09/05/2025
CMT Unseen - All the words in the mirror are some of the things that I deal with that aren’t visible to others. People might see my leg braces and wonder about them, but they have no idea what my life is like or how I am affected by my disability. It might be obvious to some that I don’t walk well, even with my braces, but that’s just the tip of the iceberg. I have CMT1A. Everyday I struggle, and everyday I persevere. And no one will ever truly understand what it’s like for me, even people who have the same diagnosis as me — simply because it affects us all differently. We will never know exactly what it’s like to be someone else, so we must have compassion and be kind regardless of what we think someone IS or ISN’T going through. It wasn’t easy for me to make this, to be honest, because it is quite vulnerable. However, I wanted to share a small window into my life incase it helps someone feel less alone with what they are dealing with. September is CMT Awareness Month, do you have your own CMT story? Let us know! And follow to participate in the CMT Unseen September Awareness Campaign!
