APBD Research Foundation

APBD Research Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from APBD Research Foundation, Medical Research Center, 2257 East 63rd Street, Brooklyn, NY.

Founded in 2005, the APBD Research Foundation is the only nonprofit organization dedicated to finding a cure for APBD, while improving the lives of those impacted.

As you plan for 2026, we hope you'll include the APBD Research Foundation in your giving. Your generosity fuels our work...
01/19/2026

As you plan for 2026, we hope you'll include the APBD Research Foundation in your giving. Your generosity fuels our work!

Did you know you can easily set up a monthly recurring gift?

Whether it’s $10, $50, or $100, every dollar makes a difference. Choose a giving level that’s comfortable for you and support us throughout the year. Together, we can achieve so much!

Donate now—whether it’s a monthly gift or a one-time contribution—every bit helps: https://loom.ly/TbXw9Vk

DID YOU KNOW? January is National Hobby Month! 🎉From legos, to jigsaw puzzles, to reading…and more, we all have a few of...
01/15/2026

DID YOU KNOW? January is National Hobby Month! 🎉

From legos, to jigsaw puzzles, to reading…and more, we all have a few of them. What's yours?

DID YOU KNOW? The APBD Research Foundation publishes a free monthly newsletter -- filled with research updates, events, ...
01/13/2026

DID YOU KNOW? The APBD Research Foundation publishes a free monthly newsletter -- filled with research updates, events, and resources. Be sure to sign up by visiting apbdrf.org!

Join our monthly Patient Chats and Caregiver/Family Chats, held throughout the year, to find support, share resources, a...
01/07/2026

Join our monthly Patient Chats and Caregiver/Family Chats, held throughout the year, to find support, share resources, and connect with others who understand. These conversations bring our community together and deepen understanding of how APBD impacts daily life because no one should navigate this journey alone.

Mark your calendars for January!

Caregiver/Family Chat
January 8, 2026 — 9:30am PT | 12:30pm ET
Hosted by volunteer moderator Linda Cedarbaum
To learn more or register: linda@apbdrf.org

Patient Chat
January 28, 2025 — 9am PT | Noon ET
Hosted by volunteer moderator Harriet Saxe
To learn more or register: harriet@apbdrf.org

We look forward to seeing you there!

🎉🌟 Happy New Year! 🌟🎉As we welcome 2026, we do so with hope, determination, and momentum. May the year ahead bring healt...
01/01/2026

🎉🌟 Happy New Year! 🌟🎉

As we welcome 2026, we do so with hope, determination, and momentum. May the year ahead bring health, joy, and continued progress toward meaningful treatments for the APBD community.

Together, we are pushing research forward, strengthening support for families, and moving closer to therapeutic options for over 34,000 individuals living with APBD and related diseases. Your steadfast support makes this progress possible.

Here’s to a year of collaboration, breakthroughs, and assured progress toward treatments. Cheers to 2026! 🥂✨
#2026

12/31/2025

JUST A FEW HOURS LEFT! ✨💙✨

Only a few hours left to make a tax-deductible donation for the year-ending 2025 to the APBD Research Foundation -- and have it matched, doubling your impact.

Your support fuels life-changing work and paves the way for APBD treatments.
👉 Donate: https://loom.ly/en-gK_A

Thank you for all that you make possible for the APBD community!

As 2025 draws to a close, we write to express our 🙏THANKS 🙏 to each of you -- patients, caregivers and family members, c...
12/31/2025

As 2025 draws to a close, we write to express our 🙏THANKS 🙏 to each of you -- patients, caregivers and family members, clinicians and researchers, rare disease advocates, industry partners, federal agency partners, and the incredible APBD Research Foundation Board, staff, and volunteers. Each of you are a part of this growing community that is carrying the Foundation's mission forward. Your dedication, passion, grit, generosity, and support represent the heart of everything we do to advance APBD and rare disease research.

Thank you for believing in our mission -- and for standing steadfast with us to make treatments a reality for over 34,000 individuals impacted by APBD and related GSD IV around the world.

And as we stand at the threshold of 2026, we wish you and your family a happy, healthy, and prosperous New Year!
#2026

Thank you, Harriet, for your steadfast commitment to the APBD community since 2014 and for continuing to lead with hear...
12/30/2025


Thank you, Harriet, for your steadfast commitment to the APBD community since 2014 and for continuing to lead with heart and purpose.

IN CASE YOU MISSED IT! Here's our December newsletter: https://loom.ly/FwBAwPgCheck out what’s inside: - Unlock new matc...
12/30/2025

IN CASE YOU MISSED IT! Here's our December newsletter: https://loom.ly/FwBAwPg

Check out what’s inside:
- Unlock new match challenge opportunity
- Pre-print published estimating the global genetic prevalence of GSD IV at 34,000
- Dr. Matthew Gentry receives “Rare Disease Scholar Award”
- Share your voice: take our GSD IV BioBank Survey
- Create your Clinical Research ID (CRID)
- In memory of those we lost in 2025
- Upcoming events
- Make a tax-free impact with a gift from your IRA

Thank you, Faye, for sharing how your family’s experience with APBD inspires your advocacy efforts. ...
12/30/2025


Thank you, Faye, for sharing how your family’s experience with APBD inspires your advocacy efforts.

Just 3 days left. Your year-end gift makes advancing our mission possible. As 2025 comes to a close, your generosity can...
12/29/2025

Just 3 days left. Your year-end gift makes advancing our mission possible.

As 2025 comes to a close, your generosity can help carry our mission forward for individuals and families affected by APBD. Every gift fuels research, strengthens support, and brings us closer to treatments.

💙 All donations through Dec. 31 are matched up to $30,000, doubling the impact of your year-end gift.

👉 Donate today and help us finish 2025 strong: https://loom.ly/en-gK_A

💙 The APBD Research Foundation is excited to share that Matthew Gentry, PhD -- a member of our Scientific and Medical Ad...
12/29/2025

💙 The APBD Research Foundation is excited to share that Matthew Gentry, PhD -- a member of our Scientific and Medical Advisory Board -- has been selected as one of ten recipients of the Oxford-Harrington Rare Disease Centre’s "2025 Rare Disease Scholar Awards."

As a Rare Disease Scholar Award recipient, Dr. Gentry is receiving $100,000 to support his research aimed at advancing a promising laboratory-developed enzyme therapy that crosses the blood brain barrier, penetrates cells, and degrades polyglucosan bodies. By receiving this award, he will also have access to additional advisory support and acceleration funds, and qualify for investment funds up to $1,000,000.

We’re proud to see this important cross-disease research move forward and grateful for the momentum it brings to the APBD community.

Read more: https://loom.ly/zeso3fQ

Address

2257 East 63rd Street
Brooklyn, NY
11234

Telephone

+16465805610

Website

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