NKH Crusaders

12/24/2025

Join us in extending heartfelt wishes to the amazing NKH Crusaders President Holly Glass Burgess on her birthday!!

12/23/2025

A huge thank-you to Steve from Quieto Consulting Engineers for donating this incredible Bruins experience to support NKH Crusaders.

You can win TWO premium Boardroom tickets for the March 7 Bruins vs Capitals game — Ovechkin’s final season.

Only 100 chances. $25 each.
Enter here:
🔗 https://nkhcrusaders.app.neoncrm.com/campaigns/bruins-v-capitals-raffle

Every ticket pushes NKH research forward.

Step into the most exclusive seats in TD Garden and experience Bruins hockey like never before. We’re raffling off two premium tickets to the Boston Bruins vs Washington Capitals game on Saturday, March 7th at 12:30 PM — a milestone matchup as fans w

12/23/2025

12/19/2025

These are some of the BEST seats in TD Garden… and we’re only selling 150 chances.
Don’t wait. When they’re gone, they’re gone. The Winner will be drawn Monday Dec. 22

$25 per chance to win the Boardroom Bruins experience.
Enter now:
🔗

Step into the most exclusive seats in TD Garden and experience Bruins hockey like never before. We’re raffling off two premium tickets to the Boston Bruins vs Washington Capitals game on Saturday, March 7th at 12:30 PM — a milestone matchup as fans w

12/18/2025

Thank you to everyone who applied for a scholarship to attend the April 2026 International NKH Conference in Massachusetts! We sincerely appreciate your patience while we reviewed each application. Emails will be sent on Wednesday, December 24, 2025, to notify applicants of the selection results.

12/18/2025

💖Ellie Kate’s Month of Reckless Love💖

Imagine the impact if everyone gives $20 during these 20 days.

Together, we can lift families who are struggling, meet needs quickly, and bring joy to those facing the reality of NKH this holiday season.

Help us build this wave of support. Give $20 today.

https://www.paypal.com/donate/?hosted_button_id=NQLP2JWTCF25G

12/18/2025

🕗 Tonight’s the night!
Join us for the Rare Connections Support Group — meeting tonight, Thursday, Dec 18th at 8:00 PM EST.

This is a welcoming, confidential space for rare disease caregivers to connect, share, or just be supported in community. It’s okay if you’re overwhelmed. It’s okay if you’re quiet. It’s okay if you just need to be here.

There’s still time to sign up and receive the Zoom link:
🔗 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

12/18/2025

Just a reminder — our next Rare Connections Support Group meets tomorrow night, Thursday, Dec. 18th at 8:00 PM EST 🧡

Whether you need a space to talk or just want to listen in, this group is open to all rare disease caregivers. Come exactly as you are.

Sign up today to get the Zoom link delivered to your inbox:
👉 https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

12/17/2025

🎄Surprise the Bruins fan in your life with the ultimate gift under the tree🎄

Two all-inclusive Boardroom tickets. Bruins vs Capitals (Ovechkin’s final season)
March 7 at 12:30 pm

Winner announced before Christmas!
Get your $25 chance now (just 150 tickets):
🔗 https://nkhcrusaders.app.neoncrm.com/campaigns/bruins-v-capitals-raffle

12/13/2025

I am asking all on NKH Crusaders to say some strong prayers for one of our NKH Warriors Josh. He is currently in the hospital fighting a severe infection and on the ventilator to allow his body to rest. Please send messages of prayers below and remind his mom we are all praying.

12/11/2025

Save the date! 📌
Our next Rare Connections Support Group meets Thursday, December 18th at 8:00 PM EST.

This virtual space is for any rare disease caregiver looking for connection, encouragement, or simply a moment to breathe with others who understand the journey.

💻 Sign up now to receive the Zoom link:
https://www.nkhcrusaders.com/support-group

💙 Alone we are rare, together we are strong. 💛

Join the NKH Crusaders support group to connect with families and caregivers affected by Non-Ketotic Hyperglycinemia, and other rare diseases. Share experiences, find encouragement, and build a network of support in a compassionate community.

12/10/2025

💖 Reckless love looks like showing up for others even when it is hard. 💖

Ellie Kate taught us that. As we move through these twenty days, we invite you to honor her with a twenty dollar donation. Your generosity helps us reach families who need some light this season.

🦋 Give $20 today in her honor
https://www.paypal.com/donate/?hosted_button_id=NQLP2JWTCF25G