11/18/2025
NTSAD has received the largest single gift in its 68-year history — a $1 million contribution from the Cameron and Hayden Lord Foundation. The surprise announcement, made Thursday, November 6, at NTSAD’s Imagine & Believe fundraising event at the Hyatt Regency Cambridge, brought the more than 150 supporters and families in attendance to their feet for multiple standing ovations and moved many to tears.
The donation will accelerate NTSAD’s research mission and serve as a leadership gift to help launch a major fundraising campaign in celebration of the organization’s upcoming 70th anniversary. The campaign, which will be launched in early 2026, will strengthen NTSAD’s ability to invest in promising science while expanding support for families living with Tay-Sachs and related genetic diseases.
“In the early days, NTSAD was the only place we could breathe,” said Alison Lord. “It was the community that helped us survive—and ultimately helped us find purpose. Supporting NTSAD’s research mission through our foundation feels like the most meaningful way to honor Hayden and Cameron’s lives."
Blyth Lord added, “This is about continuing the ripple effect of our children’s lives. They taught us about love, courage, and connection. With this gift, we hope to help accelerate progress toward the cures that families have waited for far too long.”
“The story of the Lords reminds us what love and perseverance can build,” Flynn said. “Cameron and Hayden’s light continues to guide us—and because of this extraordinary gift, that light will shine even brighter.”
