Long Covid Collective

Long Covid Collective As Covid long haulers ourselves, we know the impact that chronic illness has on our health, relationships, and lives.

The Collective's resources, projects, and support community are here to help and connect you with people who know what it's like.

Join us tonight!! We are combining Happy Hour with Mardi Gras and Trivia! 🎉Hope to see you there! 💜💚💜Zoom link in bio!
02/11/2026

Join us tonight!! We are combining Happy Hour with Mardi Gras and Trivia! 🎉

Hope to see you there! đź’śđź’šđź’ś

Zoom link in bio!

When people say “I’m tired too,” they usually mean something real. Long days. Too much work. Not enough rest. Stressed o...
02/10/2026

When people say “I’m tired too,” they usually mean something real. Long days. Too much work. Not enough rest. Stressed out.

“Tired” covers a huge range of experiences. Some recover with sleep. Some don’t. Some wake up refueled. Some wake up and assess whether they can shower.

Same word. Different reality.

This post isn’t about who has it worse. It’s about why a phrase that feels harmless can land as dismissive.

Understanding the difference changes the conversation.

We are thrilled that included our Pen Pal program in their latest issue! If you haven’t seen it, the Winter 2026 editi...
02/10/2026

We are thrilled that included our Pen Pal program in their latest issue! If you haven’t seen it, the Winter 2026 edition is out now and submissions are open until mid-March to have your work included in the spring issue.

Also, in addition to the online editions, print copies of COPE are available. Purchasing one helps allay the costs of creating the publication.

Thank you for including our Pen Pal program!! I noticed we have some new members waiting for pen pals - we hope to have everyone assigned by tomorrow!

If you wake up and wait to see what your body will allow, this will sound familiar.Some days are measured in minutes.Som...
02/09/2026

If you wake up and wait to see what your body will allow, this will sound familiar.

Some days are measured in minutes.
Some in weeks you stop counting.

Nothing feels automatic anymore.

Next Wednesday the 11th is LCC Happy Hour! We’re mixing Mardi Gras + trivia with happy hour energy.You can play, listen,...
02/06/2026

Next Wednesday the 11th is LCC Happy Hour! We’re mixing Mardi Gras + trivia with happy hour energy.

You can play, listen, or just hang out.

All are welcome. Mardi Gras beads optional. Pajamas also respected.

See you there!

We’re launching a new podcast! The After is about what comes next after COVID. After diagnosis. After disbelief. After l...
02/05/2026

We’re launching a new podcast!

The After is about what comes next after COVID. After diagnosis. After disbelief. After life changes shape.

Our first episode features a conversation with W. Michael Brode, Medical Director of the UT Health Austin Post-COVID-19 Program.

An honest conversation about what clinicians are seeing and what patients are living with.

First episode coming soon.

There’s the version of you the world sees: The one who shows up, smiles, answers “I’m okay”even when you’re nowhere clos...
02/04/2026

There’s the version of you the world sees: The one who shows up, smiles, answers “I’m okay”even when you’re nowhere close.

And then there’s the version no one sees:
The one performing through pain,
through fear, through fatigue that doesn’t end.
The one narrating your own experience so others might believe it’s real.

Because when you’re chronically ill, the pressure to perform wellness becomes part of survival.

When you become your own surveillance camera,
rest becomes suspicion,and collapse feels like the only proof of honesty.

You shouldn’t have to fall apart just to be seen as telling the truth.

This is how a lot of people decide someone must be fine. They’re not trying to be cruel. They just don’t see the whole p...
02/03/2026

This is how a lot of people decide someone must be fine. They’re not trying to be cruel. They just don’t see the whole picture.

People with chronic illnesses don’t fake being sick. They fake being well.

Sometimes the most supportive thing you can do is resist the urge to fix.
02/02/2026

Sometimes the most supportive thing you can do is resist the urge to fix.

This is not a rom-com, and there is no dramatic turning point. These are the small, everyday moments that quietly erode ...
01/30/2026

This is not a rom-com, and there is no dramatic turning point. These are the small, everyday moments that quietly erode relationships when chronic illness is part of the picture.

There are no big fights or obvious villains, just a series of subtle moments that shift how someone feels seen and supported.

Most people do not mean to do these things. That does not make the impact any smaller.

“How are you?” seems a harmless thing to ask.But for a Chron, it means stopping a very careful internal balancing act to...
01/29/2026

“How are you?” seems a harmless thing to ask.

But for a Chron, it means stopping a very careful internal balancing act to run a full systems check in real time, decide if honesty is safe with this person, and pick an answer that won’t get misunderstood, minimized, repeated, or turned into a story about recovery.

So we say “I’m good.”
And somehow that turns into “better.”
Which turns into “well.”
Which turns into “cured.”

And now we’re explaining things we never said.

If you’ve ever needed a whole internal committee meeting to answer a greeting, you’re definitely not alone.

Chrons get it. And will likely respond to this with laughing emojis.

We came across a video describing certain environments where people consistently report feeling calmer, clearer, and mor...
01/28/2026

We came across a video describing certain environments where people consistently report feeling calmer, clearer, and more regulated. The explanation was not about mindset or effort, but about what the body has to process in different settings.

Across very different places, the same pattern shows up. These environments tend to be quieter, more predictable, and less demanding on the senses. When sensory input is reduced and conditions stay stable, the nervous system does not have to stay in constant response mode. That creates space for regulation to return closer to baseline.

We took that framework and looked for the closest environmental matches in and around Central Texas. Some of these places are accessible. Others are harder to replicate locally. We wanted to be honest about that.

This is not medical advice. These are observations about environments and physiology, shared because many people with chronic illness notice how powerfully place affects how their body feels.

Where is your favorite place to go for a reset?

Address

Austin, TX
78759

Website

https://www.zeffy.com/en-US/peer-to-peer/the-fall-collective-challenge--2025-2

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