International Consortium for Health Outcomes Measurement - ICHOM

12/22/2025

The ICHOM Multiple Sclerosis (MS) Set has officially launched 📢

This newly endorsed Set of Patient-Centered Outcome Measures was developed by St. Antonius Hospital with 17 experts from eight countries and shaped by the perspectives of 30 people living with MS.

Grounded in a comprehensive literature review and a RAND-modified Delphi methodology, the MS Set has undergone rigorous ICHOM review to support consistent, real-world measurement of outcomes that matter most to people with MS.

🔗 Read the full announcement and access the full Set resources here: https://www.ichom.org/news/ichom-multiple-sclerosis-ms-set-launch/

12/19/2025

Season's Greetings from ICHOM 🎄

12/18/2025

How can patient-reported outcomes be linked to cost in routine care? 🏥

A new real-world study from Tawuniya - التعاونية للتأمين an ICHOM Transformation Partner and a leading insurance provider in Saudi Arabia, examines the use of the ICHOM Low Back Pain Set of Patient-Centered Outcome Measures within an insured population, offering practical insights for value-based care implementation.

Read the article and view the accompanying poster here: https://www.ichom.org/news/tawuniya-advancing-value-based-care-in-saudi-arabia-through-patient-reported-outcomes/

New study explores real-world use of the ICHOM Low Back Pain Set in Saudi Arabia A new study from Tawuniya examines the real-world implementation of the

12/17/2025

The ICHOM Kidney Stone survey closes Friday 19 December. Your feedback will help define the outcomes that matter most in kidney stone care through the ICHOM Kidney Stone Set.

💚 For patients, this means recovery is measured based on real experiences, not assumptions https://ichom.co1.qualtrics.com/jfe/form/SV_7X6e5HeN1X4yymq

👨‍⚕️ For clinicians, it ensures the Set is meaningful, measurable, and practical to use: https://lnkd.in/e9-C6PjP

It’s a short survey, but it directly informs how kidney stone care is evaluated and improved worldwide. Take part before it closes!

12/17/2025

A Major VBHC Implementation Milestone in Saudi Arabia 🌎

Tawuniya - التعاونية للتأمين and are partnering with ICHOM Implementation Partner The Clinician to advance value-based healthcare from strategy to operational delivery in the Kingdom.

This initiative deploys The Clinician’s platform to streamline the collection, analysis and utilization of PROMs for Diabetes and Low Back Pain using the ICHOM Sets of Patient-Centered Outcome Measures, while also becoming the first organization in Saudi Arabia to implement the OECD PaRIS framework for evaluating primary care effectiveness.

By building the digital and clinical infrastructure required to measure patient outcomes consistently and at scale, this partnership establishes a nationally relevant blueprint for delivering VBHC in alignment with Vision 2030’s health transformation goals.

Read the full story here: https://www.ichom.org/news/ichom-is-pleased-to-announce-a-collaboration-between-two-longstanding-partners/

The International Consortium for Health Outcomes Measurement is pleased to announce that two of its longstanding partners, Tawuniya and The Clinician, are working together to operationalize value-based healthcare at scale in Saudi Arabia. The collaboration demonstrates how standardized outcomes meas...

12/11/2025

We’re pleased to announce that has joined ICHOM as a sponsor of the Obesity Learning Collaborative. Their commitment to addressing health disparities and improving outcomes for underserved communities brings meaningful strength to this initiative.

The Obesity Learning Collaborative unites healthcare providers, systems, and stakeholders who are implementing, or preparing to implement, the ICHOM Obesity Set of Patient-Centered Outcome Measures. Its purpose is to support real-world learning, enable shared understanding of what drives better outcomes, and build a global community committed to more effective, patient-focused obesity care.

The collaboration with The Lynch Foundation helps expand this work, ensuring that organizations facing significant public health challenges have the tools, knowledge, and support needed to improve care for people living with obesity.

We’re grateful for their partnership and the impact it will help create as this Collaborative grows.

Learn more about the Obesity Learning Collaborative: https://www.ichom.org/learning-collaboratives/

12/10/2025

We’re proud to welcome Bangkok Dusit Medical Services (BDMS) Wattanosoth Hospital to the inaugural ICHOM Breast Cancer Learning Collaborative 🤝🌎

By joining leading institutions, Wattanosoth Cancer Hospital strengthens a global effort to advance patient-centered breast cancer care through shared learning and standardized outcomes measurement.

