, friends, employers, schools, and even members of their medical team.
We are taking a looking at adrenal insufficiency and starting with the basics (which are really not basic), but attempting to educate on adrenal insufficiency, what it is and really digging into that.

AIU has put together more information on what one can think of as Adrenal Insufficiency 101. More information can also be found on our website, where we will be adding more to this page soon!! https://aiunited.org/information-adrenal-insufficiency/

Today we look at the types of adrenal insufficiency. Please note that some times secondary and tertiary are clumped together as central adrenal insufficiency.

Another common theme in the needs assessment (which can be found here and is open until 1/19/26 - https://bit.ly/4n2ZI90), was the need for more awareness. Please share this with whoever in your life may benefit - family, friends, coworkers, school, and even doctors.

12/15/2025

Here is a tool for your AI101 Toolbox.

Everyone with adrenal insufficiency, regardless of type or cause, is at risk of an adrenal crisis. In addition to having a medical alert bracelet/necklace. You should also have a prescribed emergency injection and stress dosing/sick-day dosing instructions from your endocrinologist. We sometimes hear a doctor is reluctant to prescribe an emergency injection, thinking that EMS/ERs will manage if you get that bad. The truth is that many do not get prompt or adequate care in these situations. Some EMS can administer your medication, others cannot. You need to be able to administer it (or have a caregiver who can) for your safety.

For more information on being prepared for a potential adrenal crisis, see https://aiunited.org/emergency-prep/. For general help in establishing a treatment plan, etc... please see Danny's Dose's website at https://www.dannysdose.org/emergency-preparedness

12/13/2025

🛒With the holiday season well underway, here is the perfect gift for yourself or anyone you love!!

The Healthcare Navigation Project and Adrenal Insufficiency United would love to help with holiday shopping!! Use QR code below.

🎓Do you have a young adult graduating soon, maybe leaving the nest? Perfect gift. ✅

👴 Are you helping take care of an aging parent or loved one? Perfect gift. ✅

👫Are you entering a new phase of life, that may bring with it new health challenges? Perfect gift. ✅

⚕ Do you, a loved one, or friend, have a challenging health diagnosis? Perfect gift ✅

💪 Have you been blessed with good health, but want to be prepared for the future? Perfect gift. ✅

These two nonprofits (THNP and AIU) have put together a fantastic series of webinars through 2026! There are five sessions, an hour each to teach health literacy and self-advocacy skills in healthcare. These are meant for anyone - not specific to any condition or diagnosis, and honestly you do not need to have any diagnosis to walk away with valuable information!!

So give the gift of to your self or someone you love! is according to the World Health Organization - In the United States of America, a stronger predictor of an individual’s health status than income, employment status, education level and racial or ethnic group.

This gift is a one-size fits all!! Gift certificates are available with you order, if you would like to like to gift this to someone else. Just let us know at contact@aiunited.org and I will email it to you. For a limited time we are offering buy 4, get one free - the whole year for $80!! Here is the link to purchase - https://donorbox.org/events/844762/steps/choose_tickets

Happy shopping!!

12/12/2025

On Fridays, AIU will share more about the lived experience of having adrenal insufficiency. As is stated here - it is one codition with many experiences. In other words if you have met one person with adrenal insufficiency, you have just met one person with adrenal insufficiency.

Many experience it differently than a textbook would say, and different form how others in our community expereince it. That does not make it any less real or severe. Adrenal Insufficiency is life-threatening. Every person needs to work with their medical team to identify their signs and symptoms.

12/10/2025

In our recent needs assessment, the most commonly asked for resource was basic information on adrenal insufficiency. Members wanted this not only for themselves, but for family, friends, employers, schools, and even members of their medical team.

AIU has put together more information on what one can think of as Adrenal Insufficiency 101. More information can also be found on our website, where we will be adding more to this page soon!! https://aiunited.org/information-adrenal-insufficiency/

12/08/2025

When AIU talks about our members, who are we talking about?

