United By Lyme

United By Lyme A community for Lyme warriors. Sharing my experiences in hopes that they make your battle less scary.

Lyme disease is a serious illness. When left untreated, it will have serious consequences. We need to be seen, we need t...
11/12/2025

Lyme disease is a serious illness. When left untreated, it will have serious consequences. We need to be seen, we need to be heard. It shouldn't be this hard to get diagnosed and treated properly.

11/08/2025

Things to remember:
Bad days don't last.
You're stronger than you think.
Small steps are progress.



Healing Hearts
Live Love Laugh

Good morning Lymies, I'm so thankful you're all here! I hope you can find something, anything, to celebrate today!
11/03/2025

Good morning Lymies, I'm so thankful you're all here! I hope you can find something, anything, to celebrate today!

Herxing is one of those unfortunate, and mostly unavoidable, side effects of treating Lyme disease. Knowing ahead of tim...
10/30/2025

Herxing is one of those unfortunate, and mostly unavoidable, side effects of treating Lyme disease. Knowing ahead of time what you're in for can soften the blow. I'm not saying it will make it easier, but maybe a little less frightening.

Herxing. It’s a strange word. Even saying it out loud sounds scary... Herxing. Yuck! It certainly doesn’t sound pleasant. When my doctor first warned to look out for herxing my...

When you feel horrible more often than not it's easy to miss the progress that you're making. Is it possible that your w...
10/30/2025

When you feel horrible more often than not it's easy to miss the progress that you're making. Is it possible that your word recall is better? Is it possible that you haven't noticed that when you stand up you no longer feel like you're going to faint? Were you able to walk a little further today and actually enjoy the scenery? Has the ringing in your ears subsided? Do you feel comfortable taking a shower alone again? Do you look yourself in the mirror again? These are all small wins worthy of celebration. Write them down in your journal so the next time you're having a horrible day you can look back and see that it is getting better, even if by teeny tiny increments. You're on the path to healing, never forget that!

10/27/2025
10/27/2025

Even without illness, the world is feeling very heavy right now. I have to remind myself from time to time, that it's okay to laugh, to seek joy and happiness. So, here's your reminder to find a little silly in your life, allow yourself to smile and maybe even laugh a little.

If you haven't checked out Generation Lyme yet, you should. Your mental health during treatment is just as important as ...
10/20/2025

If you haven't checked out Generation Lyme yet, you should. Your mental health during treatment is just as important as your physical health. Generation Lyme is here for the patients, offering online meet-ups, podcasts and more. Meet-ups are a great way to get some peer to peer support during your journey towards healing.

This morning I was inspired by a Global Lyme Alliance post discussing 5 Things to Remember When Healing from Lyme. Their...
10/20/2025

This morning I was inspired by a Global Lyme Alliance post discussing 5 Things to Remember When Healing from Lyme. Their number one thing to remember is that Progress is not Linear. This really struck a chord for me. That was one of the hardest things for me when I was in treatment. First, it took way longer than I ever thought possible. Second, symptoms would clear up only to re-emerge again at a later time. Because of this, from time to time, it was frustrating and very difficult to keep up my resilience. But, I soldiered on, and most importantly, I did get better. And so will you, just keep fighting!!!

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