Team kinley

Team kinley Navagating kinleys journey with castleman disease, getting her to a specialist out of state all while spreading awareness of her extremly rare disease. 

Girls day quickly turned into er visit. We have been in here over 5 hours now. She said it felt like you were ripping he...
03/29/2026

Girls day quickly turned into er visit. We have been in here over 5 hours now. She said it felt like you were ripping her heart apart. She is very dizzy regardless of sitting standing or laying down. EKG, xray, bloodwork fluids nose swabs done. Waiting on cardiology to come see her. She has costochondritis. They have tested for mono and did a pots work up. Praying she is okay and gets to go home soon. We are both exhausted and hungry. I HAVE to work tomorrow I can’t afford to miss it. Please send her all the good vibes and prayers and love you can.

Currently Kinley is the only kiddo known to have Castleman's in Oklahoma right now and only the second person in the sta...
02/28/2026

Currently Kinley is the only kiddo known to have Castleman's in Oklahoma right now and only the second person in the state with a current diagnosis, I guess she took being called special literally, lol.

How's your Saturday going? Pumping fluids and steroids into this silly girl, hoping we only cross paths with the quick c...
01/31/2026

How's your Saturday going? Pumping fluids and steroids into this silly girl, hoping we only cross paths with the quick care squad today and not the hospital peeps!

01/09/2026

As the search for 12-year-old RJ Davis continues, the OSBI is now offering a $5,000 reward for anyone who can confirm RJ’s location, leading to his safe return.

RJ was last seen on January 2, 2026, near Fourth Street and Grand Avenue in Chickasha, Oklahoma.

Anyone with information is asked to contact the OSBI tip line at tips@osbi.ok.gov or 1-800-522-8017.

Lil miss has said this so many times over the last year. 😫. She wants to feel supported not told she is lazy or that she...
01/01/2026

Lil miss has said this so many times over the last year. 😫. She wants to feel supported not told she is lazy or that she needs to change xyz in her routine….specially from the ones that have zero clue about what she feels inside. She isn’t lazy her mind wants to run play sports go here and there but her body says not today. Her body is exhausted while her mind wants to be 13 years old. She may wake up full of energy and the act of getting dressed may be just enough to exhausted her body. She isn’t lazy. She isn’t gaining weight. She isn’t eating too much too little or all junk. She is sick. She is exhausted. She is mentally ready to be a kid but physically unable to. Be kind. Give grace. Don’t assume!

12/30/2025

She is home. They were wanting to admit her but she said absolutely not not this time. Ended up being another migraine 😫. Doc gave her cocktail of meds this time to take home just incase she needs it again.

We are in the Er tonight. Within seconds of seeing floaters she lost vision in one eye and within 10 minutes the second ...
12/30/2025

We are in the Er tonight. Within seconds of seeing floaters she lost vision in one eye and within 10 minutes the second eye was losing vision as well. Now she is violently throwing up, can’t see anything but shadows, and extremely hot. She needs some prayers asap!

It's been a wild week prepping for Christmas. We hosted our own mini holiday party at home tonight and will do the famil...
12/25/2025

It's been a wild week prepping for Christmas. We hosted our own mini holiday party at home tonight and will do the family thing tomorrow, all because Kinley just couldn't contain her excitement for that vanity. Wish papa good luck as he tries to assemble it while she drives him totally bonkers 🤪

12/18/2025

Little miss is home, and that's a blessing. Everything went smoothly, and we're grateful. No answer yet, but we're staying positive as we await the biopsy results.

Showtime is almost here. She's feeling like a nervous wreck this morning and is totally starving to death she claims. We...
12/18/2025

Showtime is almost here. She's feeling like a nervous wreck this morning and is totally starving to death she claims. Weirdly, she wasn't freaked out for the other surgeries so I'm not sure what's going on this time around. Anyway send her some prayers, good thoughts and vibes and all that stuff!

12/17/2025

Just got the call surgery is tomorrow! They couldn’t get a OR spot today but we will take tomorrow!

12/17/2025

This page is all about kinley but occasionally we gotta throw in the other kiddos too. We have had 2 hospital stays this year one for kinley and one for big brother Levi. We have had 2 surgeries one for kinley and one for big sister Haley. We have milestone birthdays for all of them …they are 18,18,16,15,13. We had a graduation party for the other Haylee which is Levi’s gf. We have had Er visits, roof blown apart x2, job losses, water tank issues, a/c issues, new jobs, family time, hard family time (my daddy-o had to have heart surgery), holiday celebrations, concerts and lots of laughs and tears along the way. 2025 has been a tough one and I’m sooooo ready for it be over with.

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Blanchard, OK
73010

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