This marks an important step for Thailand and the wider region as providers work together to improve quality of life and deliver care informed by what truly matters to patients.

Learn more and read the full announcement here: https://www.ichom.org/news/ichom-breast-cancer-learning-collaborative-bdms/

12/09/2025

We’re developing a new ICHOM Bladder Cancer Set, and we’re inviting patient representatives to join the working group 💡

Bladder cancer continues to place a significant burden on individuals and health systems worldwide.
• Around 614,000 new cases were diagnosed globally last year.
• Nearly 2 million people are living within five years of a diagnosis.
• Up to 70 percent of patients with non–muscle-invasive disease experience recurrence, leading to repeated procedures and long-term follow-up.

These realities underscore why patient perspectives are essential. To design a Set that reflects meaningful outcomes, we need the insight of those who understand the impact of this disease firsthand.

By joining the Patient Working Group, you will help shape a global framework used to assess and improve bladder cancer care, ensuring it captures what truly matters to patients.

If you have lived experience with bladder cancer and would like to contribute, we invite you to apply. For questions or to express your interest, please contact the Project Manager, Christina Nielsen, at c.nielsen@ichom.org.

12/04/2025

We’re one week away from a conversation that brings together leading voices in trauma outcomes. 🔗 Register your free place: https://us06web.zoom.us/webinar/register/WN_vZQFjwmcSl-IEsGkROCj2A

This session will walk through the new ICHOM Major Injury (MJI) Outcome Set and the broader effort to strengthen trauma care by looking beyond survival alone. We’re pleased to be joined by Belinda Gabbe, Henk Van der Wal, Umanga de Silva and Grace Jennings, who will each offer insight into the evidence, methodology and practical considerations behind developing and implementing this work.

The discussion will explore how consistent, patient-centered outcomes can support improvement across both high-resource systems and low- and middle-income settings.

If you are working to advance trauma care and want a clear, meaningful look at how outcomes measurement can guide that progress, this session is an important one to attend.

12/03/2025

Bangkok Dusit Medical Services (BDMS), an ICHOM Leadership Partner and Platinum Sponsor, is driving serious progress toward outcomes-focused care.

In this spotlight, Pongtorn Kietdumrongwong, Health Research Center Director and Project Management Director, breaks down why listening to patients isn’t optional anymore and why real transformation demands both cultural change and integrated data.

BDMS is already putting this into practice with 11 ICHOM Sets implemented across their hospitals, showing what committed, system-wide adoption looks like.

We’re honoured to work alongside BDMS as they push healthcare toward measurable outcomes and a stronger patient voice.

Watch the full video: https://www.youtube.com/watch?v=WWtpy6oiBEU

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12/02/2025

Value-based healthcare only matters when the people living the reality of illness are truly heard 📢

For , we’re sharing the voice of Kevin Wake - ICHOM Board Member and President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest. Kevin’s story is a reminder of what this work is really about. He speaks honestly about living with sickle cell disease, the barriers patients face, and why patient-reported outcome measures aren’t just data points. They’re dignity. They’re visibility. They’re the foundation of care that responds to real lives.

This is exactly why ICHOM’s mission needs support. Standardized outcomes, community-driven insights and global collaboration don’t happen on goodwill alone. Donations fuel the development of outcomes Sets, expand access for clinicians and patient groups, and help ensure voices like Kevin’s are not only heard but acted on.

If today is about giving with purpose, this is where it counts 💚

Support the work that turns patient stories into better care: give.ichom.org/give25

12/02/2025

Today is , a day when people around the world come together to support the causes that matter most. At ICHOM, we’re asking for your support to help advance a global movement toward healthcare that truly listens to patients 💚

Your contribution today helps elevate patient stories, train more clinicians to measure what matters, and accelerate the development and global adoption of ICHOM’s open-access Sets.

Every gift, no matter the size, brings us closer to a world where healthcare providers ask, “What matters to you?” — and deliver care that reflects the answer.

Donate today 👉 give.ichom.org/give25