Kirsten Norgaard Consulting

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United States
Astoria, OR
Kirsten Norgaard Consulting

Rare disease advocate & complex case strategist. Harvard-trained health coach. I help families win approvals, access care, & navigate the impossible.
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09/16/2025

🌟 From Survivor to Supporter 🌟

Have you ever wondered how to turn your health journey into advocacy?

I’m excited to be speaking at Ask an Advocate! Starting Out Edition hosted by Greater National Advocates on September 25 at 5pm CT (3 PT | 4 MT | 6 ET).

I’ll be sharing from my work in non-profit leadership, clinical trials, and medtech innovation — including real-time cortisol testing and rare disease advocacy — alongside fellow advocate Megan Karanfil, BCPA.

📍 Online via Zoom (registration required)
🔗 Sign up here: https://tinyurl.com/AskAnAdvocateS2S

This conversation is for anyone ready to move from survivor to supporter and use their lived experience to help others. 💙

09/02/2025

✈️ Heading from Oregon to Boston today for the Global Genes Rare Drug Development Symposium!

This conference brings together innovators, researchers, and advocates all working toward one goal: creating real solutions for the rare disease community.

I’m honored to be part of it and excited for the conversations, collaborations, and breakthroughs that can help move lifesaving ideas forward.

Stay tuned for updates from Cambridge — it’s going to be a powerful week 💙🧬✨

08/13/2025

Some days, you’ll feel strong and unshakable.
Some days, you’ll feel scattered and worn thin.
Most days, you’ll be a mix of both.

But every single day you keep going — showing up for yourself, for your community, for the work that matters. You’re standing, fighting, healing, growing, and trying.

That’s resilience. That’s advocacy. And it’s beautiful.

If you’re ready for support navigating complex systems, building patient-centered strategies, or turning lived experience into lasting change, I can help. Let’s work together.

07/19/2025

This is my son, Tristan. Smiling like a superhero… just hours after nearly losing his life to an adrenal crisis.

We made it to the ER in time this time. But what about next time? What about the kids whose symptoms aren’t recognized fast enough? What about the families who don’t have a cortisol monitor in their corner?

That’s why I’m building CortiCheck — a real-time cortisol test for patients like Tristan, so parents, caregivers, and even ER doctors can stop guessing.

This is for every family who’s ever had to fight for answers.
🩸 We’re fighting for them — and we’re not stopping.
Please donate and share to help us build it! https://gofund.me/1349d56f

www.CortiCheck.com

Address

Astoria, OR
97103

Telephone

+15037416033

Website

http://www.united4rare.com/, http://www.corticheck.com/, http://www.aiunited.org/

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