Disability Policy Consortium

Disability Policy Consortium Redefining the role of government as it affects the lives of people with disabilities. https://dpcma.printful.me/

What we do:

- Legislative Advocacy
- Community Organizing
- Research
- Peer Support

For 25 years, the Disability Policy Consortium has fought for the rights of people with disabilities. We have a rich history of innovative and effective work in community organizing, participatory research, public policy development, and peer support. As an organization run by and for people with disabilities, we prove every day what members of our community can accomplish when they are allowed to reach their full potential. Everything about the disability community should be led by the disability community. For that reason, the Disability Policy Consortium (DPC) leads efforts to advocate for, conduct research with, and deliver services to our disabled peers. Board of Directors:

John Chappell, President
Joe Bellil, Treasurer

Anita Albright
Ellen Bresin
Cheryl Cumings
Jini Fairley
Allegra Heath-Stout
Carol Hilbinger
Jennifer Lee
Josh Montgomery
Robyn Powell
Jason Savageau
Penny Shaw
Chloe Slocum
Andrew Veith
Heather Watkins
Casandra Xavier

Executive Director:
Harry Weissman

Check out our Website: www.dpcma.org

Check out DPC’s store for exclusive AboutUsByUsaurus disabled dino swag — bold, witty, and one-of-a-kind designs created by disabled artist Emma Gelbard, only at DPC!

Why It Matters Monday: Accountability Matters: Have you ever had to fight for something that should have been automatic?...
11/17/2025

Why It Matters Monday: Accountability Matters:

Have you ever had to fight for something that should have been automatic? What was it?

Accountability is care. When systems that disabled people rely on fail, it is not a minor inconvenience. It is a disruption that touches every part of someone’s life. And too often, those failures happen because agencies, companies, and government systems are not held responsible for the promises they make.

A lack of accountability shows up differently across our community.

For a wheelchair user, it looks like a broken power chair sitting for weeks or months because a company refuses to hire enough technicians and prioritizes private equity over real people. The delay is not caused by missing data or confusion. It is caused by a business model that profits from bottlenecks and scarcity. And the consequence is missed work, missed medical care, increased health risks, and being trapped inside their home. A wheelchair is not optional. It is mobility, safety, and freedom.

For a Deaf or hard of hearing person, accountability means knowing that CART or ASL will be provided when promised. When it is not, they are cut off from vital information, excluded from public participation, and forced to fight for access that should have been automatic.

For someone with a developmental disability, it means not waking up one day to find their services reduced, changed, or eliminated without explanation or recourse. Families should not have to spend hours every week navigating a system that creates its own obstacles.

For people with chronic illness or mental health disabilities, a lack of accountability looks like endless referrals, denials without reasoning, and care that falls through the cracks because no one is responsible for making sure the system actually works.

These failures are not abstract. They shape whether people stay in their homes, stay healthy, and stay connected to their communities.

And here is the truth too many people overlook:
When accountability is missing, the burden shifts to disabled people.

We become the ones calling, documenting, pushing, following up, and begging systems to do what they were already funded and required to do. Disabled people have been forced to fight for ourselves for generations because the systems built around us have not taken responsibility for the harm caused by delay, neglect, or indifference.

But the burden of accountability does not belong on us.
It belongs on the systems, agencies, and companies whose job is to provide equitable, timely, and accessible care.

Disabled people deserve systems that work.
We deserve agencies that keep their word.
We deserve companies that value human beings over profit.

This is why DPC holds the credo about us by us. Because accountability must start with disabled people leading the conversation, identifying the gaps, and demanding the systems around us do their part.

Accountability should never fall on the people harmed by the failures of the system.
And DPC will keep fighting until that becomes the standard.

The disability community lost a giant this week. Alice Wong was a disabled writer, activist, and the founder of the Disa...
11/17/2025

The disability community lost a giant this week. Alice Wong was a disabled writer, activist, and the founder of the Disability Visibility Project, and she reshaped how our stories are told and who gets to tell them. She used every tool she had to make disability culture visible, celebrated, and understood; long before the rest of the world realized how much it needed her voice.

