Emory ALS Center

11/02/2025

REGISTRATION IS OPEN for the 20th annual Fiesta 5k Challenge - benefiting Emory ALS Center 🌶🌶🌶

Registration is OPEN for Fiesta 5k Challenge! We have a NEW LOCATION to celebrate our 20th race - Cu***ng City Center. We are excited about the partnership and we know you are going to love the venue. Join us on Saturday, May 2, 2026 to

What started as a desire of a young boy to help someone living with ALS has turned into a 20 year passion to raise funds for research and patient care, raise awareness about ALS, celebrate life, and imagine a cure.

As always, 100% of the funds raised benefit the Emory ALS Center. With your help in this event and the golf tournament we hosted for a few years, you have helped us raise $960,000 for the Emory ALS team. Help us go over that $1,000,000 mark!

Sign up today and make sure to share and invite your friends to join you. www.runsignup.com/runloco4als

10/19/2025

How about these amazing women! Last night Harmony of Hope; this morning the Atlanta 10 Miler👊 Training day for their upcoming NYC Marathon. LINK IN BIO to donate to their page!! Dr. Fournier joined them this morning, too.

10/19/2025

We had an amazing evening at Haromony of Hope💙 Thanks for an incredible event that truly was full of love, awesome music, and "Hopassery"

10/10/2025

CONGRATULATIONS to our own Dr. Eleanor Thomas for getting the Clinical Investigator Abstract Award at the NEALS Conference this week!! 🏆👏👏

09/11/2025

A new Emory University study, led by the Emory ALS Center and the Center for Neurodegenerative Disease at Emory’s Goizueta Brain Health Institute, sheds light on why a once-promising experimental medication for amyotrophic lateral sclerosis failed to help patients, despite successfully reaching it...

09/10/2025

https://news.emory.edu/stories/2025/09/hs_bhc_als_asostudy/story.html

A new Emory University study, led by the Emory ALS Center and the Center for Neurodegenerative Disease at Emory’s Goizueta Brain Health Institute, sheds light on why a once-promising experimental medication for amyotrophic lateral sclerosis failed to help patients, despite successfully reaching it...

08/26/2025

Did you know that our own neurologists, Drs. Garcia-Santibanez and Thomas are running in the New York City Marathon? They are raising awareness for neuromuscular diseases and raising funds for ANF. We hope you will consider donating to their team via the link below. 👟👟
https://www.neuromuscularfoundation.org/donate/2025-tcs-new-york-city-marathon/Runner/4/

07/15/2025

Join us at our 2025 ALS Lunch & Learn event on Saturday, August 2nd. The Lunch & Learn will highlight care needs impacted by ALS, inform patients and caregivers, educate community providers to work in partnership with clients, and empower those on the journey to make decisions.

We’re also excited to share that Dr. Jonathan Glass & Dr. Christina Fournier will be joining us to host a panel discussion on on ALS Research Opportunities and Updates.

This event is FREE for pALS & cALS. We hope to see you there! Visit alsgeorgia.org/symposium to learn more & register today.

07/01/2025

Last call for applications!!⬇️

We are excited to announce that applications are now open for the 2025 in-person ALS Clinical Research Learning Institute® (ALS CRLI), taking place October 6–7, 2025, in Clearwater, Florida.

The ALS CRLI is a two-day, immersive program that equips individuals impacted by ALS—including people living with ALS, caregivers, and family members—with the knowledge and tools to engage meaningfully in clinical research and the therapy development process. Participants who complete the program become ALS Research Ambassadors, joining a growing network of advocates working to improve and influence ALS research.

We kindly ask that you share this opportunity with your networks. Eligible applicants must:

-Reside in North America

-Not have attended a previous ALS CRLI program

-Have a connection to ALS

The application deadline is July 14, 2025.

You can learn more at NEALS.org

Apply Here: https://www.surveymonkey.com/r/CRLI2025

06/05/2025

ALS Awareness Day/Lou Gehrig Day 2025 was fantastic! Thank you to the for your generosity. Thank you, , for helping us raise awareness and supporting families living with ALS and for honoring ALS warriors Melissa Korn and Ben Brandenburg.

06/03/2025

Come to ALS Day at Truist Park tomorrow to see Melissa's son throwing out the first pitch!

Watch Melissa's inspiring health journey after giving birth to her second child, then receiving an ALS diagnosis.