Sarcoma Foundation of America, Inc.

Sarcoma Foundation of America, Inc. The official page for the Sarcoma Foundation of America located in Bethesda, Maryland. SFA is the first line resource for all things sarcoma.

SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors. We do this by funding and advancing research, educating and providing resources for people diagnosed with sarcoma, advocating on behalf of the sarcoma community, bringing together the collective sarcoma voice, and growing awareness about the disease.

01/26/2026

The FDA has granted Breakthrough Therapy Designation to bezuclastinib in combination with sunitinib for patients with Gastrointestinal Stromal Tumors (GIST).

What does this mean? It means this new therapy has shown potential for substantial improvement in early trials, and the FDA will work closely with the sponsors to speed up its development.

Learn more about this development: https://investors.cogentbio.com/news-releases/news-release-details/cogent-biosciences-announces-breakthrough-therapy-designation

As the leading private funder of research in the sarcoma community, it is our mission to advance more and less toxic tre...
01/26/2026

As the leading private funder of research in the sarcoma community, it is our mission to advance more and less toxic treatment options for sarcoma patients. Central to this is ensuring patients have access to clinical trials. This program, in partnership with Jordan’s Dream Fund, helps cover out-of-pocket expenses for sarcoma patients participating in clinical trials.

Jordan’s Dream Fund was established in 2017 in memory of 28-year-old Jordan Andrew Singer, a patient with epithelioid sarcoma. Singer befriended other sarcoma patients, many who did not have the financial resources to participate in clinical trials. This realization led to the formation of Jordan’s Dream Fund.

For more information: https://curesarcoma.org/support-resources/jordans-dream-fund-for-clinical-trials/

Good luck today to John Franklin-Myers and the Denver Broncos as they take on the Patriots in the AFC Championship! John...
01/25/2026

Good luck today to John Franklin-Myers and the Denver Broncos as they take on the Patriots in the AFC Championship!

John has served as an awareness ambassador for SFA since 2022, honoring the legacy of his late grandfather, Billy Ray. During the 2025 regular season, he donated $7,500 to SFA—with the Broncos matching his gift—for a total impact of $15,000.

Read more about his commitment here: https://curesarcoma.org/john-franklin-myers-donating-1000-to-the-sarcoma-foundation-of-america-for-every-sack-this-season/

Snowed in this weekend? Stay cozy indoors and catch up on the Sarcoma Stories podcast, where patients and care partners ...
01/23/2026

Snowed in this weekend? Stay cozy indoors and catch up on the Sarcoma Stories podcast, where patients and care partners share their experiences with . Follow and turn on notifications so you don’t miss any episodes!

Listen to our newest episode here: https://rss.com/podcasts/sfasarcomastories/2450075

SFA is proud to launch Sarcoma Match, our new mentorship program powered by Imerman Angels, a nonprofit organization tha...
01/22/2026

SFA is proud to launch Sarcoma Match, our new mentorship program powered by Imerman Angels, a nonprofit organization that connects those affected by cancer for one-on-one support. Through this partnership, we are working to reduce isolation and foster meaningful connections through shared experiences so that every person impacted by sarcoma has someone to turn to. Sarcoma Match is open to anyone affected by sarcoma hoping to connect with someone who has faced a similar diagnosis or circumstance and can offer empathy, guidance, and hope.

We are currently accepting mentor applications, with mentee applications opening soon.

More information: https://curesarcoma.org/support-resources/sarcoma-match/

Only three weeks left to register for RTCS South Florida! This year, an estimated 17,370 people in the U.S. will be diag...
01/21/2026

Only three weeks left to register for RTCS South Florida! This year, an estimated 17,370 people in the U.S. will be diagnosed with sarcoma. For this rare cancer, hope comes from action. Every step and every dollar brings hope to patients and families, and thanks to your support, we’re moving closer to our $35,000 goal to advance sarcoma research.

Register Here: https://runsignup.com/Race/FL/FortLauderdale/RacetoCureSarcomaSouthFlorida

New results from Italian Sarcoma Group trial (TOMAS2)Italian researchers tested a 2-drug combo, trabectedin and olaparib...
01/20/2026

New results from Italian Sarcoma Group trial (TOMAS2)

Italian researchers tested a 2-drug combo, trabectedin and olaparib, in 130 patients whose cancer had grown despite standard chemo.

What they found:
- The combo worked better, tumors stayed stable longer (3.9 months vs 2.9 months)
- More patients responded to treatment (12.7% vs 7.9%)
- For uterine leiomyosarcoma: 43% on the combo had no tumor growth at 1 year vs 0% on chemo alone
- A protein test (PARP) may help doctors predict who will benefit most

This combo could be especially valuable for uterine leiomyosarcoma patients, and PARP expression testing might help personalize treatment. More research is needed, but these are encouraging results for hard-to-treat cancers. Read the full study:
https://www.annalsofoncology.org/article/S0923-7534(25)06314-8/fulltext

Honoring Care Partners: Reflections From the Sarcoma Community. Jody’s son, Parker, was nine when he was diagnosed with ...
01/15/2026

Honoring Care Partners: Reflections From the Sarcoma Community.

Jody’s son, Parker, was nine when he was diagnosed with Ewing’s sarcoma.

During treatment, Jody and her family held tightly to normalcy, needing the comfort of ordinary routines. They decided to start a simple tradition – drawing a holiday from a hat and celebrating it that day – reminding them that joy belongs to the moment you’re in, not the date on the calendar.

At thirteen, Parker passed away. Through Parker, Jody learned that grief doesn’t have to be carried in silence and that speaking pain out loud can connect and strengthen those who are hurting.

Read Jody's full tribute to Parker in our January newsletter.
https://curesarcoma.org/wp-content/uploads/2026/01/Sarcoma-Spotlight-January-2026.pdf

Sarcoma Stories is joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receivin...
01/13/2026

Sarcoma Stories is joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second opinion—one decision that ultimately led to an accurate MPNST diagnosis and life-saving care. This conversation is a powerful reminder of the importance of self-advocacy, especially within rare cancer spaces like the sarcoma community.

Listen to the episode: https://rss.com/podcasts/sfasarcomastories/2450075

Address

7700 Wisconsin Avenue, Suite 310
Damascus, MD
20814

Telephone

(301) 253-8687

Website

https://www.facebook.com/RacetoCureSarcoma, https://www.facebook.com/groups/134291333975877

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