NKH Crusaders

11/22/2025

We WONT STOP! We will keep moving to find and fund better treatments and a cure for ALL those impacted by NKH💙💛💙

11/22/2025

The NKH community is built on compassion — and this year, that compassion is helping families come together in Boston. 🌎

We are proud to offer four scholarships to cover travel and lodging expenses for NKH families attending the 2026 NKH Crusaders Conference:

✨ John Thomas NKH Conference Scholarship – $2,500
✨ Livie Kind of Love NKH Conference Scholarship – $1,500
✨ The Audrey Tribe Memorial Scholarship – $1,000
✨ Carey Barrett Family NKH Conference Scholarship – $1,000

Applications are open now!!
🩵 Apply at nkhcrusaders.com/conference

💙 Alone we are rare, together we are strong. 💛

The NKH Crusaders 11th Annual Conference is coming! Four days of learning, connection, and hope — with a special banquet on April 17 and farewell breakfast April 18.

11/20/2025

🕗 Tonight’s the night!
Join us for the Rare Connections Support Group — meeting tonight, Thursday, November 20th at 8:00 PM EST.

This is a welcoming, confidential space for rare disease caregivers to connect, share, or just be supported in community. It’s okay if you’re overwhelmed. It’s okay if you’re quiet. It’s okay if you just need to be here.

There’s still time to sign up and receive the Zoom link:
🔗 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

11/20/2025

We had the honor of sending $40,000 to the University of Colorado this week to support the ongoing work of Dr. Johan Van Hove and his team. This funding strengthens critical research that benefits all types of NKH and brings hope to families around the world.

We are deeply grateful to everyone who continues to fundraise, donate, and work alongside us as a community. Special thanks to Nora Jane Foundation, John Thomas Foundation, Jacqueline Kirby NKH Foundation, Brodyn’s Friends, Kamie West, Michelle Sarb, and our Raffles for Research supporters, as well as so many others who made this possible.

Your continued support shows what can happen when a community comes together with one purpose. You help NKH Crusaders drive research forward, empower families, and fight for better treatments and a cure.

💙 Thank you for standing with us. 💛

Your donation today fuels NKH research and brings real support to families who need it most.

Support NKH research and families by making a donation to NKH Crusaders. Your contribution funds critical research for Non-Ketotic Hyperglycinemia and offers essential support to families affected by this rare disease.

11/19/2025

Just a reminder — our next Rare Connections Support Group meets tomorrow night, Thursday, November 20th at 8:00 PM EST 🧡

Whether you need a space to talk or just want to listen in, this group is open to all rare disease caregivers. Come exactly as you are.

Sign up today to get the Zoom link delivered to your inbox:
👉 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.

11/15/2025

Every family impacted by NKH deserves the chance to gather, learn, and find strength together. 💙

Thanks to the generosity of our donors and partner foundations, four scholarships are now available to help NKH families attend the 2026 NKH Crusaders Conference in Boston!

Each scholarship honors a story of love, legacy, and hope — from Olivia Carter and Audrey Tribe, to the families of John Thomas and Carey Barrett who continue to lift others through their giving.

👉 Apply now at nkhcrusaders.com/conference

💙 Alone we are rare, together we are strong. 💛

11/14/2025

Save the date! 📌
Our next Rare Connections Support Group meets Thursday, November 20th at 8:00 PM EST.

This virtual space is for any rare disease caregiver looking for connection, encouragement, or simply a moment to breathe with others who understand the journey.

💻 Sign up now to receive the Zoom link:
https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

11/08/2025

🌟 Your chance to attend the 2026 NKH Crusaders Conference is here!

Four incredible scholarships are available to help NKH families cover travel and lodging expenses for our annual gathering in Boston, MA — a weekend filled with education, connection, and community.

Apply today for one of the following scholarships:
• John Thomas NKH Foundation – $2,500
• Livie Kind of Love (in honor of Olivia Carter) – $1,500
• Carey Barrett Family – $1,000
• Audrey Tribe Memorial – $1,000

Apply today at nkhcrusaders.com/conference

💙 Alone we are rare, together we are strong. 💛

The NKH Crusaders 11th Annual Conference is coming! Four days of learning, connection, and hope — with a special banquet on April 17 and farewell breakfast April 18.

11/05/2025

🎉 Happy Birthday to our Founder and Executive Director, Kristin Archibald! 🎉

Today we celebrate the heart and vision behind NKH Crusaders. Kristin’s dedication, leadership, and unwavering compassion have helped bring strength, dignity, and hope to countless NKH families around the world.

Thank you, Kristin, for all that you do to drive our mission forward and inspire us every day. 💙💛

Please join us in wishing her the happiest of birthdays in the comments below! 🥳

11/05/2025

🎉 We’re looking for sponsors and supporters for the 2026 NKH Crusaders International Family Conference! 💙

This April, families from around the world will gather in Boston, MA for four unforgettable days of education, connection, and hope. To help make this event possible, NKH Crusaders will host a Fundraising Banquet featuring exciting raffle and auction items, and we need your help!

We’re seeking donations of raffle and auction items such as:
🏡 Home goods and décor
🍷 Cases of wine for the Wine Pull Raffle
🎟️ Event or concert tickets
🧳 Vacation rentals or getaway packages
⚾ Autographed sports or celebrity memorabilia
🎁 Gift baskets, toys, and more

This list is just the beginning — the possibilities are endless! Every donation helps raise vital funds for NKH research, family support, and resources for those living with Nonketotic Hyperglycinemia.

💛 If your business or family would like to contribute or sponsor the event, visit our sponsorship page to learn more: https://www.nkhcrusaders.com/conference-sponsorships

📣 Please share this post to help us spread the word and make this year’s banquet our best yet!

Join us in supporting the 2026 NKH Crusaders Conference in Boston. Sponsorships help unite families impacted by Nonketotic Hyperglycinemia (NKH), provide access to leading experts, and build awareness for this rare disease. Explore levels and benefits to make a lasting impact.

11/04/2025

🕛 Today’s the day!
The Rare Connections Support Group meets today, November 4th at 12:00 PM EST — just a few hours away!

This is your space to connect with other rare disease caregivers, find encouragement, and remind yourself that you are not alone on this journey.

Haven’t signed up yet? There’s still time!
🔗 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

11/03/2025

Our next Rare Connections Support Group meets tomorrow — Tuesday, November 4th at 12:00 PM EST 🗓️

This is a space made just for rare disease caregivers. Come as you are, whether you want to listen, share, or simply feel less alone.

If you haven’t signed up yet, it’s quick and easy and the Zoom link will be sent right to your inbox:

👉 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