Alice documented our history while making it. She pushed for inclusion long before it was a trend. She brought disabled creators into the spotlight, challenged systemic barriers, and reminded the world that disabled people deserve to lead conversations about our lives. Her work opened doors for so many of us to share our experiences without apology.

Her passing is a profound loss, but her legacy is powerful. We are grateful for the years she spent clearing a path that was never meant to include us, and we will continue to build on the foundation she laid. The future of disability justice will grow from the vision she carried.

May her memory be a blessing and a call to keep going.

Need help preparing your testimony for the   hearing this coming Tuesday?Join us on Zoom for a testimony prep session on...
11/14/2025

Need help preparing your testimony for the hearing this coming Tuesday?

Join us on Zoom for a testimony prep session on Saturday 11/15 at 7 pm. We will walk through what to expect, help you shape your story, and leave time for questions. Full Zoom details can be sent to you by emailing: stoptheshockatjrc@gmail.com

Testifying matters. Every voice adds power to this movement, and your story can help shine a light on the truth. For decades, disabled people have been subjected to painful electric shocks, physical restraint, and emotional trauma at the Judge Rotenberg Center. This is not treatment. It is abuse.

When we speak up together, we refuse to let this continue in silence. Your testimony can help push legislators to finally take action and protect our community.

Great news for wheelchair users and the disability community in Massachusetts. S.210 has officially been reported out fa...
11/13/2025

Great news for wheelchair users and the disability community in Massachusetts.

S.210 has officially been reported out favorably and will now move forward as S.2662. This is a real step forward in addressing the wheelchair repair crisis that has left so many people stranded, isolated, or unsafe when their chairs break and help does not come.

We are deeply grateful to the committee for taking the time to review the updated draft of the bill and for recognizing how urgent this issue is for our community. Their support brings us closer to a repair system that is safe, timely, and centered on the needs of disabled people.

If you would like to send the committee a thank you and help keep this momentum strong, you can do so here: tinyurl.com/S2662Appreciation

Your voice matters. Your advocacy matters. And together we are moving this forward.

Hearing Alert: Service Dog Discrimination Bill (S.2714)A hearing has been scheduled for Tuesday, November 18 from 1 to 5...
11/13/2025

Hearing Alert: Service Dog Discrimination Bill (S.2714)

A hearing has been scheduled for Tuesday, November 18 from 1 to 5 pm at the Massachusetts State House in Room A-2, and this one hits close to home for so many of us. S.2714 calls for a study on discrimination in public accommodations against people with service animals. For the disability community, this work is not abstract. It is vital.

If you have ever had an Uber pull up, see your service dog, and speed away…
If a restaurant has asked you to leave because they didn’t believe your dog was a service animal…
If a store manager has questioned your legitimacy in front of strangers…
You know exactly why this hearing matters.

Our community deserves safety, dignity, and equal access. And the only way lawmakers will understand the reality is if they hear it directly from the people living it.

This is a hybrid hearing.
You can testify virtually, but you must register by tomorrow, November 14 at 3 pm to give virtual testimony.
Register here: https://tinyurl.com/S2714Testify

If you cannot register in time for virtual testimony, please join us in person at the State House on November 18.

Full hearing details: https://malegislature.gov/Events/Hearings/Detail/5477

Your story is proof that these barriers are real. When we speak up, we push the door open for everyone who comes after us.

Did you know that in Massachusetts it is legal for facilities to inflict physical pain on disabled people as punishment?...
11/13/2025

Did you know that in Massachusetts it is legal for facilities to inflict physical pain on disabled people as punishment?

For over half a century, the Judge Rotenberg Center (JRC), located in Canton, MA, has forced its disabled residents to wear a device that delivers painful electric shocks as a form of behavioral control. This is not therapy. This is torture.

