Boston Bleeding Disorders Center

12/03/2025

Holiday Greetings from the Boston Bleeding Disorders Center Factor Program!

Our pharmacy will be closed on Christmas Day and New Year’s Day, but the factor manufacturers essentially shut down for the holidays. We want to ensure we have time to take care of your factor needs, so you can focus on time with your friends and family.

We ask you to please call the pharmacy at least one week before the Christmas holiday (by Dec. 10th) with your December factor and supply orders.

We wish you the best this holiday season and throughout the coming year!
Warm regards,
The BBDC Factor Program Staff

11/21/2025

We are excited to kick off our first patient and family event of 2026! Let's whisk it all as we learn how to make a delicious and healthy meal together. Check your inboxes for details on how to register OR ask your clinical team. Let's get cooking!

11/19/2025

Introducing our new financial analyst: Mishon Browne! Mishon has over 10 years of experience in the financial field, with a strong background in accounting operations, compliance, and financial reporting. We are excited to have your join our BBDC team! Welcome Mishon!

11/17/2025

As the holiday season approaches, remember to check in with your specialty pharmacy to inquire about any holiday closures, schedule changes, or different staffing that could delay receiving any needed medication!!

Happy Holidays!

11/12/2025

The pharmacy will be closed on Thursday, November 27th and Friday, November 28th, 2025! Please make sure to contact the pharmacy team BEFORE November 18th with your factory and supply order!

06/24/2025

With just a few days left in June, we’re taking a moment to highlight the importance of men’s health and encourage open conversations around bleeding disorders awareness.

Our Nurse Chris Baer shares a timely reminder about the importance of regular check-ins and care.

“As a nurse in a Bleeding Disorders Center, Men’s Health Month is a crucial time to spotlight conditions that can go undiagnosed in men, such as hemophilia and von Willebrand disease. Raising awareness is the first step, many men may ignore symptoms like frequent nosebleeds, prolonged bleeding after injury, or unexplained joint pain. Early detection and proper treatment can significantly improve quality of life and prevent long-term complications. This month, we encourage all men to speak up about symptoms and seek care. Your health is worth it! “

Let’s continue to support the men in our lives in making their health a priority.

05/30/2025

As we near the end of the month, it’s important to remember that mental health awareness doesn’t stop here. These conversations need to continue year-round, and so does the support.

Our social worker, Amanda Stahl, shared a powerful reminder:
“You’re not alone, everyone struggles with their mental health at times, and it’s okay to ask for help. Leaning into your community can help give you a sense of belonging. Whether it’s connecting at an upcoming Boston Bleeding Disorders Center event or showing up for a NEHA gathering, your community is there to support you.”

Together, we can keep the support going!

05/16/2025

UPDATE: Unfortunately, due to unforeseen circumstances, we will need to reschedule our Stretch into the Season with The Boston Bleeding Disorders Center event. We are currently working on identifying a later date. Thank you!
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🔔The Boston Bleeding Disorders Center is excited to gather for our next patient and family event for a morning of safe and effective exercises to bring in the season. An invitation should be in your inboxes 📩 and hitting your mailboxes 📪 soon! We are so excited for you to join us, make sure to RSVP!

05/15/2025

Follow along our social worker, Amanda Stahl, as she takes over New England Hemophilia Association Instagram and Facebook story on Mental Health Action Day!

05/12/2025

Today is the final day of National Nurses Week! 💙

Let’s take a moment to celebrate and thank the incredible nurses who care for our communities with unwavering compassion, strength, and dedication. Thank you, Natalie, Maura, Paula, and Chris, your impact is immeasurable and we're so grateful for you.

Nurses are the heart of healthcare, and your impact is felt every single day.

05/09/2025

Gene therapy is opening new doors for people with bleeding disorders, offering the possibility of longer-lasting treatment. Read more about Terrence Blue’s experience in this article by The Harvard Gazette. Greater awareness like this helps move the conversation forward and can help shift perspectives and support progress.

Terence Blue has spent his life managing the condition. After new treatment, he says, "I am actually healing faster than I ever have."

04/17/2025

Happy World Hemophilia Day from the BBDC team! ✨🩸

Today we join the global bleeding disorders community in raising awareness and advocating for a better future!

Join us in celebrating and spreading awareness:
🔴 wear something red today and share a selfie on social media
#⃣ use the following hashtags on social media and join the conversation
📸 Snap a picture of a landmark lit up in red. See full list of landmarks lighting up in red: https://wfh.org/world-hemophilia-day/