MGH Pediatric Epilepsy Program

11/06/2025

Listen to Dr. Thiele talk about epilepsy and her new book Epilepsy for Dummies on Talk About It with Greg Grunberg!

https://www.youtube.com/watch?v=OEdoGXpCRSY

https://www.youtube.com/watch?v=fIVU5x_QcScerg

In another inspiring episode of "Talk About It with Greg Grunberg," Greg sits down once again with Dr. Elizabeth Thiele and Lauren Aguirre, co-authors of Epi...

10/01/2025

Hi everyone! We wanted to remind you all about our upcoming Ketoween event! If you are part of our dietary therapy family, you should have received an email with the link to RSVP for our keto/LGIT cooking class with Chef Alejandro on October 25th, 2025 from 11 am – 2 pm. Due to space constraints, there will be limited availability for this event. The deadline to RSVP is October 6th. If you are a dietary therapy patient who did not receive the link, or if you have questions, please email mghdietarytherapy@partners.org.

09/26/2025

Hi everyone! We wanted to remind you all about our upcoming Ketoween event! If you are part of our dietary therapy family, you should have received an email with the link to RSVP for our keto/LGIT cooking class with Chef Alejandro on October 25th, 2025 from 11 am – 2 pm. Due to space constraints, there will be limited availability for this event. The deadline to RSVP is October 6th. If you are a dietary therapy patient who did not receive the link, or if you have questions,please email rbluestein@mgb.org or mghdietarytherapy@partners.org.

09/12/2025

Hi everyone! We wanted to remind you all about our upcoming Ketoween event. We are excited to offer a keto/LGIT cooking class with Chef Alejandro on October 25th, 2025 from 11 am – 2 pm, where we will make a three course lunch! If you are part of our dietary therapy family, you should have received an email with the link to RSVP. Due to space constraints, there will be limited availability for this event. The deadline to RSVP is October 6th. If you are a dietary therapy patient who did not receive the link, or if you have questions, please email rbluestein@mgb.org or mghdietarytherapy@partners.org.

08/29/2025

Hi Everyone! We wanted to remind you all about our in-person Ketoween event, which will be on October 25th from 11 am to 2 pm. We will be meeting at a professional kitchen to learn techniques from Chef Alejandro to cook a keto/LGIT friendly 3-course lunch! We will also have a separate space for kids to play Halloween games and activities lead by our staff before they get to sample their parent's cooking. Due to space constraints, there will be limited availability for this event. If you are part of our dietary therapy program family, please keep an eye out for an email with the link to sign up! If you have any questions, please email rbluestein@mgb.org or mghdietarytherapy@partners.org.

08/27/2025

Hi everyone! Part of our Epilepsy and Education program involves a talk by our pediatric epilepsy social worker, Emma Bauman, MSW, LICSW. She discusses the different forms of anxiety we often see in our pediatric epilepsy patients and methods for calming it. If you are interested in learning more, our Epilepsy and Education recording is available for purchase by parents, educators, and other school staff. For more information and to purchase this resource please use this link: https://because.massgeneral.org/event/mgh-thrive-pediatric-epilepsy-education-conference/e512475

08/20/2025

Hi everyone! Part of our Epilepsy and Education program involves a talk by one of our pediatric epilepsy nurses, Tricia Bruno, RN. She discusses all the important aspects of addressing seizures at school, including first aid, emergencies, medication management, and proper support. If you are interested in learning more, our Epilepsy and Education recording is available for purchase by parents, educators, and other school staff. For more information and to purchase this resource please use this link:
https://because.massgeneral.org/event/mgh-thrive-pediatric-epilepsy-education-conference/e512475

08/15/2025

Hi Everyone! We are excited to announce that our in-person Ketoween event will take place this year on October 25th. We will be meeting at a professional kitchen to learn from Chef Alejandro techniques to cook a keto/ LGIT friendly 3-course lunch! We will have a separate space for the kids to take part in Halloween games and activities lead by our staff before they get to sample their parent's cooking. Due to space constraints there will be limited availability for this event. If you have any questions, please email rbluestein@mgb.org.

08/14/2025

Hi everyone! Part of our Epilepsy and Education program involves a talk by Amy Morgan, PhD. She discusses struggles that our epilepsy patients may have with executive function, including self control, independence, and flexible thinking. She does a deep dive into advice for parents and teachers to help their children/students who have these struggles. If you are interested in learning more, our Epilepsy and Education recording is available for purchase by parents, educators, and other school staff. For more information and to purchase this resource please use this link: https://because.massgeneral.org/event/mgh-thrive-pediatric-epilepsy-education-conference/e512475

08/07/2025

Hi everyone! We know school is starting up soon, so we wanted to send out our Epilepsy and Education program again! This recording of a recent MGH conference is available for purchase by parents, educators, and other school staff. Please feel free to share this resource with any of the important individuals at your child’s school so they can view it before the busy school start! For more information and to purchase this resource please use this link: https://because.massgeneral.org/event/mgh-thrive-pediatric-epilepsy-education-conference/e512475

08/06/2025

On July 26th, we hosted our 7th Sunflower Syndrome Family Conference. It was an incredible experience, with families coming from all over the US to learn more about Sunflower Syndrome. We had presentations on Sunflower Syndrome, the psychological aspects of epilepsy, mindfulness, genetics of Sunflower Syndrome, parenthood and Sunflower Syndrome, and the lived experience of Sunflower Syndrome. With help from the Epilepsy Foundation of New England, we had different activities for the children, including making Lego mosaics, courtesy of 603 Brix. At the end, we wrapped up with lunch, ice cream from John’s Dream Ice Cream, and a trip to the Sports Museum at TD Garden! We had a fantastic time and hope to see everyone again next year!

Thank you to our sponsors, Neurelis and Jazz Pharmaceuticals, as well as John’s Dream Ice Cream, for their continued support of our epilepsy program and for helping us put on this fantastic event.

07/16/2025

Hi everyone! We are excited to announce the opportunity to access helpful virtual resources on the topic of Epilepsy and Education. This recording of a recent MGH conference is available for purchase by parents, educators, and other school staff. We are sharing this link with you now so you can share this resource with any of the important individuals at your child’s school and they can view it at their leisure ahead of the busy school start. For more information and to purchase this resource please use this link:

https://because.massgeneral.org/event/mgh-thrive-pediatric-epilepsy-education-conference/e512475