Mountain States Regional Genetics Network

31/05/2024

5/31/24:
Goodbye Mountain States Regional Genetics Network….
Thanks for the memories..
The mountains are calling and we must go.

16/05/2024

Please read and share our FINAL newsletter. MSRGN will be sunsetting on 5/31/24 and closing our doors.

Thanks for the memories... the mountains are calling...and we must go.

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the April/May 2...

11/04/2024

Today is the Day! Join us for Sunsetting Mountain States online, virtual event TODAY!
You can still register here-
Sunsetting Mountain States:
Celebrating the End of an Era
TODAY: April 11, 2024

2:00 PM-4:30 PM ET
1:00 PM-3:30 PM CT
12:00 PM-2:30 PM MT
11:00 AM-1:30 PM PT

Registration: https://us02web.zoom.us/meeting/register/tZElcOuvpzsvE9BrhxJJBQdm1ru2Q7ghF6CW

04/04/2024

We are ONE WEEK AWAY from this event... have you reserved your seat yet?
Come and hear state team updates and reminisce over the years of work in the mountain states region.
More info here-

As many have heard by now, the MSRGN grant will be ending on 5/31/24 and will not be renewed. The regional genetics networks and Mountain States Genetics have had a presence in this region for the last 40 plus years. We invite all who have been a part of this era to join us in... Read More

02/04/2024

Announcement: The next meeting of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC or Committee) will be held in-person and via webcast on Thursday, May 9, 2024, from 10:00 a.m. – 5:00 p.m. Eastern Time (ET) and Friday, May 10, 2024, from 10:00 a.m. – 3:00 p.m. ET. Meeting time is subject to change.

Registration: This meeting will be open to the public but advance registration is required. Please register online by 12:00 p.m. ET on Wednesday, May 8, 2024. For technical support accessing the registration website, please email achdncmeetings@lrginc.com. Non-US Citizens planning to attend in person MUST contact the ACHDNC@hrsa.gov mailbox by Friday, April 19, 2024.
Online Registration-

Registration will open shortly.

01/04/2024

As we enter the LAST 2 months of the grant cycle- would would like to remind everyone to be DOWNLOADING any MSRGN resources to your desktop/hard-drive to be sure you have a copy saved. Our MSRGN website will become a STATIC (non-updated) website on May 31 and will remain that way through 5/31/26, but we encourage everyone to download PDF's, videos and other resources SOONER rather than LATER.

27/03/2024

Have you registered yet for this last virtual event of this grant cycle? Come and hear state team updates and reminisce over the years of work in the mountain states region.
More info here-

As many have heard by now, the MSRGN grant will be ending on 5/31/24 and will not be renewed. The regional genetics networks and Mountain States Genetics have had a presence in this region for the last 40 plus years. We invite all who have been a part of this era to join us in... Read More

20/03/2024

Did you read all about our February MSRGN updates in the PD Message? Have you checked your email for our March updates out this week?
All of our Newsletter archives can be found here-

News Messages From Project Directors: Kathryn Hassell and Janet Thomas (PD Message) 2024 Messages January 2024 February 2024 2023 Messages January 2023 February 2023 March 2023 April 2023 May 2023 June 2023 July 2023 August 2023 September 2023 October 2023 November 2023 December 2023 2022 Messages J...

18/03/2024

There is still time to REGISTER for our SUNSETTING Mountain States Event on April 11th. More details here:

As many have heard by now, the MSRGN grant will be ending on 5/31/24 and will not be renewed. The regional genetics networks and Mountain States Genetics have had a presence in this region for the last 40 plus years. We invite all who have been a part of this era to join us in... Read More

08/03/2024

Did you read our February newsletter, yet?
You can catch up on all that is going on in the Mountain States Region here-
https://www.mountainstatesgenetics.org/february-2024-project-directors-message/

(check out our cheesy "Mad-Libs" style love poem and find the link where you can make one of your own!)

Monthly, we will be posting our Project Directors’ Message so you can keep up to date with what is going on in MSRGN. If you would like to have this message delivered directly to your email on a monthly basis, please fill out this online form to subscribe to our newsletter. To read the February 20...

06/03/2024

Join us in helping to share this survey from our sister region- NERGN (New England Regional Genetics Network) about
Feel free to share this widely with families across our region and the country:

https://unh.az1.qualtrics.com/jfe/form/SV_3C07O1rr1YGpGPY

29/02/2024

Did you miss our Genetics Pop-Up for Rare Disease Day?
HOPE through SUPPORT

You can catch the replay here:

Rare Disease Day 2024Genetics Pop-Up Hope: Through SupportFeb. 22, 2024