IgG4ward

04/28/2026

🌏Egypt. Iceland. Australia. France. The US.

That’s where people are already registering from.

We’re less than a month out from EuroJAM, and registrations are continuing to come in from across the globe.

If you’ve been thinking about attending, now is a good time to register.

EuroJAM brings together patients, caregivers, physicians, researchers, and industry to focus on diagnosis, treatment, and the day-to-day reality of living with this disease.

Translation services and travel scholarships are available to help make attendance possible.
May 22–23

Register here: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting/

We’re looking forward to bringing everyone together.

04/21/2026

Who will you meet at EuroJAM?

If you’ve been to The JAM, PeachJAM, or joined CanJAM, you already know this is something a little different.

It’s not just about the sessions.

It’s about what happens when people come together who understand this disease from different angles.

EuroJAM builds on that and expands it.

Hosted by Dr. Emma Culver, this year brings together 25+ speakers, including 20+ physicians.

Patients and caregivers.
Researchers.
Physicians across specialties.

Rheumatology. Gastroenterology. Pulmonology.
Nephrology. Neurology. Endocrinology.
Dermatology. Urology. Internal medicine.

And now, from different countries as well.

Italy. Spain. France. The UK. Sweden. And beyond.

Different ways of approaching care.
Different experiences.
All part of the same conversation.

You’ll hear about diagnosis, treatment, organ involvement, fatigue, flares, and what living with this actually looks like over time.

And just like the other JAMs, it doesn’t stop with the sessions.

If you want to see what’s planned, you can explore everything here: agenda, registration, travel scholarships, translation support:
https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting/

04/16/2026

REMINDER!! Community Support Meeting is TONIGHT! 5:00 - 6:00 PM ET. This meeting requires registration, please register here: https://us06web.zoom.us/meeting/register/NaEsdsZHT_6fjDJHI38gIQ

Our next IgG4ward! Community Support Group is happening this Thursday, April 16 💙

This space continues to grow in such a meaningful way — we’re seeing new faces each month alongside familiar ones, all coming together to connect, share, and support one another.

Whether you’ve joined us before or this would be your first time, you are so welcome here. This group is a space to be heard, to listen, and to not feel alone in your experience.

Please note this group is reserved for patients, caregivers, and family members and is closed to industry.

🗓 Thursday, April 16
⏰ 5:00 – 6:00 PM ET
🔗 https://us06web.zoom.us/meeting/register/NaEsdsZHT_6fjDJHI38gIQ

We hope to see you there 💙

04/15/2026

🌍 IgG4ward! EuroJAM 2026 – Londres

Le Dr Nicolas Schleinitz (Hôpital de la Timone, AP-HM, Marseille) invite les patients, leurs proches, les aidants et les professionnels francophones à participer à IgG4ward! EuroJAM 2026, le premier événement européen dédié à la maladie liée aux IgG4.

📅 22 et 23 mai 2026
📍 Londres

Cet événement réunira patients, familles, aidants et spécialistes venus de toute l’Europe afin de partager leurs connaissances et leurs expériences, et de mieux comprendre cette maladie systémique.

Des experts internationaux seront présents, dont le Dr Emma Culver, le Pr John Stone (Massachusetts General Hospital, IgG4ward! Foundation) et Katharine Provencher (IgG4ward! Foundation).

🌐 Des services de traduction seront disponibles
💙 Un soutien financier limité (bourses de participation) est proposé
👉 Inscriptions disponibles sur le site de la IgG4ward! Foundation: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting-french/


Dr. Nicolas Schleinitz (La Timone Hospital, AP-HM, Marseille) invites French-speaking patients, caregivers, families, and healthcare professionals to attend IgG4ward! EuroJAM 2026, taking place in London on May 22–23, 2026.

This event will bring together patients and multidisciplinary experts from across Europe to share knowledge, exchange experiences, and better understand IgG4-related disease.
The program will feature international experts, including Dr. Emma Culver, Dr. John Stone (Massachusetts General Hospital, IgG4ward! Foundation), and Katharine Provencher (IgG4ward! Foundation).

🌐 Translation services available
💙 Limited stipends offered
👉 Register via the IgG4ward! Foundation: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting/

04/14/2026

🌍 IgG4ward! EuroJAM 2026 – Londra

Il Dott. Emanuel Della Torre (Ospedale San Raffaele, Milano) invita pazienti, familiari, caregiver e professionisti di lingua italiana a partecipare a IgG4ward! EuroJAM 2026, il primo incontro europeo dedicato alla malattia correlata alle IgG4.

📅 22 e 23 maggio 2026
📍 Londra

Questo evento riunirà pazienti, famiglie, caregiver e specialisti provenienti da tutta Europa per condividere conoscenze ed esperienze e migliorare la comprensione di questa malattia sistemica.

