Boston Bleeding Disorders Center

04/17/2026

Today, April 17th, the bleeding disorders community globally come together to advocate for all inherited bleeding disorders. The first step to receiving treatment and care is a DIAGNOSIS!
To learn more about World Hemophilia Day and how to get involved, visit wfh.org/whd

04/15/2026

In a couple of days, Amanda Stahl will be joining many more at the World Federation of Hemophilia's - "I’m really looking forward to the WFH Congress in Kuala Lumpur this April. I’m especially excited to connect with colleagues from around the world and learn how others are supporting patients and families living with bleeding disorders. I’m also honored to be presenting on “Women and Being Heard,” focusing on global disparities in women’s healthcare, and to be part of the ongoing push for greater inclusion of women in healthcare worldwide." -- Amanda Stahl, MSW, LICSW

04/13/2026

In a few days, Dr. Connell will be joining many more at the World Federation of Hemophilia's - “I’m looking forward to the World Federation of Hemophilia Congress in Kuala Lumpur as an opportunity to engage with our global community advancing care for inherited bleeding disorders. I support the WFH because it reflects a fundamental principle of medicine: that geography should never determine access to diagnosis or life-saving care. My presentations will focus on improving diagnostic accuracy in von Willebrand disease through multidisciplinary care, and on addressing the unique and often underrecognized challenges of bleeding in women across the lifespan. These conversations are critical to ensuring that progress in our field is both clinically meaningful and globally equitable.” --Nathan Connell, MD, MPH (Associate Director, Boston Bleeding Disorders Center)

04/01/2026

03/30/2026

Did you know in the US, a rare disease/disorder affects fewer than 200,000 people? Meaning those with hemophilia A and B, and the less-common factor deficiencies, are all rare disorders.

Rare Factor Deficiencies include:
🩸Factor 1 Deficiency
🩸Factor 2 Deficiency
🩸Factor 5 Deficiency
🩸Factor 7 Deficiency
🩸Factor 10 Deficiency
🩸Factor 11 Deficiency
🩸Factor 13 Deficiency

03/27/2026

Join National Bleeding Disorders Foundation virtually tomorrow, Saturday March 28th, from 4-7pm for their national livestream celebrating the bleeding disorders community, highlighting lived experiences, expert voices, live music, and more!

🔗 Learn more at: https://bit.ly/46wBui2

NBDF is hosting a high-energy livestream packed with live music, bold conversations, community voices, and real-time connection.

This is your front-row seat to what’s happening right now in the bleeding disorders community.

Show up. Tune in. Be part of it.
🔗 Learn more at: https://bit.ly/46wBui2

03/19/2026

2026 Partners Physician Academy applications are open! The Academy provides an opportunity to second- to fourth-year fellows or early career physicians working, or intending to work, as part of the U.S. federally recognized HTC Network.
All who are interested in deepening their care to the bleeding disorder community should apply.
Applications are open until April 10, 11:59 PM ET.
Learn more: https://partnersphysicianacademy.com/

03/18/2026

As the temperatures start to climb in Boston, it’s the perfect time to get moving again—safely and confidently! Gear up for warmer weather as we share PT tips for people with bleeding disorders. Here are a few physical therapy–based tips to help individuals and families with coagulation disorders enjoy the season while protecting their joints and muscles.

03/09/2026

One of our patients attended the Bleeding Disorders Conference a couple of years ago and speaking to their experience: “I’m appreciative of the connections I made, and I now have plans to do more activities with the New England Hemophilia Association because of some great people that I met..."

This year's National Bleeding Disorders Foundation Bleeding Disorders Conference is being held on August 13-15th, 2026 in Orlando, Florida! BDC is a wonderful opportunity to engage in educational sessions, network with other patients, and learn about new innovations in research, patient care, and treatment. Early bird registration ends this Friday, 3/13/26.

The National Bleeding Disorders Foundation's 78th Annual Bleeding Disorders Conference will take place from August 13-15, 2026.

03/06/2026

Closing out our Cooking with Confidence miniseries! Our final recipe of the evening was Ratatouille — thankfully without a tiny mouse under the chef’s hat pulling the strings! We wrapped up the night with healthy cooking, teamwork, lots of laughs, and great conversations. It was wonderful to see everyone learning, connecting, and having fun in the kitchen together.

Thank you to everyone who followed along with our mini‑series. We hope you enjoyed the recipes and the moments shared, and we look forward to bringing more community‑centered events your way!

03/04/2026

The Boston Bleeding Disorders Center is proud to announce applications for the 2026 BBDC Advancing Innovation in Bleeding Disorders Award will open in March! This is a competitive, peer-reviewed annual research prize for one-year projects for basic, translational or clinical bleeding disorders research investigations aimed at improving the health outcomes and prevent disease complications for individuals with inherited bleeding disorders/hemostasis. Full RFP available through the application link.

Award Highlights:
• Up to $150,000/year for one year project
• Primary focus on Inherited Bleeding Disorders/Hemostasis
• Permissible proposal topics include biochemical, genetic or hematologic aspects of hemophilia, von Willebrand disease, or other inherited bleeding disorders.

Eligibility Requirements:
• Independent academic Investigators employed by U.S. higher education institutions (public/state controlled, private), and non-profit 501(c)(3) organizations serving the bleeding disorders community
• Must have an MD, PhD, or equivalent

Award Timeline:
• Applications open March 4, 2026 @ bbdcapply.smapply.us
• Applications due April 20, 2026
• Award start date June 1, 2026

National Bleeding Disorders Foundation New England Hemophilia Association Hemophilia Federation of America Virginia Bleeding Disorders Foundation VABDF

BBDC is a combined program of Boston Children’s Hospital and Brigham and Women’s Hospital, is a federally-supported HTC providing comprehensive care to pediatric and adult patients with congenital bleeding disorders.