MassGeneral Hospital Down Syndrome Program

MassGeneral Hospital Down Syndrome Program We are a collaborative, multidisciplinary team, serving people with Down syndrome of all ages.

We provide evidence-based clinical care, education, and cutting-edge research so that individuals with Down syndrome can reach their full potential. We are a subspecialty program in the Division of Medical Genetics. Originally started in 2006 as a clinic for adults with Down syndrome, the clinic was expanded in July 2012 to serve patients of all ages! Want to learn more about our Program?
- Twitter: http://twitter.com/MGHDownSyndrome
- Newsletters: http://goo.gl/hXDPfI

🧠This week, we’re spreading awareness about the incredible 3-pound “supercomputer” that makes you you. Whether you’re le...
03/16/2026

🧠This week, we’re spreading awareness about the incredible 3-pound “supercomputer” that makes you you. Whether you’re learning a new skill, solving a puzzle, or just jamming to your favorite playlist, your brain is putting in the work!

Tune into The Lucky Few podcast episode “DS Brain Train” to hear how we can support brain health and cognitive development in the Down syndrome community: https://www.theluckyfewpodcast.com/episodes/ds-braintrain

Let’s keep those neurons firing! What are you doing today to keep your brain sharp? Let us know below! 👇

Meet the Nutrition Superheroes of our Down Syndrome Program! In honor of National Nutrition Month, we are honoring two o...
03/11/2026

Meet the Nutrition Superheroes of our Down Syndrome Program! In honor of National Nutrition Month, we are honoring two of our incredible experts who empower our community every day.

✨ Dominica Nichols, PhD, RD, LDN: A champion for community inclusion, Dominica partners with families to turn health goals into reality. She believes that great nutrition and movement are the keys to a thriving life.

✨ Amanda Laezza, RDN, LDN: Bringing the power of science and intuitive eating, Amanda works tirelessly to enhance the wellbeing of our patients. From her clinical work to developing expert content, she is dedicated to inspiring others through personalized, evidence-backed care.

Both collaborate with our multidisciplinary teams to ensure our patients lead healthy, vibrant lives. Join us in thanking Dominica and Amanda for their heroic dedication to nutrition!

Our team is looking forward to attending and presenting at “Brighter Futures: A National Conference on Adults with Down ...
03/11/2026

Our team is looking forward to attending and presenting at “Brighter Futures: A National Conference on Adults with Down Syndrome and Aging,” taking place March 27–28, 2026.

Hosted by the Massachusetts Down Syndrome Congress in partnership with the National Down Syndrome Society, the conference brings together researchers, clinicians, self-advocates, and families to share the latest information on health, research, and aging in the Down syndrome community.

Learn more and register here: https://brighterfuturesconference.com/register/

🍎 Happy National Nutrition Month! 🍎For our friends with Down syndrome, choosing nutrient-dense foods is a total game-cha...
03/06/2026

🍎 Happy National Nutrition Month! 🍎

For our friends with Down syndrome, choosing nutrient-dense foods is a total game-changer. Since individuals with Down syndrome often use 10-15% less energy at rest, every calorie needs to work harder to provide the vitamins, minerals, and fiber the body craves! 💪

🌟 Go for Quality: Think bright fruits, veggies, and lean proteins.
🌈 Mix it Up: Aim for 3 food groups at meals and 2 at snacks.
🎸 Rock Star Foods: Make it a game! Track your favorite healthy eats on a family chart.

Ready to level up your plate? Check out our full guide and more helpful tips on our Patient Resources page here:

👉 https://www.massgeneral.org/children/down-syndrome/patient-handouts

It takes a village! Our program depends on all of us- physicians, social workers, nutritionists, speech pathologists, ph...
03/04/2026

It takes a village! Our program depends on all of us- physicians, social workers, nutritionists, speech pathologists, physical therapists, resource specialists, and admin- just to name a few! 💛💙

Join the HomeGrown Study! 🌱The HomeGrown study team is looking for families of children with Down syndrome (ages 2–6) to...
03/02/2026

Join the HomeGrown Study! 🌱

The HomeGrown study team is looking for families of children with Down syndrome (ages 2–6) to test our online program designed to support lifelong well-being at home.

About HomeGrown:
• Research-based support: An evidence-based program for families of young children with Down syndrome. 💙💛
Note: this is a research study, not treatment.
• Realistic strategies: Learn simple, healthy routines for eating and moving at home.
• Created with care: Designed by experts and families who understand your journey.
• Community impact: Be one of 38 families helping shape a program that makes a difference.

Take part from home and get practical tools, videos, and expert support — all designed to help your child grow strong and thrive.

Complete our interest survey to learn more about joining the HomeGrown community!
https://unc.az1.qualtrics.com/jfe/form/SV_08SDpvZGvm5uUdM

Empower yourself with knowledge and join the conversation to support better care for the Down syndrome community. 💙✨Join...
02/19/2026

Empower yourself with knowledge and join the conversation to support better care for the Down syndrome community. 💙✨

Join us Monday, March 16, 2026, from 12–1 pm ET for a virtual session: Current Updates and How to Measure Health in Down Syndrome.

