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Monday 9am - 4:30pm Tuesday 9am - 4:30pm Wednesday 9am - 4:30pm Thursday 9am - 4:30pm Friday 9am - 4:30pm

The Sturge-Weber Foundation

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United States
Aurora, CO
The Sturge-Weber Foundation

We are here to improve the quality of life and care for families with the rare disease Sturge-Weber syndrome and associated PWB and KT conditions.

What is Sturge-Weber syndrome? Sturge-Weber syndrome (SWS) is a rare disease caused by a GNAQ gene mutation that is present at birth. One in 20,000-50,000 children will be born with SWS each year. This disorder is not inherited and causes a birthmark on the face, glaucoma, epileptic seizures, and developmental disabilities. Each case of SWS is unique, with varying degrees of progressive medical issues. Research is essential so doctors may improve care and quality of life.

11/19/2025

🎄 SWF Holiday Town Hall with Karen – A Time to Connect, Reflect & Celebrate
Join us for a special Holiday Town Hall with Karen Ball, CEO of The Sturge-Weber Foundation!

This relaxed, heartwarming Zoom gathering is a chance for our SWF families, caregivers, and warriors to:

• Connect directly with Karen
• Ask questions and share ideas
• Hear the latest updates from SWF
• Reflect on this year’s blessings and look ahead with hope

📅 TOMORROW: November 20, 2025 | 🕖 7:00–8:30 pm EST

📍 Live via Zoom
✅ Registration is required: https://app.theauxilia.com/registrationEvent/abbd781d-1dd0-4a40-acf8-7e70ce239416

Bring your holiday spirit, your questions, and your heart for our SWF community. Let’s close out the year together with gratitude, laughter, and connection. ❤️

11/17/2025

Tonight is the night! We can’t wait to see you from 7:30–8:30 PM EST.

Join Ansley and Donald for “Be The Torch, Be The Light” — a peaceful, non-denominational space within the Sturge-Weber Foundation community, created for caregivers, families, and warriors walking through life’s challenges together.

✨ A Circle of Hope, Healing, and Faith for Families and Warriors ✨
Register here: https://app.theauxilia.com/registrationEvent/45d1b330-2278-4abe-9cf4-5753cd8a7517

11/14/2025

Tis the season for giving thanks! 💜

On this Friday, we’re celebrating our Regional Blazing Warriors — eight passionate volunteers from across the USA who are sparking hope and paving the way for future breakthroughs in SWS patient care, caregiver support, and research awareness.

Please join us in thanking:

Annette Coutu • Aden Rauschuber • Megan Butler • Brooke Atkins • Lindsay Wright • Kimberly Kin • Rebecca McDonald • Jessica O’Reilly

Would you like to get in touch with one of our Blazing Warriors or find the one closest to you? Learn more here: https://sturge-weber.org/for-patients/blazing-warriors.html

11/12/2025

Shopping season is here! 🎁 Visit the official SWF shop powered by Tee Spring for t-shirts, hats, jackets, and more. Find all our Month of Awareness tees and special event gear—perfect for you or someone you love. There’s something for everyone! Check it out and support the Sturge-Weber Foundation. https://the-official-swf-store.creator-spring.com/

11/11/2025

Today we honor all veterans for their service, sacrifice, and strength. The Sturge Weber Foundation stands with our veteran families and all those who serve. Thank you for inspiring hope and resilience in our community.

11/10/2025

2 amazing events for you to still participate in this week! 💬

*SWS Adult Patient Chat
Wednesday, November 12, 2025
7:30 pm – 8:30 pm

*SWS Caregiver and Parent Chat
Thursday, November 13, 2025
7:30 pm – 8:30 pm

Click here to register and join us! https://sturge-weber.org/events/swf-events-calendar.html

Let’s connect, share, and support each other.

11/06/2025

🎃 We loved getting all of the Halloween pics from our Sturge Weber family! So much fun and cheer—there’s nothing better than seeing our community in action. Thank you for sharing your creativity and spirit with us! 👻🧡

11/05/2025

We’re so excited for everyone to join our November events at the Sturge Weber Foundation! We’ve got 5 amazing gatherings lined up, and there’s something for everyone—patients, caregivers, and friends.

✨ Here’s what’s coming up:
*Nov. 6: UC Irvine Mini Summit
*Nov. 12: Patient Chat
*Nov. 13: Caregiver Chat
*Nov. 17: Be the Torch. Be the Light. Faith Night
*Nov. 20: Holiday Town Hall with Karen! 🎄

Don’t miss out—click here for registration details and the full calendar: https://sturge-weber.org/events/events.html

We can’t wait to connect, share, and celebrate with you all this November! 💜

11/03/2025

🌟 Join us for the Sturge Weber Foundation’s Virtual Mini-Summit with UC Irvine! 🌟
Thursday, November 6, 2025
🕓 4:00–5:30 pm PST

💻 Online Event
Don’t miss this special opportunity to:
*Hear from leading experts in Sturge-Weber Syndrome
*Get your questions answered in real time
*Connect with families, caregivers, and professionals

Click here to review the full schedule and register: https://sturge-weber.org/events/swf-events-calendar.html/event/2025/11/06/uc-irvine-mini-summit

Whether you’re living with SWS or supporting someone who is, this event is for you.

Address

6105 S. Main Street , #200
Aurora, CO
80016

Opening Hours

Monday	9am - 4:30pm
Tuesday	9am - 4:30pm
Wednesday	9am - 4:30pm
Thursday	9am - 4:30pm
Friday	9am - 4:30pm

Telephone

+19738954445

Website

http://www.sturge-weber.org/

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