Boston Bleeding Disorders Center

03/09/2026

One of our patients attended the Bleeding Disorders Conference a couple of years ago and speaking to their experience: “I’m appreciative of the connections I made, and I now have plans to do more activities with the New England Hemophilia Association because of some great people that I met..."

This year's National Bleeding Disorders Foundation Bleeding Disorders Conference is being held on August 13-15th, 2026 in Orlando, Florida! BDC is a wonderful opportunity to engage in educational sessions, network with other patients, and learn about new innovations in research, patient care, and treatment. Early bird registration ends this Friday, 3/13/26.

The National Bleeding Disorders Foundation's 78th Annual Bleeding Disorders Conference will take place from August 13-15, 2026.

03/06/2026

Closing out our Cooking with Confidence miniseries! Our final recipe of the evening was Ratatouille — thankfully without a tiny mouse under the chef’s hat pulling the strings! We wrapped up the night with healthy cooking, teamwork, lots of laughs, and great conversations. It was wonderful to see everyone learning, connecting, and having fun in the kitchen together.

Thank you to everyone who followed along with our mini‑series. We hope you enjoyed the recipes and the moments shared, and we look forward to bringing more community‑centered events your way!

03/04/2026

The Boston Bleeding Disorders Center is proud to announce applications for the 2026 BBDC Advancing Innovation in Bleeding Disorders Award will open in March! This is a competitive, peer-reviewed annual research prize for one-year projects for basic, translational or clinical bleeding disorders research investigations aimed at improving the health outcomes and prevent disease complications for individuals with inherited bleeding disorders/hemostasis. Full RFP available through the application link.

Award Highlights:
• Up to $150,000/year for one year project
• Primary focus on Inherited Bleeding Disorders/Hemostasis
• Permissible proposal topics include biochemical, genetic or hematologic aspects of hemophilia, von Willebrand disease, or other inherited bleeding disorders.

Eligibility Requirements:
• Independent academic Investigators employed by U.S. higher education institutions (public/state controlled, private), and non-profit 501(c)(3) organizations serving the bleeding disorders community
• Must have an MD, PhD, or equivalent

Award Timeline:
• Applications open March 4, 2026 @ bbdcapply.smapply.us
• Applications due April 20, 2026
• Award start date June 1, 2026

National Bleeding Disorders Foundation New England Hemophilia Association Hemophilia Federation of America Virginia Bleeding Disorders Foundation VABDF

BBDC is a combined program of Boston Children’s Hospital and Brigham and Women’s Hospital, is a federally-supported HTC providing comprehensive care to pediatric and adult patients with congenital bleeding disorders.

03/02/2026

This month marks 10 years of Bleeding Disorders Awareness Month, and it’s always been about community.

For a decade, BDAM has been a time to come together, share our stories, and show up for one another. Long before the meetings, the advocacy, and the progress, there was community.

As we begin this year’s BDAM, we honor where we started and the people who made it possible.

Because this community has always shown up for each other and for change.

03/01/2026

March 1st is Von Willebrand Disease (VWD) awareness day! 100 years ago in 1926 Erik von Willebrand, a Finnish doctor, described this condition as VWD affecting the ability of blood to clot and can lead to hard-to-stop, heavy bleeding.

🩸 In von Willebrand disease either there are low levels of that protein in the blood or the protein isn’t working as it should.

🩸 VWD is the most common inherited bleeding disorder affecting 1% of the U.S. population. Meaning about 1 in every 100 people in the U.S. have VWD. However, it can go undiagnosed by overlooking or dismissing the symptoms. Recognizing the common signs and symptoms can lead to earlier testing, diagnosis, and access to treatment.

🗣️ Let’s raise awareness, share this post, start the conversation!

02/28/2026

Tomorrow, March 1st, marks the beginning of National Bleeding Disorders Awareness Month! Join the conversation and get involved this month, share your story, educate someone on bleeding disorders, and let's increase awareness!

02/27/2026

How was the farro salad with root veggies? We're using carrots again for this recipe but this time pairing it with cauliflower tossed in harrisa and cumin! Did you know cauliflower contains vitamin k which is good for bone health? Think you'll give this one a try, let us know how it goes! Check back next Friday at noon for our last recipe: Ratatouille!

02/20/2026

Did you try out the chicken recipe? This may be up your ally, a warm farro salad w/ roasted root veggies! Let us know in the comments if you gave this recipe a try. If this doesn't seem like your jam, check back next Friday at noon for another recipe: Harissa and Cumin Roasted Carrots & Cauliflower!

02/13/2026

Ready to cook with confidence? One of the recipes prepared was for a Bright Lemon-Caper Chicken dish - yum! Kitchen safety tip: when using sharp knives use the knuckles of the hand holding the food as a guide to protect your fingertips!
Let us know in the comments if you gave this recipe a try. If this isn't up your ally, check back next Friday at noon for another recipe: Warm Farro Salad w/ Roasted Root Veggies!

02/06/2026

Our 'Cooking with Confidence' center event was a phenomenal experience to kick off 2026! We learned about kitchen safety and how to cook a couple of healthy meals (like ratatouille..sound familiar?). We even had a bruschetta competition halfway through! We ended the night around the table, eating, laughing, talking, and sharing with our wonderful bleeding disorders community.
Weren't able to make it? Check back next Friday at noon as we share one of the recipes made: Bright Lemon-Caper Chicken!

01/29/2026

12/31/2025

We are a couple of weeks away from our Cooking with Confidence patient and family event! A perfect opportunity to connect and celebrate good food and welcome in the New Year! Check your inboxes for details on how to register OR ask your clinical team for more information. Let's get cooking!