Adrenal Insufficiency United

04/03/2026

Can't come to the conference In Person.
Sign up for our Virtual Option where you'll still be able to ask questions of the presentors!

Thanks to our generous sponsors it's now a sliding scale from $0 to $50 pay what you can afford, then tune into the sessions you'd like to join.

See first comment to link to our website and sign up.

Post below if you're attending the conference. Let us know if we'll see you in Person or if you're joining us Virtually.

Register for our conference! DATES: April 23 – 25 Sunday the 26th is an optional family fun dayLOCATION: Minneapolis MNVENUE: Double Tree by Hilton Minneapolis Airport Adrenal Insufficiency United feels that the health, safety, and well-being of our members are of utmost importance. We recognize t...

04/03/2026

One of the biggest needs of the adrenal insufficiency community is prompt and accurate medical care, especially in an emergency.

An adrenal crisis can be deadly in 30-60 minutes. Time canNOT be wasted.

Throughout the AIU Summit April 23-25, both in Minneapolis and virtually we will have sessions on this.

🚨Danny's Dose will be present in our sponsor/partner area, with information for all

🚑Darlene Shelton from Danny's Dose will not personally be in attendance, but will present virtually about the work she is doing on emergency care for those with specialized medication.

🏥 Latasha Holt, AI mother and fierce advocate will be at the Danny's Dose table and can share the great work she is doing in the state of Louisiana and beyond!!

💉There will be live injection trainings (bring expired vials) throughout the conference, with Jason Dunn, RN.

👨‍⚕️Dr. Craig Cooley is an ER doctor and will be presenting on emergency care.

💉SOLUtion Medical will be present sharing where they are on having new ways of administering hydrocortisone.

💊Other pharmaceutical companies who are working on emergency care, or meds so that those with adrenal insufficiency are more consistently stable, including Neurocrine, Esteve, BridgeBio, Eton, and Corcept.

What sessions are you looking most forward to? Register at www.aiunited.org for in-person or to join us virtually.

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04/01/2026

This month is Adrenal Insufficiency Awareness Month.

AIU is all in on getting you accurate information about adrenal insufficiency all month long, ending with our conference April 23-25 in Minneapolis, MN! To join us in person or virtually, visit www.aiunited.org

Comments will have a photo you can save to use as you FaceBook cover photo for the month of April.

03/31/2026

We still have more speakers to highlight!! The slate of speakers for this conference is amazing.

There is still time to register for in person in Minneapolis or virtual, April 23-25. Visit www.aiunited.org for more info and to register.

Next up is Deanna Pomfret -

Professor, Nutrition and Public Health Deanna’s area of expertise is health education with a primary focus on food and nutrition, physical activity, public health and promotion. Deanna teaches full-time for the Department of Nutrition and Public Health in the School of Nursing and Health Sciences at Merrimack College.

Deanna also volunteers in the local sports and medical communities. She is a presenter at Harvard University Medical School for their endocrine clinics and homeostasis lectures. She also presents for clubs, hospitals and symposiums on the science and art of coaching specifically in the areas of nutrition and fitness.

Before becoming a teacher Deanna created Athletic Pursuits LLC a company that promoted endurance sports and the great outdoors. Since 2005 Deanna has helped adults with personalized coaching and training for general fitness and for special events like triathlons, marathons and anything her athletes dream up. Deanna has primary adrenal insufficiency and enjoys being a resource for others with similar challenges.

03/30/2026

Adrenal Insufficiency United has had a long and productive relationship with Bridge Bio. BridgeBio is very involved with the CAH community specifically and we are fortunate to have them, once again as a sponsor of our AIU 2026 Summit on Adrenal Insufficiency.

Please remembers there is still time to sign up and meet with other AIU members, specialists in adrenal insufficiency throughtout the country and our sponsors. Our sponsors are the ones often times responsible for producing the medications that we use and it is great to have so many involved in 2026.

Register at www.aiunited.org to be there in person April 23-25 in Minneapolis or to attend virtually.

03/26/2026

Earlier this week, AIU spoke with Pituitary World News and got more details about their exciting new edveavor (as of last year), Adrenal World News. We are looking forward to engaging with them more and they want to work to help bring our members information relevant to you.

Also, they are a nonprofit and will be attending the conference in Minneapolis to connect more with our members. While there they are planning to record a podcast with our very own Jason Dunn. Jason is an RN and is on our Board of Directors as Medical Liaison. He hopes in the podcast to bring to light how many people are presenting with AI, and how they present initially. New diagnostics and treatments. Sick day rules, and crisis vs insufficiency. How people go about finding appropriate medical information/resource resources.

