03/05/2026
Last week, Patient and Family Advisory Council (PFAC) members joined our advocacy team at the Alliance for Childhood Cancer Action Days in Washington, DC. This two-day event provided parents, children, and healthcare professionals with an opportunity to advocate for important childhood cancer issues before Congress.
The team met with staff from the Massachusetts Congressional Delegation and thanked Congress for passing the Accelerating Kids’ Access to Care Act and the Mikaela Naylon Give Kids a Chance Act into law. The team also advocated that Congress increase federal funding for childhood cancer in FY27 to provide:
💙 At least $35 million for the Childhood Cancer STAR Act
💙 $100 million for the Childhood Cancer Data Initiative (CCDI)
💙 $51.3 billion for the National Institutes of Health
💙 $7.9 billion for the National Cancer Institute
💙 $1.5 billion for the Advanced Research Projects Agency for Health (ARPA-H)
Thank you to Tracy DuBois and Suzy Amor of our Pediatric PFAC; Yaminah Romulus, Manager of Government Affairs; and Gretchen Carr and Bayley Connors, staffers for Senator Warren and Congresswoman Pressley, for your shared commitment to reducing the burden of cancer for everyone. Learn more about how to get involved with PFAC: https://bit.ly/4leTZxQ