Parteciperanno esperti internazionali, tra cui la Prof.ssa Emma Culver, il Prof. John Stone (Massachusetts General Hospital, IgG4ward! Foundation) e Katharine Provencher (IgG4ward! Foundation).

🌐 Saranno disponibili servizi di traduzione
💙 Supporto economico limitato (borse di partecipazione disponibili)

👉 Iscrizioni disponibili sul sito della IgG4ward! Foundation
https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting-italian/

Dr. Emanuel Della Torre (San Raffaele Hospital, Milan) invites Italian-speaking patients, caregivers, families, and healthcare professionals to attend IgG4ward! EuroJAM 2026, taking place in London on May 22–23, 2026.

This event will bring together patients and multidisciplinary experts from across Europe to share knowledge, exchange experiences, and advance understanding of IgG4-related disease.

The program will feature international experts, including Dr. Emma Culver, Dr. John Stone (Massachusetts General Hospital, IgG4ward! Foundation), and Katharine Provencher (IgG4ward! Foundation).

🌐 Translation services available
💙 Limited stipends offered
👉 Register via the IgG4ward! Foundation website: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting-italian/

04/13/2026

Our next IgG4ward! Community Support Group is happening this Thursday, April 16 💙

This space continues to grow in such a meaningful way — we’re seeing new faces each month alongside familiar ones, all coming together to connect, share, and support one another.

Whether you’ve joined us before or this would be your first time, you are so welcome here. This group is a space to be heard, to listen, and to not feel alone in your experience.

Please note this group is reserved for patients, caregivers, and family members and is closed to industry.

🗓 Thursday, April 16
⏰ 5:00 – 6:00 PM ET
🔗 https://us06web.zoom.us/meeting/register/NaEsdsZHT_6fjDJHI38gIQ

We hope to see you there 💙

04/08/2026

🌍 IgG4ward! EuroJAM – Londres

El Dr. Fernando Martínez Valle ( Vall d’Hebron, Barcelona) invita a pacientes, familiares, cuidadores y profesionales de habla hispana a participar en el IgG4ward! EuroJAM 2026, el primer encuentro europeo dedicado a la enfermedad relacionada con IgG4.

📅 22 y 23 de mayo de 2026
📍 Londres

Este evento reunirá a pacientes, familiares, cuidadores y profesionales de distintas especialidades para compartir conocimientos, experiencias y avanzar en la comprensión de esta enfermedad sistémica.

Contaremos con expertos internacionales, entre ellos el profesor John Stone (Massachusetts General Hospital) y Katharine Provencher (IgG4ward! Foundation).

🌐 Se dispondrá de servicios de traducción
💙 Apoyo económico limitado (stipends)
🔗 Inscripción disponible a través de la web de la IgG4ward! Foundation: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting-spanish/

Dr. Fernando Martínez Valle (Vall d’Hebron Hospital, Barcelona) invites Spanish-speaking patients, caregivers, families, and healthcare professionals to attend IgG4ward! EuroJAM 2026, taking place in London on May 22–23, 2026.

This event will bring together patients and multidisciplinary experts to share knowledge, exchange experiences, and advance understanding of IgG4-related disease. The program will feature international experts, including Professor John Stone (Massachusetts General Hospital) and Katharine Provencher (IgG4ward! Foundation).

🌐 Translation services available
💙 Limited stipends offered
🔗Register here: https://igg4ward.org/events/igg4ward-eurojam-a-patient-advocacy-meeting-spanish/

04/04/2026

Today is IgG4-RD Awareness Day.

Over the past week, we’ve shared stories from people living with IgG4-related disease — each one different, each one a reminder of how complex and often misunderstood this condition can be.
Today, we come together.

We’re hosting a live-stream with Dr. John Stone and Katharine Provencher, along with the first public viewing of The History of IgG4-RD documentary.

This is a chance to step back and look at the bigger picture — how far understanding of IgG4-related disease has come, and the work that continues.

If you’ve been following along this week, we hope you’ll join us.

Register here: https://igg4ward.org/events/igg4-rd-awareness-day-special-edition-fireside-chat/

Please note this webinar will be live only and will not be available on demand at this time.

04/03/2026

As we approach IgG4-RD Awareness Day, we wanted to bring together some of the stories we’ve shared this week.

Different symptoms. Different paths. Moments that didn’t seem to connect at first.

This video pulls a few of those experiences into one place.
For one, it raised concern for cancer.
For another, it showed up across different organs over time.
In each case, the symptoms didn’t seem to connect at first.

Different symptoms but part of the same story.

That’s something we hear often with IgG4-related disease.