Please join us for a hearing on November 18 to support H.245. This crucial piece of legislation outlaws procedures that deliver physical pain to people with a physical, intellectual, or developmental disability. This includes hitting, pinching, electric shock devices and other punishments that would be illegal if used on a non-disabled person. H.245 also prohibits programs from denying reasonable sleep, food, shelter, and to their disabled residents.

Community members are invited to attend a public hearing and give testimony in support of H.254. The hearing is scheduled for Tuesday, November 18, from 1PM to 5PM and will be a hybrid format.

If you would like to give oral testimony, either in-person or remotely, please sign up here ➡ https://tinyurl.com/STShearing

Sign-ups for oral testimony will close on Friday, November 14 at 3PM. Please note that if you MUST sign up by this deadline if you would like to testify remotely.

If you would like to testify in person, the hearing will be held in Room A2 of the State House at 24 Beacon St, Boston, MA 02133. While we encourage you to sign up ahead of time, it is not mandatory. You can sign up to testify when you arrive at the State House on the day of the hearing.

Please note that both in-person and remote testimony will be limited to 3 minutes per speaker.

If you prefer to submit written testimony, you can do so by emailing JointCommittee.Children&Families@malegislature.gov. There is no deadline for submitting written testimony , but we encourage you to do so as soon as possible.

For more information please contact sfein@dpcma.org or stoptheshockatjrc@gmail.com or visit the website https://stoptheshock.info/

Why It Matters Monday: Independent LivingIndependent living was not handed to us. It was fought for and through that fig...
11/10/2025

Why It Matters Monday: Independent Living

Independent living was not handed to us. It was fought for and through that fight Ed Roberts laid the groundwork.

It was the early 1960s and 70s, and Ed has contracted polio at age fourteen, lived in an iron lung, and was told the world had no place for him. He refused to accept that disability should mean living behind closed doors. At Berkeley he helped create a new vision. A vision where disabled people would control their own lives rather than being told what was possible for them.

His words still ring out today. He said that society is what creates the barriers. Inaccessible buildings, low expectations, stereotypes. And it is up to us as disabled persons to name them, challenge them, and remove them so we can live lives with full and equal access to the world around us.

Independent living means having the same rights as everyone else. The right to choose where we live, who supports us, and how we spend our days.

It means having the supports that make independence real. Personal care attendants, home health aides, accessible transportation, and medical equipment that actually works for the body that uses it. It means being seen as a whole person. Someone capable. Someone with purpose.

Today, Independent Living Centers carry that legacy forward. They are led by disabled people. They are rooted in community, peer support, and collective strength. They help people stay in their homes instead of being forced into facilities. They help people return to the lives they were told they would never have.

Through Home and Community Based Services waivers, thousands of disabled people have moved out of nursing homes and group homes and into their own apartments. We have watched people get their own keys again. We have watched them rebuild. We have watched people go back to work, marry partners they love, mentor others, and step into leadership. This is what happens when society invests in people.

Supporting independent living means building a stronger and more connected community. It means giving room for growth, love, contribution, and belonging.

Right now, that legacy is at risk. Medicaid funding and Home and Community Based Services are being targeted. Decisions are being made by people who see disabled lives as too expensive or too inconvenient. They are wrong. These services are not optional. They are lifelines. Without them people lose their homes. They lose their attendants and supports. They lose their independence.

Investing in disabled people is not charity. It is justice. It is dignity. It is how we build a world where people are not just surviving but living with meaning and choice.

Independent living is not just a policy. It is a promise. And we cannot allow that promise to be broken.

Are you a One Care member?Are you worried about changes coming to your benefits?Big changes are coming to One Care in Ja...
11/06/2025

Are you a One Care member?
Are you worried about changes coming to your benefits?

Big changes are coming to One Care in January. Federal updates may lead to reductions, and insurance brokers (Not MassHealth) will be contacting members about their options. If you are one of the 40,000 disabled people in Massachusetts who rely on One Care, this conversation matters.

Join DPC and BCIL today at 1 PM to learn more at our DAAHR Forum! Ask questions, and speak to insurance providers directly.

