Nate's Story: "One Boy, an Ocean of Friends"

Nate's Story: "One Boy, an Ocean of Friends" Nathaniel was born with a Genetic/Orphan Disorder. It effects the 2nd chromosome ~ 2p.23.3 ~POMC "P.O.M.C." It can lead to several life threatening complications.

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Nate has a Rare 'Orphan' Genetic disorder called Proopiomelanocortin deficiency aka. Nate deals with:
1)Hyperphagia (insatiable HUNGER) *A LIFE THREATENING ISSUE
2)Hypothyroidism *A LIFE THREATENING ISSUE
3)Adrenal Insufficiency *A LIFE THREATENING ISSUE
4)Hypothalamic Disorder *A LIFE THREATENING ISSUE
5) Hypotonia~Low muscle tone
6) Developmental Delays
7) Increased linear growth (he is tall and big)
8) Anterior/Posterior Pituitary Disorder
9) PDD/NOS~ Many Autistic tendencies
10) Sensory Processing Disorder (SPD)
11) Low metabolism~ his diet must be 60% less than the average
12) Severe Obstructive Sleep Apnea (OSA)
13) Megalencephaly
14) Trichotillomania
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You can go to our National website www.facebook.com/P.O.M.C.Island

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“There! That’s better!!! Who needs maths anyway?!?” 🦮 🐠
11/06/2025

“There! That’s better!!! Who needs maths anyway?!?” 🦮 🐠

Bowtie says……“Watching “The Boy” doing his schoolwork when he should be playing with me is BS!” 🦮
11/06/2025

Bowtie says……“Watching “The Boy” doing his schoolwork when he should be playing with me is BS!” 🦮

Sleep study appointment
11/04/2025

Sleep study appointment

This math problem keeps challenging Nate. Each time he gets it and ones similar wrong we look it up and work through it ...
11/02/2025

This math problem keeps challenging Nate. Each time he gets it and ones similar wrong we look it up and work through it together and he still gets it wrong the next time it comes up. Does anyone have a trick to remember the formula? 🐠

11/02/2025
11/02/2025
11/02/2025
11/02/2025
Nate has always liked ice in his water. I couldn’t tell you how much ice he goes through each day. A lot! Up until yeste...
11/02/2025

Nate has always liked ice in his water. I couldn’t tell you how much ice he goes through each day. A lot! Up until yesterday I was up to me to fill his water cup/jug I was talking to two friends yesterday and when i said I had to go get him some ice, they asked why he didn’t do it himself. It’s because our ice bucket is metal and quite cold for him, they suggested him using gloves or hot hotmitts etc…when I had a brainstorm of putting a knit hat into the bucket. And violá it works!! Our goals for this year are all centered on him being able to do more things on his own. This is just ONE MORE STEP in that direction. It may not seem huge. But it is!

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Bennington Avenue
Bennington, VT

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