It isn’t always limited to one organ. It can affect multiple parts of the body, sometimes all at once, sometimes years apart. The pancreas, kidneys, lungs, salivary glands, blood vessels. And because of that, it can be difficult to recognize early.

Looking back, the signs are often there. They just don’t line up right away.

In this video, you’ll hear those moments, and how they begin to come into focus.

As Dr. Stone shares, this is a disease that can tie together problems across different organs.

If any part of this feels familiar, you’re not alone.

Learn more about IgG4-related disease at https://igg4ward.org

Join us TOMORROW, April 4, for a live-stream with Dr. John Stone and Katharine Provencher, along with the first public viewing of The History of IgG4-RD documentary.

Register here: https://igg4ward.org/events/igg4-rd-awareness-day-special-edition-fireside-chat/

Please note this webinar will not be available on demand at this time.

04/02/2026

As IgG4-RD Awareness Week continues, we’re sharing a story that unfolded over time.

For Henry, it didn’t start in a way that felt serious.
Head pain. Congestion. A runny nose. He was told it was likely allergies. And for a while, that explanation seemed to make sense.

But over time, things started to change.
A few years later, he developed pancreatic insufficiency. No pain that pointed clearly to the pancreas. Just symptoms that didn’t seem to match what was happening.

At the time, none of it seemed connected.

Then more changes followed. A persistent cough. More testing. More specialists. Different answers, but still no clear explanation tying it all together.

Looking back, the signs were there. They just didn’t line up yet.
This is something we hear often with IgG4-related disease. It can affect different parts of the body over time, sometimes in ways that don’t seem related at first. The pancreas, lungs, sinuses, and more . Each piece can look separate until someone steps back and looks at the full picture.

That’s what makes it so difficult to recognize.
In Henry’s case, it took time for that bigger picture to come into focus.

That stretch of not knowing can be one of the hardest parts. When each symptom is treated on its own, but the full story hasn’t come together yet.

Eventually, the pieces did come together.
The diagnosis was IgG4-related disease.

Once there was an answer, treatment could begin. And with that, things started to improve.

Today, Henry is doing better. His condition is being managed, and he continues to move forward.

Take a moment to watch this part of his story. It may feel familiar in ways you don’t expect.
And if it does, you’re not alone.

Learn more about IgG4-related disease at https://igg4ward.org

Join us on April 4 for a live-stream with Dr. John Stone and Katharine Provencher, and the first public viewing of The History of IgG4-RD documentary.
Register here: https://igg4ward.org/events/igg4-rd-awareness-day-special-edition-fireside-chat/
Please note this webinar will not be available on demand at this time, unlike our other webinars.

04/02/2026

Thank you to Give an Hour for sharing this important message 💙
Awareness is more than a diagnosis—it’s the journey to being heard.
Read more: https://loom.ly/7XEKrQA

April 4 is IgG4-Related Disease Awareness Day.

But awareness isn’t just about naming a condition, it’s about everything that happens before a diagnosis.

The waiting.
The uncertainty.
The emotional toll that doesn’t always get acknowledged.

Katharine Provencher of the IgG4ward! Foundation has seen this firsthand, and through partnership with Give an Hour, more individuals are finding something powerful:

👉 The experience of finally feeling heard.

We’re sharing what that looks like, and why mental health support is essential in the rare disease journey.

Read more: https://loom.ly/7XEKrQA

04/01/2026

As we continue IgG4-RD Awareness Week, we’re sharing another story that shows just how unexpected this disease can be.

Donna’s symptoms didn’t start where the problem was.
She began having pain after eating. Like many people, she thought it might be her gallbladder, something routine, something manageable.

But the scan showed something no one was expecting.

Her kidney was swelling. There was a blockage, and urine wasn’t draining the way it should, a condition called hydronephrosis.

What was causing it wasn’t clear.

Then came the words that change everything: "Highly suspicious for malignancy."

Cancer.

From that point on, everything shifted. More scans, more procedures, more waiting, and still no clear answers.

In her case, this was IgG4-related disease presenting as retroperitoneal fibrosis.

This form of the disease develops deep in the abdomen and can wrap around structures like the ureters, blocking urine flow and affecting kidney function. On imaging, it can look very much like a malignancy.

That’s what makes this disease so difficult to recognize. Things don’t always line up the way you expect.

Take a moment to watch this part of her story. It may feel familiar in ways you don’t expect.

And if it does, you’re not alone. 💙

To learn more about IgG4-related disease, visit: https://igg4ward.org

Join us, April 4, for a live-stream with Dr. John Stone and Katharine Provencher, and the first public viewing of The History of IgG4-RD documentary.

Register here: https://igg4ward.org/events/igg4-rd-awareness-day-special-edition-fireside-chat/