Sarcoma Foundation of America, Inc.

Sarcoma Foundation of America, Inc. The official page for the Sarcoma Foundation of America located in Bethesda, Maryland. SFA is the first line resource for all things sarcoma.

SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors. We do this by funding and advancing research, educating and providing resources for people diagnosed with sarcoma, advocating on behalf of the sarcoma community, bringing together the collective sarcoma voice, and growing awareness about the disease.

National Adolescent and Young Adult (AYA) Week is April 5–11. Your story has the power to inspire, connect, and bring ho...
03/13/2026

National Adolescent and Young Adult (AYA) Week is April 5–11. Your story has the power to inspire, connect, and bring hope to someone else facing sarcoma.

We invite you to share your journey and be featured on the Patient Stories page of our website. By telling your story, you help others feel less alone and remind our community that there is understanding, support, and a community standing beside them.

Submit your story: https://curesarcoma.org/support-resources/sarcoma-patient-stories/share-your-story/

03/12/2026

A huge thank you to our Austin RTCS sponsors!

Your partnership helps bring our community together and fuels critical research, advocacy, and support for patients and families facing sarcoma. We are grateful for your commitment to the sarcoma community and for helping make this event possible.

On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became ...
03/12/2026

On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her late father, Hardin, was diagnosed with sarcoma after already being diagnosed with breast cancer.

Simone shares what it was like to support her father as a care partner alongside her mother while navigating a rare cancer diagnosis. Shortly after his diagnosis, Simone herself was diagnosed with Hodgkin’s lymphoma. She reflects on the stark differences between her own treatment options and those available to her father, and why advocacy and research in the sarcoma space are so critical.

Listen wherever you get podcasts!

Join us for Part 2 of our "Live with the Experts" series on circulating tumor DNA (ctDNA) in sarcoma on Wednesday, March...
03/11/2026

Join us for Part 2 of our "Live with the Experts" series on circulating tumor DNA (ctDNA) in sarcoma on Wednesday, March 25, 2026, at 1:00 PM ET. Building on our first session, An Introduction to ctDNA in Sarcoma, this webinar takes the conversation a step further and highlights new research, practical considerations, and the real-world questions patients and clinicians are navigating today.

Register: https://us06web.zoom.us/webinar/register/WN_BVGsNx-0SgOUlDObtw041A #/registration

03/10/2026

Compassionate Care Award Nominations Close TOMORROW!

Your voice can help drive change for the sarcoma community. Join our upcoming information session to learn more about Ad...
03/10/2026

Your voice can help drive change for the sarcoma community. Join our upcoming information session to learn more about Advocacy Weekend in Washington, D.C. this July.

During this session, you’ll hear what to expect during the 3-day event and how sharing your story and speaking up can help advance sarcoma research and improve care for patients and families.

Register: https://buff.ly/18iqJvP

The March Sarcoma Spotlight newsletter is here!This issue features updates on upcoming Race to Cure Sarcoma events, info...
03/09/2026

The March Sarcoma Spotlight newsletter is here!

This issue features updates on upcoming Race to Cure Sarcoma events, information about upcoming webinars, SFA resources, and more!

Read the March newsletter to stay up to date on the latest research and community news.

Read here: https://buff.ly/xqV3QGG

Katie participates in RTCS Austin in honor of her mother.  Before I ever signed up for a race, I walked beside my mother...
03/06/2026

Katie participates in RTCS Austin in honor of her mother.

Before I ever signed up for a race, I walked beside my mother through the fight of her life. The Sarcoma Foundation of America Race for the Cure in Austin is more than an event to me — it is a tribute to my mother, Donna. In 2018, she was diagnosed with an atypical fibrohistocytic neoplasm with necrosis — a rare cancer that would quietly change the course of our lives. After treatment, she was declared cancer-free. We were told there was only a 0.01% chance it would return after five years of remission.

But in April 2023, that unlikely became our reality. Donna was diagnosed with high-grade (G-3), stage 4 sarcoma in her lungs, and the fight became urgent. Because of the rarity of her recurrence, she was accepted into a clinical rial in Los Angeles, California. When heart complications began, she was transferred to another clinical trial in Texas, allowing her to continue fighting while being closer to home.

In January 2025, she reached 90 days of remission — a milestone that gave us hope. However, the battle ultimately proved too much for her earthly body. On March 4, 2025, she went to be with her Lord and Savior. To honor her fight, I joined the committee with SFA to help bring the Race for the Cure to Austin. Walking this race alongside my family and friends is how I carry her forward. Sarcoma may have altered her story, but it did not define my mother — her courage did. Every step I take is for her, for the love she poured into our family, and for the hope that continued research and awareness will change the future for another family facing this diagnosis.

Join Katie and others impacted by sarcoma at RTCS Austin on March 21!

Register here: https://buff.ly/3qrYPjF

Cancer in children is NOT the same as cancer in adults. That's why new guidelines specifically focused on pediatric canc...
03/05/2026

Cancer in children is NOT the same as cancer in adults. That's why new guidelines specifically focused on pediatric cancer are so important. The National Comprehensive Cancer Network (NCCN) just published new guidelines for pediatric rhabdomyosarcoma, the most common soft tissue sarcoma in children, helping doctors across the country provide the best possible care to some of their youngest patients.

Read the full news release: https://www.nccn.org/home/news/newsdetails?NewsId=5421

At Race to Cure Sarcoma events, we come together to honor every life touched by sarcoma and to turn remembrance into act...
03/04/2026

At Race to Cure Sarcoma events, we come together to honor every life touched by sarcoma and to turn remembrance into action. Every participant, every team, and every dollar raised moves us closer to new treatments and better outcomes. Join a race near you and help drive progress.

New study on drug combination for advanced sarcoma Researchers tested cabozantinib plus temozolomide in 72 patients with...
03/03/2026

New study on drug combination for advanced sarcoma

Researchers tested cabozantinib plus temozolomide in 72 patients with advanced soft tissue sarcoma who had limited treatment options.

What they found:
-74% of leiomyosarcoma patients had no disease progression at 12 weeks
-Side effects were manageable with no new safety concerns
-48% of leiomyosarcoma patients and 77% of other sarcoma patients had died by study end due to disease progression

More research is needed, but these early results offer hope for patients who need new treatment options. Read the full study here: https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(25)00654-0/abstract

03/02/2026

Compassionate Care Award nominations are closing soon!

Nominate a nurse, community health worker, or social worker for their meaningful contributions to patient care, support, and education. If you know a navigator who has made a positive impact on patients and families affected by sarcoma, submit a nomination by March 11.

The selected honoree will be recognized at the 2026 Stand Up to Sarcoma Gala in New York City on October 6, 2026.

Learn more about the award and submit a nomination: https://curesarcoma.org/compassionate-care-award/

Address

7700 Wisconsin Avenue, Suite 310
Damascus, MD
20814

Telephone

(301) 253-8687

Website

https://www.facebook.com/RacetoCureSarcoma, https://www.facebook.com/groups/134291333975877

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