National Pandas/Pans Youth Alliance

02/16/2026

For many with PANS/PANDAS, recovery can feel impossibly far away….

But listen to Emma share how she was able to ride a bike again for the first time in SEVEN YEARS! 🎉🫶

The road is often long, but don’t give up hope! We’re here for you every step of the way. 💚

02/01/2026

🚨CALL TO ACTION🚨
➡️We need to begin the conversation on the massive lack of support for students with PANS/PANDAS across the country
➡️While PANS/PANDAS is technically protected under chronic illness protocols in schools, it remains misunderstood by teachers and faculty who often deny access to much-needed accommodations (like 504 plans and IEPs)
➡️If you want to be apart of the solution, begin talking to your teachers and fellow students about PANS/PANDAS
➡️Join the National PANDAS/PANS Youth Alliance to begin advocacy work and give PANS/PANDAS students access to the school accommodations that they need!
➡️Nonprofits and advocates need to pay attention to this massive injustice‼️ Together we can change the state of public school policy to better support those living with PANS/PANDAS 💚💚💚

01/24/2026

Listen up to ’s AMAZING speech at the Texas Capitol on October 9th, 2025! 🗣️🗣️🗣️💚

Trent’s story is nothing short of incredible, and his resilience + commitment to advocacy are both truly outstanding.

We’re so grateful to have him in NPYA!

01/23/2026

‼️💚

📣 Missouri Families — We Need You 🔊

Missouri PANS PANDAS Coalition (MPPC) needs you to get involved today.

Progress is being made in Missouri, but real change only happens when legislators hear directly from the families they represent.

You don’t need to be an expert in policy or medicine.
You are the expert in your lived experience.

Your story matters. Your voice matters. And we’ll guide you every step of the way, always at your comfort level.

👉 Everything you need is right here:
🔗 https://aspire.care/featured/missouri-pans-pandas-updates

✅ CTA #1: Stay Connected

Help us reach you quickly and consistently when action is needed.

📝 Fill out the Missouri Contact Form:
🔗 https://aspire.care/featured/missouri-pans-pandas-contact-form/

🏛️ CTA #2: Contact Your Senator

Please reach out to your state senator, request an in-person or virtual meeting, or send a letter or email.

📌 Share:
• Your family’s story
• Why PANS/PANDAS care matters
• How lack of insurance-based care has impacted your child and family
• Ask them to support SB 1263 (Colton’s Law)

🗂️ Talking & writing points provided here:
🔗 https://aspire.care/blog/legislative-talking-writing-points/

Legislators expect to hear from constituents and your voice helps them understand what this looks like in real life.

💚 This is a marathon, not a sprint.
And change happens voice by voice, family by family.

12/24/2025

Need a last minute Holiday gift AND want to support a good cause?! 🎁💚 Check out NPYA’s Art Sale!

Select featured art work is created by PANS/PANDAS survivors such as Kate Landis! Link in bio

12/21/2025

Our FIRST EVER BOOK has been OFFICIALLY PUBLISHED! Check out the link below for access - it's all about how to get into PANS/PANDAS advocacy for youth. We cover everything from awareness proclamations to state-level insurance mandates to federal research funding advocacy and much more! The first 20 to buy our book ($10.00) will get their donation matched by an anonymous donor, so hurry!

https://www.nationalpandasyouthalliance.org/store/p/how-to-advocate-a-youth-survivors-guide-to-panspandas-advocacy

12/15/2025

Huge thank you to Jillian for showing us 10 ways she accommodates her daily life during a PANS flare!

What’s one accommodation or tip that helps you get through a PANS/PANDAS flare?
Comment below and let us know ⬇️

💚 Everyone’s symptoms can look different. This is one person’s lived experience, and as always, please consult a trusted healthcare provider before trying new accommodations.

12/10/2025

Let’s go Missouri!!! 💚