DAAHR Virtual Forum
Thursday, November 6 at 1:00 PM
Register: https://bit.ly/DAAHRForum

Things to watch right now include
• PCA services
• Homemaking
• Flex benefits
• DME
• Non medical and social transportation
• Home modifications

CART and ASL have been requested.

For more information contact:
BCIL@bostoncil.org | 617-338-6665
dpcma.org/contact | 617-307-7775

We hope to see you at 1 PM today. Your voice matters and insurers need to hear from the people directly impacted.

October Wrap Up with DPC  October was filled with impact, celebration, and community connection across Massachusetts. He...
11/04/2025

October Wrap Up with DPC

October was filled with impact, celebration, and community connection across Massachusetts.

Here is what we moved forward together and how you can keep building this movement with us.

Advocacy and Policy
~Seventeen wheelchair users and allies joined us for Wheelchair Repair Advocacy Day at the State House for Bill H.4358. Together we met with House Ways and Means members, educated legislators on the realities of wheelchair repair delays, and gained new cosponsors on the bill. This was a powerful example of what happens when lived experience speaks directly to decision makers.

~ Related to H.3946, An Act Relative to Insurance Coverage for Hearing Aids, we collected data from almost 20 people about the cost of hearing aids, which allowed us to recommend a cap for the insurance companies of $5,000 per ear. We are currently working on getting in to see Chair Lawn of the Healthcare Finance Committee.

Leadership and Celebration
~We started the month with the Paul W Spooner Generational Leadership Summit. Disabled leaders learned from one another, built skills, and strengthened the next wave of movement leadership.

~We also gathered to celebrate the John Winske Memorial Awards. This event lifted up advocates who continue Johns legacy of pushing for dignity, equality, and community living for all.

National Disability Employment Awareness Month
~Throughout the month we shared stories, data, and real experiences about what disability employment looks like in practice. This included history, modern barriers, and what inclusive workplaces can and should be working toward.

NDEAM lifts up the contributions of disabled workers and reminds us that employment access must be an everyday commitment, not just a one month observance.

Community Engagement
~ DPC's Deaf and Hard of Hearing Community Organizer Nini Silver and the Hearing Loss Association of America hosted their annual Walk4Hearing event which brought strong turnout and supported hearing access and awareness.

Get Involved with DPC!

~Sign up for our biweekly newsletter: tinyurl.com/DPC-newsletter ~Join our Unstuck calls for wheelchair users and allies: tinyurl.com/DPCUnstuck
~Share your story for our Disability History project: tinyurl.com/TellingOurHistory
~Take action with the Wheelchair Repair Campaign: tinyurl.com/JoinDMECampaign

October showed again that disabled voices shape policy, culture, and community power. Thank you for being part of this work.

Let’s carry it forward into November.

Why It Matters Monday: The Power of Storytelling Every movement begins with a story. One person standing up and saying, ...
11/03/2025

Why It Matters Monday: The Power of Storytelling

Every movement begins with a story. One person standing up and saying, “This is my life, and it deserves to be seen.” Stories are how we turn pain into purpose and isolation into community.

They’re how we remind decision-makers that behind every policy are real people with hopes, fears, and determination. Storytelling has always been at the heart of disability justice.

The 504 Sit-ins began because disabled people spoke honestly about what it meant to be excluded from education and opportunity. The Americans with Disabilities Act passed because people across the country shared what discrimination looked like in their daily lives.

Every victory, from curb cuts and captioning to accessible housing and community living, began with someone daring to say, “Here’s what needs to change.”

When people with disabilities share our experiences, we do more than tell stories. We educate, we connect, and we humanize.

A wheelchair user explaining how a repair delay robbed them of independence. A blind student describing how technology opens doors. A Deaf artist painting what communication access means. A chronically ill advocate writing about the hidden cost of survival. Each story reveals truth, builds empathy, and shows why inclusion cannot wait.

