05/08/2019
Today I shared this on two other forums about Lyme Disease:
Hello.
I was diagnosed with Lyme 3 years ago after trying to get answers for 2 years. I almost died. I had syncope, where I would pass out in extremely stressful situations. I had chest fluttering, air hunger, pain and the horrendous Lyme migraines with neck and spine stiffness. With this last incident I was really sick, knew something was terribly wrong and lost the feeling and movement in my legs. I tried to call 911 from a paving job in northern VT but there was no service. So my son brought me to the ER, which was another joke. I was dying and they chalked it up to neck pain from former injuries. They did not even do blood work. That night my husband ( who is quite spiritual) sat straight up from a sound sleep and said “Tara has Lyme.”
It’s hard not to beat myself up for not knowing this. I am a nurse and a holistic health practitioner. But that is an example of being programmed away from Lyme by western medicine.
I live in Vermont, so immediately went to Sojourns where I had additional testing. I also had (have)anaplasmosis, Erlychia and Micoplasma pneumoniae. 4 tick borne diseases at once!
Last summer I was bit again and contracted Babesia.
I am afraid of antibiotics but have taken them with herbs. I have also treated with only herbs. I was terrified of the Babeesia medication and tried with only herbs but broke down and took mepron and Zithromax for 21 days exactly and than my body completely rejected it and I was afraid of c-diff.
During the time of treating Babeesia, I was not treating Lyme, I could not do both. I feel like the Lyme has proliferated.
I am treating now w ABX and biofilm busters and just added back oregano and Japanese knotweed. I take SLForte, glutathione and burber Pinella for herx and want to add red root.
I am so sick though. I feel like I’ve had a 3 week herx. And this is what happens.... I can’t function and the headaches are so bad I feel like I have to take a break to work and feel and not get depressed and hopeless. I have been on antibiotics so many times but my doctor thinks I never stay on long enough. I am afraid that my immune system is so run down that I am susceptible to other diseases that I won’t be able to fight because of antibiotic resistance. Fear itself can feed Lyme and limit us.
The goal is to take these regimens for a certain amount of time and than treat beyond after I feel better. I have not got to this point. I cannot take Byron white formulas yet for any co-infection, they knock me on my ass. ( a good recommendation though, all natural and powerful.)
I am very positive and know how miraculous the body is. Faith and positive energy and creative visualization are necessary for healing.
I want to get bills passed to make Lyme and co-infection testing mandatory with physicals or testing mandatory when someone presents with the myriad of symptoms. I also want western doctors and health care practitioners to have to get educated about Lyme and and TBD’s.
It’s repulsive and unacceptable the way some of us, almost all of us have been treated by others in healthcare because they are ignorant or not educated about Lyme. The system also creates that. The CDC only accepts 4 strands as a positive Lyme test. They actually recently changed that from 9. Why would they wanted it to be any harder? As it is with the spirochete cycle one will have Lyme with a negative test. Babesia has a tiny window of detection.
So, I guess my questions would be:
Do you think that one has a worse herxeimer reaction by the severity of the disease, the amount of bacteria, what about late stage vs. early? Has anyone else given up and started over many times?
Has anyone else healed after 5 years and multiple co-infections?
I want life, I want health and I want education and prevention.
I have created a product that kills ticks and is safe and organic. I am working on the yard spray today. I am opening a Lyme Literate holistic health center.
My goals and dreams have changed. I need to stay positive. I wish you all peace, solutions and effective remedies. I feel and empathize with your struggles, isolations and feeling of not being heard or cared about. I wish we can all be healed and be grateful for the blessings in life.
-Tara♥️
