MGH Neurology

03/30/2026

Please join us on Thursday, 4/2, at 5:00 pm ET for a community Q&A webinar. This week, Suma Babu, MBBS, MPH, of Massachusetts General Hospital will provide an overview of Healey ALS MyMatch and updates on this clinical trial program.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Northeast ALS Consortium (NEALS) ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association North Star ALS

03/20/2026

What are some of the participation barriers in ALS clinical trials?

In this study, researchers went into the community to interview people living with ALS, their caregivers, and health care providers to learn more about barriers to research participation. The study found that establishing trusted relationships with healthcare providers and improving accessibility to information about ALS trials could help boost enrollment.

Read the full paper here: https://www.tandfonline.com/doi/10.1080/21678421.2026.2640126

This study explores the experiences and perceptions of people living with amyotrophic lateral sclerosis (pALS), their caregivers, and healthcare providers regarding participation in clinical trials...

03/18/2026

In this paper, Healey & AMG Center researchers present three case scenarios highlighting telehealth strategies for serious illness conversations with specific considerations for individuals living with ALS. The researchers' goal is to provide practical guidance for clinicians navigating these complex and sensitive conversations in a telehealth setting.

Read the paper: https://www.neurology.org/doi/10.1212/CPJ.0000000000200600

Neurology: Clinical Practice

03/17/2026

Sign up for the ALS Link to stay connected to the Healey & AMG Center for ALS: https://lp.constantcontactpages.com/sl/wQfOqgA/ALSLink

Receive updates about upcoming webinars, news, and research.

Share this link with your community to help spread the word!

03/16/2026

Please join us on Thursday, 3/19, at 5:00 pm ET for a webinar about Regimen I of the HEALEY ALS Platform Trial. Representatives from Neurizon Therapeutics, along with Drs. James Berry and Sabrina Paganoni of Massachusetts General Hospital and Dr. Michael Weiss of the University of Washington, will present the science behind NUZ-001 (Regimen I) and answer questions from the audience.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Northeast ALS Consortium (NEALS) ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association

03/16/2026

03/13/2026

Learn more about the similarities and differences between amyotrophic lateral sclerosis (ALS) and multiple sclerosis (MS) in this Mass General Brigham article. Drs. Sabrina Paganoni and Howard Weiner describe both conditions and ongoing research.

Read the article: https://www.massgeneralbrigham.org/en/about/newsroom/articles/als-vs-ms

Amyotrophic lateral sclerosis (ALS) and multiple sclerosis (MS) are similar names for different conditions. Learn the differences in symptoms and treatment.

03/11/2026

“Our bodies naturally crave movement,” says Dr. Katey Burke. “Research shows many benefits of mild to moderate exercise for people living with ALS.”

Check out this article where physical therapist Katey Burke provides five kinds of exercises that are helpful for people living with ALS.

Read the article: https://www.massgeneralbrigham.org/en/about/newsroom/articles/exercises-for-als

Mass General Brigham

Research shows many benefits of mild to moderate exercise for people living with ALS. Learn about the best types of exercise to help manage symptoms.

03/11/2026

Please join us on Thursday, 3/12, at 5:00 pm ET for an expanded access discussion featuring Jinsy Andrews, MD, MSc of NYU Langone Health and representatives from Clene Nanomedicine. They will provide an update to the community on the CNM-Au8 EAP.

Register:
https://mgb-org.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw #/registration



Northeast ALS Consortium (NEALS) ALS ONE I AM ALS EverythingALS Les Turner ALS Foundation Muscular Dystrophy Association ALS TDI The ALS Association

03/09/2026

The Sean M. Healey & AMG Center for ALS has contracted with Keros Therapeutics, Inc. to design a new Healey ALS MyMatch trial evaluating rinvatercept (KER-065).

Read the press release: https://www.massgeneral.org/neurology/als/news/healey-center-announces-design-with-keros-therapeutics

03/07/2026

Exciting News! The Healey & AMG Center for ALS is assembling its first official team for the Falmouth Road Race under Mass General Brigham for this year’s race on August 16! This is your chance to run one of the most iconic and scenic 7-mile races in the country, along the beautiful Falmouth shoreline, while raising critical funds to advance ALS research at the Healey & AMG Center.

If you're interested in applying to join our in-person team by running on 8/16/26 or joining our team's At-Home Division by completing your 7-miles in the way of your choosing on the course of your choosing, simply email jadimartino@mgb.org with your name, address, and a brief note about why you want to run.

03/06/2026

Launched in 2017 as a collaboration between Mass General and Compassionate Care ALS, the Daniella Lipper ALS House Call Program brings ALS care directly into patients’ homes.

In this new paper, researchers describe the program's feasibility and impact for people living with ALS by minimizing travel burdens and ensuring continuity of care. In the future, the team will expand services and create models for additional similar initiatives.

Read the full paper here: https://onlinelibrary.wiley.com/doi/full/10.1155/nri/6629960/