ALK Positive

ALK Positive Improving the life expectancy and quality of life for ALK-positive cancer patients worldwide.

Missed it live? You can now watch the replay.This past Sunday, our ALK Positive community gathered for an important ALKt...
03/05/2026

Missed it live? You can now watch the replay.

This past Sunday, our ALK Positive community gathered for an important ALKtALK conversation with thoracic oncologist Dr. Alex Drilon to explore the latest developments in ALK-targeted therapy research.

We’re now sharing the full recording on our YouTube channel so patients, caregivers, and advocates can access this information anytime.

In this session, Dr. Drilon discusses new data and emerging directions for neladalkib (NVL-655) and how precision oncology continues to shape the future of treatment for ALK-positive lung cancer. Conversations like this help translate complex research into clear information our community can understand and use when speaking with their care teams.

New Data, New Directions: Neladalkib (NVL-655) and Precision Oncology in ALK-Positive Lung Cancer

Press play to stay informed and empowered.

🎥 Watch the replay here:
https://youtu.be/PRrfLmIQb9I?si=294oYTXW_1xT86Rl

Join ALKtALK this Sunday for:New Data, New Directions:Neladalkib (NVL-655) and Precision Oncology in ALK-Positive Cancer...
02/27/2026

Join ALKtALK this Sunday for:

New Data, New Directions:

Neladalkib (NVL-655) and Precision Oncology in ALK-Positive Cancer
Featuring Alexander Drilon, MD, thoracic oncologist and Chief of the Early Drug Development Service at Memorial Sloan Kettering Cancer Center.

This data-driven conversation will explore:
🧬 Latest clinical data on neladalkib (NVL-655), including emerging efficacy and safety insights
🔬 How promising therapies move from clinical trials toward broader patient access
🧪 Insights from Dr. Drilon’s ongoing research and biomarker-driven treatment approaches

💬 Live audience Q&A
Whether you are newly diagnosed, in treatment, or supporting someone you love, this ALKtALK offers an opportunity to stay connected to the research shaping the future of our community.

📅 Sunday, March 1, 2026
🕖 7:00 PM ET
Unable to attend live? The recording will be available on the ALK Positive YouTube channel.

02/21/2026

Today is National Care Partner Day, and we want to recognize the extraordinary individuals who walk beside those living with ALK-positive cancer.

Care partners are the steady presence in uncertain moments.
The late-night researchers.
The calendar keepers.
The medication managers.
The emotional anchors.
The fierce advocates.

You carry so much — often quietly, often without acknowledgment.

We see you.
We honor you.
We are deeply grateful for you.

Join us for our next Care Partner Check-In:
February 26th @ 9PM ET

This is a space for those who are supporting individuals with ALK-positive cancer to share experiences, swap practical advice, and gather resources. Whether you’re looking for a listening ear or just a moment to breathe, this space is for you.

You do not have to carry this alone. Join here: https://alkpositive.org/events/category/healing-arts/care-partner-check-in/

🎥 Now Available: Clinical Trials Connect Recordinghttps://youtube.com/playlist?list=PLDhXAqwtLXAukUCQMIc3nhF7bqp68pkmB&s...
02/20/2026

🎥 Now Available: Clinical Trials Connect Recording
https://youtube.com/playlist?list=PLDhXAqwtLXAukUCQMIc3nhF7bqp68pkmB&si=3j3-xmbX3UwKKHDD

If you weren’t able to join us live for our Healing Arts session on clinical trials, the recording is now available on YouTube.

Hosted by patient Jeff Sturm, alongside ALK Positive’s Dr. Ken Culver, Sadia Yaakov, and multiple Medical Committee members, this conversation explored what clinical trials really mean for ALK-positive patients — whether a trial may be your next line of treatment now, or something you may consider in the future.

For many of us, clinical trials represent both opportunity and uncertainty. Knowing when and how to access a trial can be confusing — especially while carrying the weight of a diagnosis, appointments, and everyday life. You do not have to navigate this alone.
This session offers a safe, patient-centered space to hear real experiences, gain clear information, and approach decisions with confidence instead of pressure.

Watch for clear information.
Watch for shared experience.
Watch for hope and community.
⸻
Featured Speakers:
• Dr. Ken Culver — ALK Positive Executive & Medical Director
• Sadia Yaakov — ALK Positive Project Manager

Facilitated by Jeff Sturm, ALK Positive Board Member, member of the Clinical Trials and Research Acceleration Committees, and 11-year ALK-positive NSCLC patient.

