IgG4ward

01/27/2026

Many people living with IgG4-related disease wait years for a diagnosis.

In her featured IgG4ward! CanJAM (October 2025) presentation, Dr. Mollie Carruthers walks through why diagnosis is often delayed — and how patient advocacy can make a difference.

🌏 The presentation includes Traditional Chinese slide translations, completed by a patient to support global access to rare disease education.

🎥 Watch the full presentation and read the recap here:
https://igg4ward.org/igg4ward-educational-resources/the-diagnostic-dilemma-in-igg4-related-disease-igg4-rd/

01/23/2026

We’re sharing key agenda highlights and travel planning information for the IgG4ward! EuroJAM, a two-day, in-person patient advocacy meeting taking place May 22–23, 2026 in London.

The IgG4ward! EuroJAM is designed for people living with IgG4-related disease (IgG4-RD), as well as families, caregivers, and supporters, and will feature educational sessions, interactive discussions, and opportunities for meaningful connection.

Travel planning information includes hotel options within walking distance of the venue, with select rooms offered at preferential rates.

👉 Learn more, review the agenda, and explore travel details: https://bit.ly/4pZtexP

Plan your visit to the IgG4ward EuroJAM London with agenda highlights, hotel options, and travel planning for the IgG4-RD community.

01/20/2026

Looking Ahead to 2026 💙

We’re excited to share IgG4ward!’s preliminary 2026 events calendar—highlighting upcoming webinars, community JAMs, monthly Support Group Meetings, and key scientific gatherings advancing education and care for IgG4-related disease.
From virtual conversations to in-person connections, these events reflect our ongoing commitment to learning, collaboration, and community.

🔗 Read the full blog and see what’s ahead: https://bit.ly/45jUccc

01/13/2026

📰 CBS News recently featured Andy Provencher’s story — bringing national attention to the diagnostic challenges faced by people living with IgG4-related disease (IgG4-RD).

What began as a mountain bike accident led doctors to believe Andy had stage 4 lung cancer. The real diagnosis came much later.

Coverage like this helps raise awareness and push for earlier recognition.

🔗Read the full story on our website: https://igg4ward.org/igg4ward-educational-resources/igg4-rd-awareness-cbs-news/

01/08/2026

We’re pleased to share a message from Dr. Emma Culver, host of IgG4ward! EuroJAM.

In this short video, Dr. Culver invites patients, families, carers, and support networks to join us in London on May 22–23, 2026.

🎥 Watch the video, then click the link to read more about EuroJAM and access registration details.

🔗 https://bit.ly/4jwTNJ9

01/06/2026

Many people describe the road to an IgG4-related disease diagnosis as long and uncertain. Figuring out how to live with the diagnosis can be just as challenging.
Because mental health has always been a priority of the IgG4ward! Foundation, we’re launching IgG4ward! Community Support Meetings—a virtual support group for individuals living with IgG4-RD and their caregivers.

These 60-minute meetings offer a welcoming, supportive space to connect with others who understand the journey, share experiences, and support one another. Each session is led by a Licensed Independent Clinical Social Worker, ensuring a safe, professionally facilitated environment.

🗓 January 15
🕔 5:00 PM ET
💻 Virtual (Zoom)
🔒 Registration is required. A private Zoom link will be sent after registering.
👉https://bit.ly/4qadU2A

IgG4ward community support meetings provide virtual support for people living with IgG4-RD and their caregivers.

01/05/2026

📣We’re sharing an important update for the IgG4-RD community.

Positive results from the Phase 3 INDIGO trial show that obexelimab reduced the risk of disease flare by 56% over one year in adults living with IgG4-related disease.

This trial represents meaningful progress for a rare disease that has long needed rigorous clinical research.

Read our full post for details and next steps, and find the link to the full Zenas BioPharma press release here: https://igg4ward.org/igg4ward-educational-resources/positive-phase-3-indigo-trial-igg4-related-disease/

12/31/2025

We did it! 💙

As 2025 comes to a close, we are grateful to share the successful completion of the IgG4ward! Foundation's Double the Hope campaign. Thanks to the generosity of our IgG4ward! Community and an Anonymous Donor who matched every gift, we reached our goal with a week to spare!

Please take a moment to watch the video below honoring our donors and read our message of gratitude here:
https://igg4ward.org/igg4ward-educational-resources/double-the-hope-2025/

Thank you for helping to Double the Hope in 2025, we are looking 4ward to 2026!

12/22/2025

Stories shared by patients help awareness move forward.

In this video, Chris shares what it’s been like living with IgG4-related disease (IgG4-RD), the importance of informed care, and why getting the word out matters. He also chose to give back by supporting our Double the Hope campaign.

With just over one week left and less than $3,000 to go, we’re close to reaching our goal — and every act of support helps.

Please take a moment out of your day to:
🎥 Watch the video

🔗 Read the full story:
https://igg4ward.org/igg4ward-educational-resources/igg4-related-disease-double-the-hope/

💙 Support Double the Hope:
https://igg4ward.org/double-the-hope-donation-form/

12/18/2025

As 2025 comes to a close, IgG4ward! is reflecting on a year of expanded patient education, community engagement, and support for people living with IgG4-related disease.

Our end-of-year community update outlines key impact highlights from 2025 and shares upcoming priorities for 2026, including patient-facing education, mental health support, and global community engagement initiatives.

💙 Read the full update: https://bit.ly/4s67anI

12/17/2025

When you’re living with a chronic illness, body reactions can feel confusing—especially when medical trauma is part of the journey.

In this clip from our IgG4ward! Caregiver’s Conversation, Katharine opens a broader discussion with Julie Wells (Give an Hour) and Patient Ambassadors Andy and Kim about noticing body signals, understanding stress responses, and navigating the emotional side of IgG4-related disease.

👇 Watch this short clip
👉 Read the companion blog and watch the full Caregiver’s Conversation here:
🔗 https://bit.ly/3KWp7V0
💬 This conversation includes many voices and experiences—if it resonates, you’re not alone.