MGH Neurology

04/23/2026

The ALL ALS Consortium (ALL ALS) is an NIH-funded observational ALS research program working to improve ALS understandings and accelerate treatment discovery by collecting critical data and samples over time. Hear from Dr. Suma Babu on why ALL ALS is important to advancing ALS research and contributing to a future without ALS.

Visit https://all-als.org or reach out directly to info@all-als.org to learn more and join the study!

04/22/2026

On the last day of , Taravat Yazdanian, MBBS will present the poster "Comparing the Impact of Video Integration to Traditional Amyotrophic Lateral Sclerosis (ALS) Visit Communication on Patient and Caregiver Quality of Life (VITALS trial): Design of a Randomized Controlled Trial" at the 8:00 am CT poster session.

American Academy of Neurology (AAN)

04/21/2026

Today at , Suma Babu, MBBS, MPH, will present, "Therapy in Neurology" at 1:00 pm CT.

Learn more about the American Academy of Neurology (AAN) schedule on their website: https://www.aan.com/events/annual-meeting

04/21/2026

Please join us on Thursday, 4/23, at 5:00 pm ET for a community Q&A webinar featuring Shafeeq Ladha, MD of Barrow Neurological Institute and Catherine Small, Patient Navigator for the HEALEY ALS Platform Trial. They will share updates on the Platform Trial and answer questions about the importance of cerebrospinal fluid (CSF) collection in ALS research.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Network of Excellence for ALS - NEALS ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association North Star ALS

04/20/2026

At the American Academy of Neurology (AAN) Annual Meeting, Taravat Yazdanian, MBBS, will present a poster on the VITALS Trial titled, "Comparing the Impact of Video Integration to Traditional Amyotrophic Lateral Sclerosis (ALS) Visit Communication on Patient and Caregiver Quality of Life (VITALS trial): Design of a Randomized Controlled Trial."

Visit her poster at 8:00am CT on April 22nd.

View the full AAN Annual meeting schedule: https://www.aan.com/events/annual-meeting

04/20/2026

At today, members of our team will present at two of the poster sessions:

▪️11:45 am CT: Jennifer Morganroth, MD, MBA, presenting "Preparing ALS Clinics to Provide Longitudinal Care for Individuals Carrying ALS Risk Variants"
▪️5:00 pm CT: Jennifer Morganroth, MD, MBA, presenting "Median-ulnar Ratios in Differentiating Multifocal Motor Neuropathy From Amyotrophic Lateral Sclerosis"
▪️5:00 pm CT: Taravat Yazdanian, MBBS, presenting “ALS Cervical Cord MRI Meta-analysis Shows Flattening of the Cervical Enlargement Region"

Learn more about the American Academy of Neurology (AAN) schedule on their website:
https://www.aan.com/events/annual-meeting

04/18/2026

We're excited to kick off Healey & AMG Center presentations at today! Jennifer Morganroth, MD, MBA, will present "Updates in Neuromuscular Disorders" at 12:45 pm CT during the Neurology Update session.

View the full American Academy of Neurology (AAN) program: https://www.aan.com/events/annual-meeting

04/17/2026

We're sending best wishes to "Chrissy's Crew", for turning their BAA 5K run into a fundraiser to support our ALS research! This will be the 4th year this group runs in honor of their colleague and dear friend, Don, who lost his cherished wife, Chrissy, 6 months ago after living so courageously with ALS for over 3 years. We are so grateful for this team for thinking of us and creating more . To learn more or support our work via this amazing team, please visit https://shorturl.at/RZGj5

04/15/2026

Interested in learning more about Regimen I of the HEALEY ALS Platform Trial?

Visit our website to download and print the Regimen I brochure: https://www.massgeneral.org/neurology/als/research/first-platform-trial-treatments

04/14/2026

We’re excited to share a new video about Healey ALS MyMatch, a biomarker-driven series of early-phase (Phase 1b/2a) clinical trials. Check out the video to learn more about the program's goals and structure.

Watch the video on our website: https://www.massgeneral.org/neurology/als/research/healey-mymatch

Healey ALS MyMatch is a patient-centered and efficient approach for evaluating experimental therapeutics in early-phase, biomarker-driven Phase 1b/2a clinical trials conducted across multiple experienced research centers.

04/13/2026

Interested in staying connected to the Healey & AMG Center for ALS?

Sign up for the ALS Link to receive updates about upcoming webinars, news, and research. Click here to sign up: https://lp.constantcontactpages.com/sl/wQfOqgA/ALSLink

Help spread the word and share this link with your network!

04/09/2026

Don't miss out! There's still time to join the Healey & AMG Center for ALS' inaugural team in the Falmouth Road Race! Run for your ALS hero while making a huge impact on ALS research towards a cure!

There are two options to join our team: Run in-person on race day, 8/16/26, along the beautiful shore of Falmouth, MA, with over 12,000 other runners in the race, or join our "At-Home" Division and complete your 7 miles in the way of your choosing and in the place of your choosing - a great option for non-runners or those who have a commitment on 8/16! The Falmouth Road Race is one of the most iconic, scenic, and spectated 7-mile races in the country and is as memorable as it is meaningful, with over 220 charities involved.

If you're interested in applying to join us in person or from afar, simply email Jen DiMartino at jadimartino@mgb.org with your name, address, and a brief note about why you want to run.