NKH Crusaders

01/22/2026

🏈 Super Bowl Squares Update! 🏈

Our board is starting to fill, and there’s still time to get in on the action.

✔️ $20 per square
✔️ $200 payouts each quarter
✔️ $400 final score payout
✔️ Winners chosen by the game score

Every square supports NKH research and family programs.

Claim yours here:
👉 https://nkhcrusaders.app.neoncrm.com/forms/super-bowl-squares

01/16/2026

🏈 Super Bowl Squares Are Back! 🏈

We’re kicking off our Super Bowl Squares fundraiser and you’re invited to play while supporting NKH Crusaders.

🎟️ Squares are $20 each
💰 $200 payout at the end of each quarter
🏆 $400 payout for the final score
📅 Super Bowl Sunday: February 8, 2026

Grab your squares here before they’re gone:
👉 https://nkhcrusaders.app.neoncrm.com/forms/super-bowl-squares

01/15/2026

🕗 Tonight’s the night!
The Rare Connections Support Group meets this evening at 8:00 PM EST — and there’s still time to join us.

Whether you’re feeling overwhelmed, isolated, or just need a space where people understand the rare disease journey, this group is here for you.

💬 Sign up now to get the Zoom link in your inbox:
https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

01/15/2026

2026 is just getting started — and it’s never too late to make new connections.

Our Rare Connections Support Group meets again Tomorrow Evening at 8:00 EST.
It’s a confidential, moderated space where caregivers can connect, reflect, or just feel less alone.

You belong here — even on the hard days.

👉 Sign up to join:
https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.

01/14/2026

Do you have the winter blues ? Start dreaming about that trip you have always wanted to take . Trip with the kids ? 2nd or maybe even first Honeymoon? Each 10.00 donation gives you a chance to win $7000.00 to plan your trip. Only 1000 tickets will be sold . We are halfway there !

Venmo Kristin-Archibald-2 , and tell me where you want to travel too.

01/10/2026

Powerful reminder how strong and determined our children are. Way to go Lucas and mom.

01/08/2026

We’re excited to share that the Wikipedia page for Glycine Encephalopathy (Nonketotic Hyperglycinemia, NKH) has undergone significant improvements to better serve families, clinicians, researchers, and the broader medical community.

These updates were completed by Dr. Mackenzie Gamble PhD., Research Advisor for NKH Crusaders, ensuring the content reflects current scientific understanding while adhering strictly to Wikipedia’s medical and editorial standards.

The article has been expanded and refined to align with the structure and rigor of other well-established medical pages, with a focus on accuracy, clarity, and a neutral, encyclopedic tone.

What’s new and improved:
• A comprehensive introduction and summary
• Refined Causes, Pathophysiology, and Diagnosis sections
• Expanded Management section
• New History, Research, and External Resources sections
• Updated references and medical citations
• Standardized formatting following Wikipedia’s medical style guidelines (MOS:MED)
• Added visuals to support understanding

Why this matters: Wikipedia is often one of the first places families, medical professionals, and students turn for information. Having a clear, well-structured, medically rigorous NKH page helps ensure accurate understanding of this rare condition and supports earlier recognition, informed care, and continued research interest.

We’re grateful for the expertise and time invested to strengthen this public-facing resource and proud to see NKH represented with the depth and credibility it deserves.

💙 Alone we are rare, together we are strong. 💛
https://en.wikipedia.org/wiki/Glycine_encephalopathy

01/08/2026

Please listen to Chancee story with Lucas . Thank you Chancee for sharing your story 💜

Join us in this deeply moving interview with Chancee Culp, a devoted mother, fierce advocate, and Marketing Director for NKH Crusaders.Chancee shares her per...

01/07/2026

Introducing Mackenzie Gamble, PhD., NKH Crusaders Research Advisor

Mackenzie Gamble, Ph.D., is a biomedical scientist whose interdisciplinary research spans neuroscience, sleep, and public health. He earned his doctorate in Molecular and Translational Medicine from Boston University, where he received specialized training in neurophotonics and addiction science. Over the past decade, Mackenzie has mostly focused on understanding brain function and dysfunction through pharmacological studies, analyzing how drugs impact behavior and physiology in laboratory models. He holds a bachelor’s degree in neuroscience from Stonehill College and received his formative research training at Boston VA Medical System/Harvard University. Mackenzie has a strong commitment to turning scientific insights into real-world solutions for complex health challenges. He was invited to join NKH Crusaders by Kristin to bring in-house research and science expertise.

Learn More: nkhcrusaders.com/about

01/06/2026

Start the year by connecting with people who understand your journey.

The Rare Connections Support Group is here for rare disease caregivers. Whether it’s your first time joining or you're returning after a tough season, this space is yours.

📅 Our first meeting of 2026 is today 12:00 PM EST!
Join us and take a breath, we’ll meet you where you are.

💻 Sign up here:
https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.

01/06/2026

Just a reminder — our next Rare Connections Support Group meets tomorrow afternoon, Tuesday, January 6th at 12:00 PM EST 🧡

Whether you need a space to talk or just want to listen in, this group is open to all rare disease caregivers. Come exactly as you are.

Sign up today to get the Zoom link delivered to your inbox:
👉 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.