Remember it is not too late to register so you, too can meet AIU board members, interact with Jorge from Adrenal/Pituitary World News and more. FOr more information and to register, www.aiunited.org

03/24/2026

When choosing where to give your hard earned money, where do you look into to nonprofits/charities?

Adrenal Insufficiency United has Candid's Gold Seal of Transparency.

https://app.candid.org/profile/9242763/adrenal-insufficiency-united-45-4624912

03/23/2026

Thanks to all who took our conference interest survey!

Congratulations to our winner Sarah H.
Sarah, check your emails.

We know financial hardship means many of you cannot attend our conference. Remember our Virtual conference option is $50 and will give you access to all the main sessions as well as some virtual discussion groups. Find all the options for attendance on our website https://aiunited.org/registration/

03/23/2026

1 month from today we will meet again in Minneapolis!! Remember there is both in-person and virtual registration now at www.aiunited.org/events

The hotel will need final numbers in the next couple of weeks so do not put off registration much longer!!

Since Latasha's bio was put together she has also said she will help with advocacy for schools, as she is well-versed on 504s, IEPs and health plans. You don't want to miss Dr. Holt speak on any of the topics she is well-versed on!!

Educator, Researcher, & "Double AI" Advocate Dr. Latasha Holt is an Associate Professor and Assessment Coordinator at the University of Louisiana at Lafayette, but her most vital research happens at the intersection of theory and real-world survival.

Driven by her daughter’s journey with adrenal insufficiency and epilepsy, Dr. Holt has dedicated her career to bridging the gap between complex academic concepts and the lived experience of those with exceptional needs. A published author and Ph.D. in Curriculum and Instruction, she has spent the last four years leading faculty learning communities in exploring the integration of Artificial Intelligence (AI) across disciplines, examining its profound implications for pedagogy and academic identity.

Her work is rooted in the belief that real change only begins when we are brave enough to ask disruptive questions. Beyond the classroom, Dr. Holt is a dedicated force for systemic reform. She serves on the boards of Danny’s Dose and volunteers with NORD and Make-a-Wish. Whether she is addressing physicians, educators, or political leaders, her mission remains the same: to transform "invisible" struggles into visible action and foster a more appropriate, democratic landscape for every learner and patient.

03/20/2026

Happy first day of spring!!

What are you looking forward to this spring?

For us at AIU, in addition to warmer temps, flowers growing and the end of school, we are also looking forward to our 2026 Summit on Adrenal Insufficiency.

Today we bring up another speaker. Dr. Craig Cooley. Dr. Cooley has been a regular at our conferences and is a member of AIU's Medical Advisroy Board. He will be speaking on something important to everyone with adrenal insufficiency, EMS / ER Systems. As an emergency room doctor he brings a unique perspective to this topic.

Craig Cooley, MD, MPH, EMT-P, FACEP, FAAEM, FAEMS is currently the EMS Division Director and Program Director for the EMS Fellowship at University of Texas at San Antonio and an Associate Clinical Professor in the Department of Emergency Medicine.

He is also Deputy Medical Director for San Antonio Fire Department and Medical Director for Bexar County ESD-3. In these roles, Dr. Cooley provides radio/phone and on-scene medical control for SAFD and surrounding agencies, provides medical oversight during state disaster responses, and educates fellows, residents, and medical students through the different programs and rotations he helped develop that are offered at UT San Antonio.

Among his involvement in several regional, state and national organizations, Dr. Cooley is a member of the Texas Governor’s EMS and Trauma Advisory Council (GETAC) Cardiac Subcommittee, Chair for the EMS Section for the American Academy of Emergency Medicine (AAEM), is Chair-Elect for the EMS Section of the American Collage of Emergency Physicians (ACEP), and serves on multiple committees with the National Association of EMS Physicians (NAEMSP).

In addition to speaking frequently at the program and local level on several EMS topics, Dr. Cooley continues to speak regionally, nationally and internationally on a variety of topics in EMS and Emergency Medicine.

To hear Dr. Cooley and so many others, register here, www.aiunited.org

03/19/2026

If you applied for a conference stipend before March 16th check your emails. If you don't see anything check in your spam.

03/19/2026

AIU gets asked a lot if we can hold events in different places. We thought it would be interesting to plot out where we have either held conferneces or lunch and learns, and also where we have attended other events over the years.

Being a fairly grassroots, all-volunteer nonprofit you can see AIU has spread throughout the country to bring information to patients and EMS workers.

AIU is open to doing lunch and learns in cities where you, our members can secure a place to host in odd numbered years. AIU was also present at a NORD Rare Disease Day event in Nashville in February and will be at NCCN conference next week in Orlando. Our large conferences are in even numbered years. This year our large conference is in Minneapolis April 23-25. We would love to see you there. To see our agenda, our speakers and to register please visit www.aiunited.org/events.