IgG4ward

11/20/2025

One father. Three young boys. Fifteen months searching for answers.

In our newest video, Andrew Provencher shares how a devastating accident uncovered a far more serious, hidden illness: IgG4-related disease (IgG4-RD).

This rare disease is often missed — and families can spend months or years searching for the right diagnosis.
Andrew’s journey shows exactly why awareness matters… and why earlier recognition changes lives.

💙 This Giving Season, your donation will be DOUBLED through December 31. A generous donor is matching all gifts up to $150,000.

Watch Andrew’s story, then read the full blog and learn how your gift can Double the Hope for families like his:
https://igg4ward.org/igg4ward-educational-resources/igg4-rd-patient-story-double-the-hope/

11/18/2025

How do you know if IgG4-RD is active?

This is a common question we hear from the community, therefore we added it to our IgG4ward! PeachJAM Agenda.

In this PeachJAM clip, Dr. Matt Baker from Stanford uses a powerful sports analogy to break down why monitoring IgG4-RD is never one-size-fits-all. Every patient, every organ system, every flare—different rules, different “signals,” different steps.

Watch the clip, then dive into the full video & full blog here: https://igg4ward.org/igg4ward-educational-resources/igg4rd-disease-activity-peachjam/

11/13/2025

“I felt like… this is still a new disease, and we don’t know enough. The least I could do was be part of it.”

In this short clip from the IgG4ward! PeachJAM panel on clinical trial participation, hear from patients share why they chose to join research — and how being cared for by a team that truly understands IgG4-RD brought reassurance and hope.

Click the link below to:
• Watch the full session
• Read the blog
🔗 https://bit.ly/4qTh0Zz

11/11/2025

Happy 2nd Birthday IgG4ward! Foundation 🥳

Today marks two years since we launched the IgG4ward! Foundation, the first organization dedicated entirely to supporting people living with IgG4-related disease (IgG4-RD), their caregivers, and the clinicians who care for them.

To reflect on how far we’ve come — and the work still ahead — Dr. John Stone, leading expert in IgG4-RD and Executive Chairman of the Foundation, and Katharine Provencher, Director of Advocacy and caregiver, sat down in the historic Ether Dome at Massachusetts General Hospital for a meaningful conversation about the disease, the journey, and why education and community matter so deeply.

Read the full message here:
https://bit.ly/49Mj8vS

Between now and December 31, all donations to IgG4ward! are being matched 1-to-1 (up to $150,000) as part of our Double the Hope campaign. Your support helps move hope forward — one family, one clinic, one conversation at a time.
Please Donate Here: https: https://bit.ly/4nOyaVc

11/06/2025

📣 New PeachJAM Video Release: Avoiding Side Effects in IgG4-related disease (IgG4-RD)

In this breakout session, Dr. John Stone discusses how to use B-cell depletion therapy safely while reducing the risk of side effects and supporting long-term remission.

Topics include:
• Vaccine timing
• Shingles & hepatitis B prevention
• Routine lab monitoring
• Approaches to tapering prednisone
• Understanding when retreatment may be needed

This highlight is taken from the live Q&A portion of the breakout discussion, where Dr. Stone responded directly to participant questions.

Watch the full discussion + read the recap:
https://bit.ly/47GaUmq

11/04/2025

Some moments stay with you long after a conference ends. 💙

At American College of Rheumatology (ACR) Convergence 2025, the IgG4ward! Foundation saw how far awareness of IgG4-RD has come — from Dr. John Stone’s delivery of the prestigious Philip Hench, MD, Memorial Lecture to countless conversations at our booth.

These two words, etched into a Chicago sidewalk, said it all: MANAGE. HOPE.
✨ Read more about the reflection behind these two words — and what they mean for the IgG4-RD community — in our latest blog post.

🎥 Watch this 20-second glimpse below, then visit our blog to see the full 90-second highlight reel and reflection on this extraordinary week ⬇️
🔗 https://bit.ly/3XbNfFy

10/31/2025

New advances are changing how IgG4-related disease (IgG4-RD) is treated — and what patients and clinicians can expect in the years ahead.

🎥 In this new IgG4ward! PeachJAM Series video, Dr. Arezou Khosroshahi and Dr. John Stone explore the science and the hope behind new treatment options — from traditional steroid therapy to targeted biologics like rituximab and inebilizumab, the first FDA-approved medication for IgG4-RD.

Watch the full talk and explore key highlights on our blog: https://tinyurl.com/yzt57hup

10/30/2025

📣 Date Change – IgG4ME! App Tutorial Webinar - ME! Time

Our webinar has a new date and time, but don’t worry — the Zoom link is the same if you’ve already registered!

📅 New Date: Monday, November 18
🕦 Time: 11:30 AM (Eastern Time)
🔗 Register Here: https://us06web.zoom.us/webinar/register/WN_eQmx9C1jQnqBpGpdd7Zx_w

We apologize for any inconvenience and hope you’ll join us in November! 💙
In the meantime, Ryan Sheedy from mejo is offering 1:1 sessions for anyone who’d like a personal walkthrough of the IgG4ME! app.

👉 Click here to schedule a time with Ryan: https://calendly.com/ryan-zxmf/igg4me-session?month=2025-10

10/24/2025

New Release: The Road to Diagnosis – Lessons Learned

We’re kicking off the IgG4ward! PeachJAM Video Series with a special combined video: Welcome Remarks + The Road to Diagnosis – Lessons Learned, presented by Dr. Arezou Khosroshahi (Emory University).

“Many patients have faced a slippery, foggy, and uncertain road to diagnosis. But with collaboration and awareness, that road is becoming clearer.” – Dr. Khosroshahi

Watch the video and read more here:
https://tinyurl.com/mr48bpwk

The Road to Diagnosis – Lessons Learned, presented by Dr. Khosroshahi. Insights into understanding and identifying IgG4-related disease.

10/21/2025

Living with a chronic disease such as IgG4-RD can be overwhelming — but it doesn’t have to be.

Join IgG4ward! and mejo for a live demo of IgG4ME!, your new care companion app created just for the IgG4-RD community.

Hosted by Ryan Sheedy, Co-Founder of mejo and a “rare dad” whose son lives with a rare disease & Katharine Provencher, Director of Advocacy & Community Engagement for IgG4ward!, caregiver to her husband who lives with IgG4-RD, and parent to a son living with a chronic autoimmune disease.

💛 Keep your care organized
💊 Track symptoms and medications
🫶 Strengthen your care connections
✨ Learn how IgG4ME! can make managing IgG4-RD a little easier — together.

➡️ Register now: https://us06web.zoom.us/webinar/register/WN_eQmx9C1jQnqBpGpdd7Zx_w

10/20/2025

Every story begins with a moment that changes everything:
A doctor saying, “Let’s pray it’s stones.”
An MRI revealing a mass.
A hospitalist saying, “Your diagnosis is pancreatic cancer.”

In our newest video, Dr. John Stone, Executive Chairman of the IgG4ward! Foundation, shares what’s ahead for 2026—and three brave individuals living with IgG4-RD share their journeys from fear to hope.

Together, we can Double the Hope.
Every donation through December 31 will be matched 1:1 (up to $150,000).

Read more here: https://tinyurl.com/u9y33xye