06/12/2023
Admin Team
April, Lujuana, Angie Amber. They do a wonderful job keeping this page running!
We are in the process of starting a blog, and I will finally have books of poetry and Lupus and Me Merch for sale--most of the proceeds will go toward expenses of starting the Lupus and Me Foundation, which is going to do some really cool stuff! One thing is we will have a hotline that you can call and get to talk to a very inforrmed lupie about, your needs, and they will help you get them met, if possible. There will be other benefits. Will talk more about it.
I am a retired family nurse practitioner, and I have had Systemic Lupus for 34 years, along with Sjogren's Syndrome, Rheumatoid Arthritis, Antiphospholipid Syndrome, Celiac disease, Polymyositis, Diabetes, Common Variable Immunodeficiency, Autoimmune Hepatitis, Raynaud's Syndrome, and NMO, along with multiple of autoimmune disorders. I was recently diagnosed with ILD. I started this page in response to a very bad flare, in 2012, and I am very honest in my experiences. I hope that the page can be a source of awareness, connection, love, validation, and community for everyone here.
I write alot of poetry and share it frequently on here. I hope you enjoy it!
Hugs ❤️
Jenn Schoch, RN, MSN, FNP-BC, Retired
Resources:
http://www.lupus.org
http://www.butyoudontlooksick.com/
http://www.msfocus.org
http://www.arthritis.org
http://www.fmnetnews.com/
If you're new:
PLEASE read the info to understand what this page is about.
PLEASE bookmark this page so you can find it next time.
This is NOT a page for politics or political discussions.
NO ADVERTISING!
NO Spam!
NO Selling!
.
We also work to be a clearinghouse of referral and information for those affected by lupus (or suspected to have it).