Adrenal Insufficiency United

11/27/2025

Happy Thanksgiving from AIU, to those in the United States! Please remember to take time today to be thankful - gratiude can go a long way!! That being said, go slowly, take care of yourself and if you are traveling, please be safe!!

11/25/2025

AIU would like to continue to highlight those who are sponsoring us for the AIU 2026 Summit on Adrenal Insufficiency. Next up with SOLUtion Medical. SOLUtion Medical is a company that sought out solutions for the adrenal insufficiency community and is making huge advances in the easier delivery of our emergency injections.

Want to learn more about SOLUtion Medical? Visit them at the Summit April 23-25, 2026, in Minneapolis. Registration will open in January. Or visit their website here https://www.solutionmedco.com

Thank you to SOLUtion Medical!!

11/24/2025

As holiday travel begins this week in the United States here are some reminders about traveling and holidays for those with adrenal insufficiency:

🧘‍♂️Practice patience. Whether through the air, or on the road patience is needed. Keeping calm and planning ahead can help everyone, but with adrenal insufficiency there are risks of getting to flustered, aggravated, etc...

💊 Packing your medications. Make sure you have plenty. Realize that delays may happen (airlines, weather, etc...). Bring them in labeled containers when you travel and have enough with so that you can stress dose should you be delayed.

✈ If traveling by plane, keep your medication with you, not in checked luggage where it may get lost. Losing luggage is a stressful event even if your meds are not in it, but could be life-threatening if your meds are lost.

🚗 However you travel, be sure you have you medical alert jewelry, treatment plans, that those you are with are aware of what you need in a potenial emergency and look into best places to get care while away from home.

💙As able, take breaks for yourself. A lot of commitments and visitng many family/friends can be draining on every level. Make sure you take breaks as needed for yourself. This may mean putting boundaries in place for your own well-being, consider this not just your permission to do so, but a nudge to do so.

🦃 Take time to appreciate what you have. For many life is not what we pictured it to be, but we all have things to be thankful for. Gratitude can go a long way in our overall well-being.

AIU wishes all of you safe travels if you are headed to spend time with loved ones!!

11/21/2025

Silent Auction Details:

Because we are so close to the holidays and the end of the year, we are going to shift from our original plan a AIU will open the silent auction on February 28th in honor of Rare Disease Day, and it will close at the conference Birthday Bash!! If you will not be at the conference, any items won will be shipped. So, all can participate in donating items and in bidding!!

Please remember that this auction is to help fund our 2026 Summit on Adrenal Insufficiency and the rest of our 2026 initiatives. The Summit is being held April 23-25, 2026, in Minneapolis.

We are accepting donations now through February 15th.
:
Please consider donating if:

1. You are a crafter and/or have something else to donate.

2. You own a business that can donate something.

3. You could donate a gift card to a National or Local company. If local, we'd just ask that you share the auction on your personal FB page so the items get viewed.

Here is the form to let us know of your donation, along with some more details: https://docs.google.com/forms/d/e/1FAIpQLSd59OyNstf_DovRAQ-0uIdoop0SI9Ip0sMCCmPDOQVVFcDRfQ/viewform?usp=header

11/20/2025

💙Throughout 2025 Adrenal Insufficiency United worked with The Healthcare Navigation Project to bring our members live intereactive Zoom events. We plan to do more of the same and already have our 2026 schedule. There will be 5 topics spread throughout the year.💙

💵On Giving Tuesday we will be running a Buy 4, Get One Free. That way on Giving Tuesday for $80 you are getting five, 1 hour sessions, but you are also donating to two nonprofits who are working to bring you information on how to best advocate for yourself or your loved one with adrenal insufficiency.

👀Watch for more info on how to get this deal Black Friday through Giving Tuesday, December 2nd and make a difference for yourself, or give it to someone you love as a gift they can put to good use!!

And another heads up that Lauren Kopsick, found and director of The Healthcare Navigation Project will also be at the AIU 2026 Summit on Adrenal Insufficiency. Lots of ways to interact with Lauren and learn from here. For more on THe Healthcare Navigation Project, visit her website www.thehealthcarenavigationproject.org.