And storytelling doesn’t only happen with words. It lives in photographs, in art, in music, in ASL poetry, in TikToks, and in quiet conversations around kitchen tables. Storytelling is for everyone, because every one of us has something worth saying.

Policy doesn’t move because of numbers alone. It moves because someone was brave enough to speak their truth, to show why change isn’t just needed but possible.

When we share our stories, we light a path for others to follow, one that leads to awareness, understanding, and lasting change.

Many individuals and families in the disability community are feeling the impact of the SNAP interruption during the gov...
10/31/2025

Many individuals and families in the disability community are feeling the impact of the SNAP interruption during the government shutdown.

Food insecurity is rising across Massachusetts and New England, and for many, finding reliable support can be overwhelming.

To help, the Spinal Cord Injury Association of Greater Boston (SCI Boston) has created a Food Support List for anyone across Massachusetts and the greater New England region.

This list is open to all who need it — you do not have to limit yourself to just one food bank or pantry. Everyone deserves access to nourishment, stability, and dignity, especially during times like these.

The Food Support List includes:
• Local and statewide food pantries, including some that offer delivery or accessible pickup options
• Community meal programs that welcome all ages and backgrounds
• Organizations providing grocery stipends and delivery discounts
• Low-cost and sliding-scale food services
• Guidance on how to request reasonable accommodations from pantries and food banks
• Multilingual resources to ensure accessibility for all

We may not be able to replace the vital support SNAP provides, but by sharing information and working together, we can help ensure no one goes hungry.

Access the full list here: tinyurl.com/MassFoodSupport Please share this widely so it reaches those who need it most.

10/31/2025

October may be National Disability Employment Awareness Month…
…but the truth is, inclusion shouldn’t be seasonal.

This month, we honored the roots of NDEAM, created in 1945 to help disabled veterans and workers returning from World War II find meaningful employment. What began as “National Employ the Physically Handicapped Week” has grown into a national movement celebrating the talent, innovation, and contributions of disabled workers everywhere.

Throughout October, we explored the why behind this observance. We talked about the barriers that still exist, from inaccessible hiring practices to work environments designed without disabled people in mind. We challenged myths about hiring disabled workers, like the false belief that accessibility is expensive or that productivity looks the same for everyone. We shared facts that prove inclusion benefits everyone, not just those who need accommodations.

We also highlighted accessibility in all its forms, from ramps and accessible technology to captioning, service animals, and flexible work schedules. Because accessibility isn’t one-size-fits-all. It’s about building workplaces that recognize and adapt to diverse needs.

And we reminded people that representation matters. Disabled employees bring problem-solving, creativity, and lived experience that strengthens teams. When companies hire inclusively, they don’t just fill a position; they build community, empathy, and innovation into their culture.

As this month closes, our message is simple: Awareness is the first step, but action must follow. Let’s take what we learned and put it into practice. Hire disabled people. Promote disabled leaders. Audit workplace accessibility. Ask disabled employees what inclusion really looks like and listen when they tell you.

Because employment isn’t just about income; it’s about dignity, independence, and belonging.

We’ve also seen what’s possible when inclusion is more than a goal, but a practice. To close out NDEAM, we’re sharing a video of our Executive Director, Harry Weissman, as he tells a piece of his own disability story and what inclusive hiring made possible in his life. Harry’s leadership is one example of what happens when workplaces value lived experience. Today, more than 80% of the Disability Policy Consortium’s staff identify as disabled. We are proof that when disabled people lead, the work becomes more authentic, more effective, and more deeply rooted in community.

And if your organization wants to take the next step, our Training and Consulting team can help. Visit disabilitydei.org
to learn how we support workplaces in building true disability inclusion from the inside out.

National Disability Employment Awareness Month may be once a year, but the work of inclusion must happen every single day.



*Video Description: DPC's Executive Director Harry wears a cream colored sweater and has short-ish brown curly hair and a mustache. The backdrop is weathered brick. *

Captions included on the video.

Address

25 Kingston Street , Fourth Floor
Boston, MA
02111

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Website

https://dpcma.printful.me/

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