Long Covid Collective

Long Covid Collective As Covid long haulers ourselves, we know the impact that chronic illness has on our health, relationships, and lives.

The Collective's resources, projects, and support community are here to help and connect you with people who know what it's like.

Long Covid, one symptom at a time.This is part of our ongoing series highlighting the over 200 symptoms associated with ...
04/23/2026

Long Covid, one symptom at a time.

This is part of our ongoing series highlighting the over 200 symptoms associated with Long Covid.

We are looking forward to meeting some of our members or newcomers to LCC this Sunday! This will be a casual hangout - f...
04/23/2026

We are looking forward to meeting some of our members or newcomers to LCC this Sunday! This will be a casual hangout - feel free to bring your pet!

We will be at this Sunday, April 26th from 10:00am to Noon. Look for people wearing black t-shirts with the LCC logo.

Can’t wait to meet you!

Before I got sick, I had lots of routine things I did that naturally regulated my nervous system. Long walks were the m...
04/23/2026

Before I got sick, I had lots of routine things I did that naturally regulated my nervous system. Long walks were the most intentional of these. That was my time to think and get ideas.

I was also a Meredith/Christina dance-it-out type. Oddly, I usually did it more to regulate too much joy rather than a negative emotion.

And then there’s the holy grail: cleaning house. Movement, the magic of changing the feel of a room with a vacuum and a dust rag, and then feeling accomplished in a clean space - 💯!

None of those are options for me now. I have to mourn the loss almost daily, but I also have to pivot and find other options.

I’m thinking about starting a series where we share the ways people are figuring this out. I see so many different approaches in this community.

Yesterday I bought a steel tongue drum. If I manage to learn a song, I may even post a video.

I would really love to hear what has helped you. Share in the comments. We may reach out and ask if you’d be willing to show others what you’ve found.

I learn more from people living this than I do from the experts.

Chronic illness gives you life experiences that do not connect with everyday vocabulary.Our “tired” is not their tired.O...
04/22/2026

Chronic illness gives you life experiences that do not connect with everyday vocabulary.

Our “tired” is not their tired.
Our “stress” is not their stress.
To say “I don’t feel like myself” is an understatement.

So each Wednesday, we add a few more words to the toolbox.

We source these words from medicine, psychology, and legal language.

If you enjoy learning new words, you are in good company here.

Save the ones that feel useful, and join us each Wednesday as we continue building the vocabulary.

Tell us which one feels most familiar to you.

04/21/2026

“Because we look young and we look healthy, people don’t really assume that we are struggling with something chronic like this.”

The After host Rachel Madison shares her own story and the reason we put together this episode - younger people with long Covid are often invisible in the chronic illness community. Watch or listen to the full podcast to hear about the unique challenges experienced by people just starting out their lives, only to find themselves starting over.

We’re excited to host our first in-person meetup for Long Covid Collective.Join us at Leona Botanical Cafe & Bar on Sund...
04/20/2026

We’re excited to host our first in-person meetup for Long Covid Collective.

Join us at Leona Botanical Cafe & Bar on Sunday, April 26 from 10:00 AM to noon.

Newcomers are especially welcome. We would love to meet you. This will be a relaxed, low-key gathering with no pressure to socialize more than you feel up to.

Look for people wearing black t-shirts with a white LCC logo. We will post our exact location on the property the day of.

We look forward to seeing you!

While we wait for Devil Wears Prada 2, Miranda Priestly is unexpectedly very relatable.
04/17/2026

While we wait for Devil Wears Prada 2, Miranda Priestly is unexpectedly very relatable.

I haven’t found the Instagram account for Bendy Bunny, but you can find her on Facebook with that name. Excellent accou...
04/16/2026

I haven’t found the Instagram account for Bendy Bunny, but you can find her on Facebook with that name. Excellent account!

Her quote likely lands with every chronically ill person. It’s difficult reconciling knowing that most people truly want to help with how it actually feels. It can feel like one more stressor or drain on our already depleted spoon drawers.
Sending a collective thank you to those who support by listening. None of us does this perfectly, but we can keep learning from each other. 💙

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Austin, TX
78759

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https://open.spotify.com/show/6ZK9Bnji1skRBDaKEgyYGO?si=cNb40IPRSkKI8lskqgm9Sg&nd=1&dls

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