Robert Packard Center for ALS Research at Johns Hopkins

03/09/2026

This week, we're at the Muscular Dystrophy Association 2026 Clinical & Scientific Conference! We're looking forward to hearing exciting updates from our Packard Center-funded researchers and scientific advisors, and connecting with the patients, advocates, and partners who make this work meaningful. 💙

03/06/2026

The Packard Center is proud to be an official Charity Partner of for the on November 1, 2026.

Through this charity partnership, we are able to provide three selected athletes with the opportunity to participate in this iconic event, believe in every step, and support the Packard Center’s worldwide cutting-edge ALS by creating awareness and raising funds.

For more information on how to apply: www.packardcenter.org/NYC_Marathon

03/01/2026

We are kicking off the 26th Annual Packard Center ALS Research Sympsoium with a presentation from our partners Answer ALS. ignight- where the magic of collaboration meets the power of science

02/20/2026

We were saddened to hear about the passing of actor Eric Dane. In the year since he made his diagnosis public, he became an ALS warrior sharing his battle with the disease.

"Throughout his journey with ALS, Eric became a passionate advocate for awareness and research, determined to make a difference for others facing the same fight."

Eric Dane, the celebrated actor best known for his roles on "Grey's Anatomy" and "Euphoria" and who later in life became an advocate for ALS awareness, died Thursday. He was 53.

01/01/2026

Happy New Year from the staff and researchers at the Robert Packard Center.

12/31/2025

Today is the last day to make a tax-deductible gift in 2025 to support our ALS research efforts. This holiday season, please join us in investing in hope by making a gift to the Packard Center. All gifts made through January 31, 2026, will be matched dollar-for-dollar up to a total of $200,000 thanks to a grant from the family of Robert Packard. Double the impact of your donation today. To donate: www.packardcenter.org/donate

12/17/2025

This holiday season, please join us in investing in hope by making a gift to the Packard Center. All gifts made through January 31, 2026, will be matched dollar-for-dollar up to a total of $200,000 thanks to a grant from the family of Robert Packard.

To make a gift:https://packardcenter.org/give/

12/05/2025

The Packard Center team is attending the 36th Annual International Symposium on ALS/MND this weekend. This conference brings together researchers, clinicians, people living with ALS and advocates from all over the globe.

12/04/2025

Congratulations to Packard Center-funded investigator Jonathan Cooper-Knock who has become the first to be awarded a professorship named after the late rugby league player Rob Burrow.

Dr Johnathan Cooper-Knock, based at the University of Sheffield, has received the Professorship in Translational Neurobiology, which is funded by the Motor Neurone Disease (MND) Association

The award will fund his research into the condition for eight years, which he hopes will result in "at least one treatment in a clinical trial running [by 2028] and several more in the pipeline".

Read more:

The professorship will fund Dr Johnathan Cooper-Knock's research into MND for the next eight years.

12/02/2025

There is still time to make a gift this Giving Tuesday to support ALS research. The Robert Packard Center is 100% supported through philanthropy and donors like you make our progress possible in tackling this devastating disease.

The Packard family is extending a generous matching gift this holiday season. All gifts made through January 31, 2026, will be matched dollar-for-dollar up to a total of $200,000.

Your gift today will amplify hope - and go twice as far in the fight against ALS.

To donate: www.packardcenter.org/give

12/02/2025

This Giving Tuesday, please continue to invest in hope with a gift to support ALS research. Together, we will expand our understanding of this disease and learn how to stop it in its tracks.

In honor of the Packard Center’s 25th Anniversary, Robert Packard’s family is offering a generous match this holiday season. All gifts made through January 31, 2026 will be matched dollar-for dollar up to a total of $200,000.

To donate: https://secure.jhu.edu/form/PACKALS

11/27/2025

Happy Thanksgiving from the Packard Center!

During this special time of year, it is important to pause and reflect on those things that are most meaningful to us. At the Robert Packard Center for ALS Research at Johns Hopkins, we are grateful for our dedicated community of supporters and partners.

Your contributions enable our global network of researchers to continue their innovative projects in an effort to end ALS.
You make our progress possible.

The critical work of the Packard Center is supported 100% through philanthropy. The Packard Center and people living with ALS need your help to continue our fight to end ALS.

Thanks to your generosity, projects that are being funded today will directly advance our fundamental understanding of ALS.