11/19/2025

Adrenal Insufficiency United has an ongoing needs assessment going on through the end of the month. With just about 700 responses, we are learning a lot about our community. Here is a sample of what we are finding!!

Want to have your story be part of the next update we give? Fill out our quick 9 multiple-choice, 5 optional short-answer survey here - https://bit.ly/4n2ZI90 (in bio on Instagram)

11/18/2025

Planning our 2026 year and wanting to take a moment each week to thank our sponsors! Look for a thank you from a different one each week. We could not do all that we do without them and are looking forward to a fantastic 2026 thanks to them including our AIU 2026 Summit on Adrenal Insufficiency, April 23-25 on Minneapolis, MN.

First off we want to thank Neurocrine for the work they do for those with CAH and for their generous support. For more on Neurocrine Biosciences, Inc you can visit their website here - https://www.neurocrine.com

11/17/2025

Learn how changes to Medicare, Medicaid and the ACA could affect access to affordable health care in our free webinar, “Stay Covered: Open Enrollment Essentials for Rare Disease Families,” Nov. 19 at 2 p.m. ET. Register here: https://bit.ly/4nUYIEm

11/14/2025

Next year will be 15 years of Adrenal Insufficiency United. As we come to the end of the year, AIU would appreciate you remembering us in your year-end giving.

If every person who has been part of our groups, attended our conferences, and used our website as a resource gave $15 (more is always fine too🙌!!), imagine what more we could do!!

In 2026 AIU is already:

🎂 Planning our 3-day conference and birthday bash in Minneapolis in April.

🫏Looking at a social media campaign for Rare Disease Day with NORD support information in February.

👨‍⚕️Sending our Director to the National Comprehensive Cancer Network annual conference in March to spread awareness of adrenal insufficiency after immunotherapy to oncologists throughout the country.

🌎Participating in the 2nd International Adrenal Disease Awareness Day with organizations throughout the world to bring awareness worldwide.

That is just the first four months of the year. We have no paid staff and promise that every dollar donated goes right into programs such as those above.

All of the above cost $$, and we have more plans too. We are also developing programs based on two ongoing needs assessments - one for the adrenal insufficiency community as a whole and one for those whose adrenal insufficiency is caused by cancer treatment. We will be in attendance at events like EMS World and NORD Summit.

To donate, please follow this link: https://aiunited.org/donate/

And if AIU has made a difference in your life, please share this to your own social media!!

If you have any questions, please reach out to contact@aiunited.org.

We appreciate you!!

Looking for . We're here for you! Adrenal Insufficiency United (AIU) is dedicated to supporting individuals and caregivers affected by adrenal insufficiency; empowering them with education, resources, community building, and legislative advocacy. Sign up for our Email List Coming in 2026AIU's Summit...

11/14/2025

Here is a day many of us can get behind and celebrate:

🥒National Pickle Day is an annual observance dedicated to the appreciation of pickles.

🗓It is celebrated every year on November 14th.

📜Pickles have a long history, with evidence of pickling dating back to ancient Mesopotamia around 2400 BC.

🇧🇷🇧🇬🇧🇧 The tradition of making and consuming pickles is found across many different cultures worldwide🇦🇲🇧🇸

An article on it with some deals you may find in the US today!! https://www.today.com/food/restaurants/national-pickle-day-deals-2025-rcna243910

Why are pickles such a favorite for some with some forms of adrenal insufficiency?
https://www.sciencedirect.com/science/article/abs/pii/S0929693X24000599

https://www.verywellhealth.com/why-am-i-craving-pickles-11779867

11/13/2025

Today is World Kindness Day.

Kindness makes a difference - share something kind you did for someone else or someone did for you!!

And keep passing that kindness along to others!!

11/11/2025

Lots of room to welcome more people at either Noon EST or 7 pm EST.

Lauren Kopsick of is bringing Briana O"Dwyer along for this next module in events she is doing for .

We all know the pharmacist is part of our care, but how much a part of it and how can we best use them as a resource.

Join us for either event tomorrow!! The $20 registration goes to two nonprofits doing work in the health literacy and adrenal insufficiency space. https://donorbox.org/events/833798

You will leave after an hour with information that you can put to use right away, for you and your loved ones, with any condition.