Children’s and Emory Pediatric Cystic Fibrosis Program

03/06/2026

Members of our pediatric and adult CF care teams spent the past two days learning together at the Cystic Fibrosis Foundation’s CF Learning Network Conference! CFLN is a national quality improvement consortium where CF care teams across the country improve care together and learn from each other. Several of our Children’s + Emory team members presented our QI projects in the sessions!

02/27/2026

February 28th is Rare Disease Day 💜

Dr. Guglani and Dr. Linnemann joined the Rare Disease Day Symposium sponsored by the Emory Division of Medical Genetics, where cystic fibrosis was a highlighted topic!

02/19/2026

The CF Foundation’s BreatheCon 2026 starts tomorrow! This two-day virtual event is designed by adults with cystic fibrosis, for adults with CF. The program includes social opportunities, small-group discussions, workshops, and more. Register here!

Get tickets to BreatheCon 2026, taking place 20/02/2026 to 21/02/2026. RingCentral Events is your source for engaging events and experiences.

01/23/2026

Virtual CF Family Education day is tomorrow morning! Learn about hot topics in CF while you finish your storm prep. We hope to see you online!

01/21/2026

🚨 Important Update 🚨
Because of the potential for severe weather this weekend, CF Family Education Day will be virtual only. Zoom details will be sent to registered participants. We hope you can join us online - it’s a great agenda!

01/15/2026

📣✨ New CF Teen Support Group — Mark Your Calendars! ⏰✨
The clock is ticking! Our first meeting is January 27. Teens diagnosed with CF are invited to join us every 4th Tuesday of the month at 6:00 PM on Zoom to connect, build community, and share challenges and strategies. Meetings will be led by Emily Seibert, our CF Mental Health Coordinator.

The Zoom link will be emailed out. Please reach out to CFfamilygroups@choa.org if you have any questions.

01/08/2026

We are getting excited for our upcoming CF Family Education Day! Do you have questions about mental health in CF and modulators? Curious how environmental exposures might impact CF health? Wondering what’s happening with prenatal treatment for meconium ileus?
Please RSVP to attend in person or online! Day of details will be sent the week of the event to those who have RSVP’d.
https://survey.qualtrics.emory.edu/jfe/form/SV_0jKvd5XwW1S9O9o

12/04/2025

🎉 BIG NEWS! Our CF Family Education Day agenda is ready, and we’re thrilled to have Dr. Fedele, a psychologist with CF expertise, joining us as our keynote speaker!
Mark your calendar and click here to register: https://survey.qualtrics.emory.edu/jfe/form/SV_0jKvd5XwW1S9O9o

11/24/2025

📣✨NEW CF Teen Support Group! ✨First meeting January 27! Join us every 4th Tuesday of the month at 6pm via Zoom for teens diagnosed with CF to connect and build community! Meetings will be led by Emily Seibert, CF Mental Health Coordinator. Zoom link will be emailed out. Please email CFfamilygroups@choa.org if you are interested or with any questions.

10/29/2025

🌟 It is always a pleasure to see our CF clinical fellows present their work at NACFC! 👏

A special thanks to all our families who participated in this CF podcast education study!

10/25/2025

🌟 What an incredible NACFC 2025! 🌟

Our CF team learned so much and came away inspired by the exciting research and shared dedication to improving the lives of people with CF. Our Children’s and Emory presenters and session chairs did amazing jobs! Here are a few smiling faces from our team 💜

09/19/2025

The Emory + Children’s CF and Airways Disease Research Center team just wrapped up an incredible research retreat! 🧬💨

From thought-provoking presentations to collaborative networking, we celebrated our shared mission: deepening our understanding of cystic fibrosis and airways diseases and advancing new discoveries that will impact care.

The passion, innovation, and dedication among our investigators, trainees, and research teams is truly something special. 💜