Dr. Stephanie L. Santoro, Associate Professor at Harvard Medical School and expert pediatric clinical geneticist, will guide us through the latest insights on medical care for individuals with Down syndrome. She’ll also share her groundbreaking research on developing new ways to accurately measure health — a crucial step toward improving health outcomes.

This free session welcomes patients, families, caregivers, staff, and the public. No registration needed — just click the link below to attend on 3/16 at 12pm!

https://mgb-org.zoom.us/j/87850408264

United Dance Company Presents: Alice in Wonderland ✨🃏This March 14-15 at the Boston University Dance Theatre, United Dan...
02/13/2026

United Dance Company Presents: Alice in Wonderland ✨🃏

This March 14-15 at the Boston University Dance Theatre, United Dance Company will debut the world premiere of an entirely new Alice in Wonderland—the first time the beloved story has been staged as a ballet in New England. Fully commissioned with original music, choreography, and costume design, this reimagined production explores transformation, curiosity, and identity through a modern classical lens.

At its heart, Alice in Wonderland celebrates individual uniqueness. The production reminds us that children perceive the world differently—and that those perspectives are not naïve, but vital in reshaping the world around them.

United Dance Company, Boston’s all-abilities ballet company, is nationally recognized for redefining what professional dance can look like. Diversity within the company extends across bodies, backgrounds, and perspectives, reflecting real communities and proving that when difference is valued, the work becomes stronger, more honest, and more human.

Time & Dates: 2 PM, March 14-15, 2026
Venue: The Boston University Dance Theatre, 915 Commonwealth Ave., Boston, MA 02215
Ticket Pricing: Tickets $25-$45 (pay what you wish tickets available)
More information: https://www.uniteddance.org/alice-in-wonderland

🌟 Do you have a child with asthma and elevated BMI? 🌟Mass General Hospital is conducting a research study called CHAMPIO...
01/13/2026

🌟 Do you have a child with asthma and elevated BMI? 🌟

Mass General Hospital is conducting a research study called CHAMPION to support children and families through a 1-year health program.

✔ Monthly visits with a doctor, dietitian, and community health worker
✔ Group visits with other families
✔ In-person or virtual options
✔ $25 gift card for each survey completed

👧🧒 Who can join?
Children ages 4–17 with asthma and elevated BMI
English- or Spanish-speaking families

Interested? Learn more and see if your family may be eligible!
https://redcap.partners.org/redcap/surveys/?s=TYL9PLFFX7HY7RDP

🌟 ¿Tiene un niño o niña con asma y un IMC elevado? 🌟

El Hospital General de Massachusetts (MGH) está realizando un estudio de investigación llamado CHAMPION para apoyar a niños y familias a través de un programa de salud de 1 año.

✔ Visitas mensuales con un médico, un dietista y un trabajador de salud comunitario
✔ Visitas grupales con otras familias
✔ Opción de participar en persona o de manera virtual
✔ Tarjeta de regalo de $25 por cada encuesta completada

👧🧒 ¿Quiénes pueden participar?
Niños de 4 a 17 años con asma e IMC elevado
Familias que hablen inglés o español

¿Le interesa saber más?
https://redcap.partners.org/redcap/surveys/?s=TYL9PLFFX7HY7RDP

✨ The Extraordinary Nutcracker ✨🎭 Dec 6–7, 2025 | 2 PM📍 Calderwood Pavilion🎟️ uniteddance.org/the-extraordinary-nutcrack...
11/07/2025

✨ The Extraordinary Nutcracker ✨
🎭 Dec 6–7, 2025 | 2 PM
📍 Calderwood Pavilion
🎟️ uniteddance.org/the-extraordinary-nutcracker

Discover how the Nutcracker came to be in this magical, narrated reimagining of the holiday classic — where storytelling meets world-class dance. Presented by United Dance Company, blending excellence, grit, and heart. 💫

Tickets on sale now!

Happy Down Syndrome Awareness Month, all!!
10/17/2025

Happy Down Syndrome Awareness Month, all!!

October is Down Syndrome Awareness Month! 💙💛To celebrate, DSC2U, our innovative online health tool for people with Down ...
10/09/2025

October is Down Syndrome Awareness Month! 💙💛

To celebrate, DSC2U, our innovative online health tool for people with Down syndrome, is offering $25 off an Annual Subscription all month long.

Use code DSMONTH25 at checkout to save.
🔗 DSC2U.org/plans

With DSC2U, caregivers and adults with Down syndrome can receive personalized, expert-backed health and wellness recommendations from the comfort of home—no doctor’s visit required.

Every subscription helps keep this resource available for families everywhere.

Let’s celebrate this month by empowering healthier futures for people with Down syndrome! 💙

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55 Fruit Street, Yawkey 6C
Boston, MA
02114

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