🌊 ALK Positive at TTLC 2026We’re at TTLC 2026 in Huntington Beach, CA!The Targeted Therapies of Lung Cancer (TTLC) is a...
02/19/2026

🌊 ALK Positive at TTLC 2026

We’re at TTLC 2026 in Huntington Beach, CA!

The Targeted Therapies of Lung Cancer (TTLC) is a premier scientific meeting focused on cutting-edge targeted therapies, resistance research, and the future of precision treatment in lung cancer.

ALK Positive is here to stay ahead of the science, strengthen partnerships, and advocate for continued progress in ALK research.

If you are attending, come say hello. We are proud to represent our community at the forefront of innovation.

Honoring David Jasso’s life. Advancing a mission. Fueling hope.We are incredibly grateful to Chad David Jasso and the Da...
02/19/2026

Honoring David Jasso’s life. Advancing a mission. Fueling hope.

We are incredibly grateful to Chad David Jasso and the Dave Jasso Foundation for the extraordinary way they continue honoring David Jasso’s life.

Through the HeartWare Stories video produced by Ace Hardware, we see more than a tribute. We see a community coming together in David’s name — united in helping others, standing strong for families facing cancer, and refusing to give up.

In honoring his father, Chad David Jasso has helped raise over $90,000 for ALK Positive, directly advancing research, strengthening patient programs, and supporting advocacy efforts globally.

Thank you, Dave Jasso Foundation, for ensuring Dave’s life continues to create impact for so many others.

Stronger Together.

This Sunday at 7pm ET : tALKing about Treatments: A Roundtable Discussionhttps://alkpositive.org/event/alktalk-treatment...
02/13/2026

This Sunday at 7pm ET : tALKing about Treatments: A Roundtable Discussion
https://alkpositive.org/event/alktalk-treatment-roundtables/

Navigating treatment can feel overwhelming, isolating, and deeply personal. But you do not have to walk it alone.

Join us for our annual ALKtALK treatment roundtable — a longtime favorite within the ALK community. This special small-group discussion is designed for ALK-positive patients and care partners to connect, share experiences, and support one another.

Whether you are newly diagnosed, exploring options, managing side effects, participating in a clinical trial, or supporting someone you love, this space is for you.

This is not about medical advice. It is about community, connection, and the power of shared experience.

Come as you are. Listen, share, or simply be in the room with people who understand.

🗓 Sunday, February 15
⏰ 7pm ET

We hope to see you there!

02/12/2026

ALK Positive community:

You will not want to miss our newest Healing Arts class on clinical trials — TONIGHT at 7pm ET with host Jeff Sturm and our very own Dr. Ken Culver and Sadia Yaakov.

For many of us, clinical trials may be the next treatment line we need right now, or an option we may need to explore in the future.

Knowing when and how to access a trial can feel confusing, especially while carrying the weight of a diagnosis, appointments, and everyday life. You do not have to navigate this alone.

This Healing Arts class will be a safe, patient-centred space to talk openly about what clinical trials really mean, hear from others who have been there, and learn how to approach decisions with confidence instead of pressure.

Come for clear information. Come for shared experience. Come for hope and community.

We look forward to seeing you there.

One community. Many roles. Always stronger together.Here are just some of the volunteers who help make our mission possi...
02/08/2026

One community. Many roles. Always stronger together.

Here are just some of the volunteers who help make our mission possible. We are deeply grateful for every person who gives their time, heart, and care to this community. 💙

Show them your support 👇

Show the love. Fuel the research. 💙This Valentine’s Day, turn a small act of kindness into something bigger. Send an ALK...
02/06/2026

Show the love. Fuel the research. 💙

This Valentine’s Day, turn a small act of kindness into something bigger. Send an ALK Positive Valentine to someone you love, someone who supports you, or even yourself.

Each Valentine spreads a little happiness, a little love, and directly supports ALK-positive research that gives our community more time and more options.

💌 Choose a design
💬 Add a personal message
💙 We’ll send it for you

Because love, when shared, has the power to move science forward.

Order yours today: https://secure.qgiv.com/for/showthelovetoresearch2026/

Address

6595 Roswell Road, Suite G2310
Atlanta, GA
30328

Website

https://secure.qgiv.com/for/am-ml/

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