Team kinley

01/09/2026

As the search for 12-year-old RJ Davis continues, the OSBI is now offering a $5,000 reward for anyone who can confirm RJ’s location, leading to his safe return.

RJ was last seen on January 2, 2026, near Fourth Street and Grand Avenue in Chickasha, Oklahoma.

Anyone with information is asked to contact the OSBI tip line at tips@osbi.ok.gov or 1-800-522-8017.

01/01/2026

Lil miss has said this so many times over the last year. 😫. She wants to feel supported not told she is lazy or that she needs to change xyz in her routine….specially from the ones that have zero clue about what she feels inside. She isn’t lazy her mind wants to run play sports go here and there but her body says not today. Her body is exhausted while her mind wants to be 13 years old. She may wake up full of energy and the act of getting dressed may be just enough to exhausted her body. She isn’t lazy. She isn’t gaining weight. She isn’t eating too much too little or all junk. She is sick. She is exhausted. She is mentally ready to be a kid but physically unable to. Be kind. Give grace. Don’t assume!

12/30/2025

She is home. They were wanting to admit her but she said absolutely not not this time. Ended up being another migraine 😫. Doc gave her cocktail of meds this time to take home just incase she needs it again.

12/30/2025

We are in the Er tonight. Within seconds of seeing floaters she lost vision in one eye and within 10 minutes the second eye was losing vision as well. Now she is violently throwing up, can’t see anything but shadows, and extremely hot. She needs some prayers asap!

12/25/2025

It's been a wild week prepping for Christmas. We hosted our own mini holiday party at home tonight and will do the family thing tomorrow, all because Kinley just couldn't contain her excitement for that vanity. Wish papa good luck as he tries to assemble it while she drives him totally bonkers 🤪

12/18/2025

Little miss is home, and that's a blessing. Everything went smoothly, and we're grateful. No answer yet, but we're staying positive as we await the biopsy results.

12/18/2025

Showtime is almost here. She's feeling like a nervous wreck this morning and is totally starving to death she claims. Weirdly, she wasn't freaked out for the other surgeries so I'm not sure what's going on this time around. Anyway send her some prayers, good thoughts and vibes and all that stuff!

12/17/2025

Just got the call surgery is tomorrow! They couldn’t get a OR spot today but we will take tomorrow!

12/17/2025

This page is all about kinley but occasionally we gotta throw in the other kiddos too. We have had 2 hospital stays this year one for kinley and one for big brother Levi. We have had 2 surgeries one for kinley and one for big sister Haley. We have milestone birthdays for all of them …they are 18,18,16,15,13. We had a graduation party for the other Haylee which is Levi’s gf. We have had Er visits, roof blown apart x2, job losses, water tank issues, a/c issues, new jobs, family time, hard family time (my daddy-o had to have heart surgery), holiday celebrations, concerts and lots of laughs and tears along the way. 2025 has been a tough one and I’m sooooo ready for it be over with.

12/15/2025

What was supposed to be a simple follow-up appointment with the GI doc turned into a full-on medical circus - she's getting upper and lower scopes done on Wednesday morning if they can score an OR spot, because why not at this point. A slight belly tap makes her squirm in agony, and honestly, I'm surprised she doesn't have a frequent flyer card to the hospital yet. She's already done the CT scan, ultrasound, blood work, and nuclear medicine test, so this is the last hurrah to figure out what's going on. If they still can't find the problem, we're back to square one, and I'll have to start selling my organs on the black market to pay for all these tests. On the bright side, she finally caved and accepted some pain meds, because let's be real, she's earned it. I'm at my wit's end, and if this doesn't yield some answers, I'll be stumped, and we'll have to start calling her the medical mystery woman. This whole ordeal is making it painfully clear that we need to get her to a Castleman specialist out of state, pronto, or we'll have to start a GoFundMe just to pay for all the gas money.

12/14/2025

My name is Kinley, and I am 13 years old. Over the last year, my life has changed in ways no child should ever have to experience.

In September 2024, doctors discovered a golf-ball-sized tumor in my pelvis. That tumor was surgically removed, but it was only the beginning of a long, painful journey. I was diagnosed with Castleman disease, a rare and serious condition that very few doctors are trained to treat.

Since the tumor was found, I have been hospitalized twice and have endured more than 100 doctor visits. I’ve had countless blood tests, multiple CT scans, a PET scan, ultrasounds, an MIBG scan, nuclear medicine scans, and two surgeries. For over a year, I’ve lived with constant pain—far more than any child should ever have to bear.

I experience severe pelvic pain, pain while using the bathroom, and episodes of peeing blood. I deal with internal itching that can’t be seen but never goes away. I have night sweats and extreme fatigue, often sleeping more than 14 hours a day just to get through life. Being a normal kid—going to school, spending time with friends, enjoying childhood—has become incredibly difficult.

We have exhausted every doctor and specialist available in Oklahoma. Sadly, there are no Castleman disease specialists in our state. Despite doing everything we can locally, we’ve reached a point where we need specialized care that simply isn’t available here.

The closest Castleman disease specialist is out of state, more than 8 hours away. Traveling for care means additional medical expenses, transportation costs, lodging, time off work, and ongoing treatment needs. This is not optional care—it is necessary for my health, my future, and my chance at living without constant pain.

We are asking for help to get me to the specialized care I desperately need. Every donation—no matter the size—brings us one step closer to answers, proper treatment, and hope. If you’re unable to donate, sharing my story means more than you know.

Thank you for taking the time to read my story, for your kindness, and for helping a 13-year-old girl fight a disease no child should have to face.

With gratitude,

A Beacon of Hope for Kinley Kinley's courageous battle against … Stephanie Ward needs your support for Send kinley to Houston for castleman disease treatment

12/12/2025