Here are the latest results for our needs assessment that began in October 2025, with over 800 reposnses so far. WIth over 50 causes of adrenal insufficiency we wanted to see how this was reflected in our members. In the "Other " category there are quite a few still undergoing testing for a cause of their adrenal insufficiency, many from having tumors in a variety of locations removed, congenital Hypoplasia, Lyme Disease, Isolated ACTH deficiency, Optic nerve hypoplasia, and many others. In other words, if you have adrenal insufficiency of any cause, we most likely have people with that cause in our groups.

Haven't been part of this needs assessment yet, but would like to have your voice heard, there is still time here - https://bit.ly/4n2ZI90 (in bio on Instagram).

Want to connect with others with adrenal insufficiency - our groups are always open - start here with out large group of almost 16,000 - https://www.facebook.com/groups/AIU.AISupport

For parents of someone under 18 with adrenal insufficiency, we have a group specific for your needs - https://www.facebook.com/groups/aiuparents

Caregivers of those over 18, spouses and friends of those with an adrenal insufficiency diagnosis - here is a group just for you - https://www.facebook.com/groups/222801411210713

12/03/2025

Eton Pharmaceuticals is the next sponsor that AIU would like to thank for supporting us on our 2026 initiatives, including our Summit 2026 on Adrenal Insufficiency. Eton Pharmaceuticals is leading the way on options for children to get smaller doses! The have Alkindi Spinkles and Khindivi liquid hydrocortisone.

Adrenal Insufficifency United appreicates your support and looks forward to seeing you at our Summit in Menneapolis April 23-25, 2026. If you would like to see them there too, registration will open next month!! Until then you can always visit their website for more information - https://www.etonpharma.com

12/02/2025

is traditionally one of the biggest days of the year for nonprofits, like Adrenal Insufficiency Untied.

Your donation to AIU today will make a huge impact on 2026 programming. What to watch for in 2026:

🎊 AIU's 2026 Summit on Adrenal Insufficiency in Minneapolis, April 23-25, including our 15 Year Birthday Bash and The Mall of America

💉Results and programming based on the needs assessment of those with adrenal insufficiency caused by immunotherapy. Survey is still open, here - http://bit.ly/3J36ptz

📝Also, over 800 people have responded to our general needs assessment, for all with any form of adrenal insufficiency and we plan to use this data to further our mission. This survey is also still open and can be found here - https://bit.ly/4n2ZI90

🚨Just as there was a working group of over 50 people in 2025 focused on immunotherapy cause adrenal insufficiency, in 2026 we plan an even larger initiative of a working group on EMS/ERs, and hope to include the option of reaching out to legislators on this!

💻Watch for not only our webinar series with The Helathcare Navigation Project, you can register here - https:donorbox.org/events/754417 but we AIU will be offering more webinars throughout the year!!

💙 And it is not lost on us at Adrenal Insufficiency United that none of this can be done without the support of our members, like you. We humbly ask for your finacial support so we can keep doing. If you can give, please do so - every dollar matters and all donations are tax deductible. If you have an employer with a matching program, please see if they can match your donation - it makes every dollar you donate go even further. If it is not something that you personally can do right now, please share this post!! Here is the link to donate - https://aiunited.org/donate/

Thank you all of you support for the last 14 years, we promise to make this 15th year of AIU the best yet!!

12/01/2025

Ahead of , Adrenal Insufficiency United wants to share the late results of our needs assessment. With over 800 responses the results are eye-popping. 👀

We want to use this data to make change. And unfortunately, most ways to do that cost $$. As an all-volunteer organization with a working board (who almost all work another full-time job, and all are either affected by adrenal insufficiency or caretaker for someone with adrenal insufficiency), we need your help.

Of you have questions on how we will do this, please ask. We are fully transparent in how we are using any money donated.

Please consider donating to here and help those with any cause of live more fully, with less worry about

https://aiunited.org/donate/

11/29/2025

is here!! No better time to remind you all of the Adrenal Insufficiency United store!!

Another opportunity to get some shopping done and benefit a working hard for those with and their .

FREE SHIPPING Adrenal Insufficiency United (AIU) dedicated to supporting individuals and caregivers affected by adrenal insufficiency; empowering them with education, resources, community building, and legislative advocacy. United4Rare sends 100% of profits sold from products purchased here to AIU.....