Alstrom Syndrome International

Alstrom Syndrome International To provide support, information, & coordination
worldwide in order to treat and work to cure Alstrom.

Our mission is to provide support, information, and coordination
world-wide to families and professionals in order
to treat and cure Alström Syndrome. Alström Syndrome International is a 501 (c) (3) registered charity. ASI develops, maintains, and manages the largest Alström Syndrome clinical database in existence, conducts international family conferences, and consults with researchers and physicians at hospitals and institutes for an updated medical opinion. Alström Syndrome is a rare genetic disease that affects many parts of the body. Alström Syndrome can affect every organ and cell in the body. Alstrom symptoms can include problems with vision, hearing, stature, heart, liver, kidneys, and often Type 2 diabetes. For more information on Alström Syndrome please visit https://www.alstrom.org/what-is-alstrom-syndrome/

For more information about Alström Syndrome International or Alström Syndrome please visit the website at: https://www.alstrom.org/about-asi/

Happy Easter from all of us at ASI! 🌷🐰Wishing our amazing community a day full of sweet treats, bright smiles, and a lit...
04/05/2026

Happy Easter from all of us at ASI! 🌷🐰

Wishing our amazing community a day full of sweet treats, bright smiles, and a little extra springtime joy! 🐣💙

You guessed it! 👏 🎉 We’re headed to the Fort Worth Museum of Science and History! 🔬✨Our kiddos will get to explore, lear...
03/30/2026

You guessed it! 👏 🎉

We’re headed to the Fort Worth Museum of Science and History! 🔬✨

Our kiddos will get to explore, learn, and experience hands-on fun in a space built for curiosity and discovery. We can’t wait! 💙

Thank you, ASI community! 🎉 🙌 We are blown away by the response helping clear our Conference Amazon Wishlist! Your gener...
03/22/2026

Thank you, ASI community! 🎉 🙌

We are blown away by the response helping clear our Conference Amazon Wishlist! Your generosity is helping us get everything ready for an incredible ASI Family Conference in May, and we couldn’t be more grateful.

If you’d like to support in a simple way, there’s still time a some fun items left to keep our kiddos busy and having fun during conference! 💙

🛒 Check out the wishlist here:
https://tinyurl.com/ASIconferencewishlist

Our conference planning committee has been busy planning off site activities, and we’re excited to bring you our edition...
03/18/2026

Our conference planning committee has been busy planning off site activities, and we’re excited to bring you our edition of “Where in Fort Worth is our Conference Planning Committee?” 🕵️ 😉

First stop: we’re exploring a place where curiosity comes to life…
🧠 Hands-on fun
🔬 Science & discovery
👀 Something exciting around every corner

Any guesses where we’re taking our conference kiddos?! 👇

Happy St. Patrick’s Day from ASI! 🍀Today we’re feeling extra lucky to be part of such a strong, supportive, and inspirin...
03/17/2026

Happy St. Patrick’s Day from ASI! 🍀

Today we’re feeling extra lucky to be part of such a strong, supportive, and inspiring community. 💚

Wishing all of our families and friends a day filled with a little extra luck and a lot of smiles! 🌈✨

With our ASI Family Conference & Scientific Symposium coming up soon, we’re busy preparing for an incredible week of con...
03/12/2026

With our ASI Family Conference & Scientific Symposium coming up soon, we’re busy preparing for an incredible week of connection, learning, and community.

To help make the experience even more welcoming and comfortable for our families, we’ve created an Amazon Wishlist with items needed to keep those kiddos having fun and safe during the conference.

If you’d like to support in a simple way, we’d be so grateful for anything you’re able to contribute! 💙 Every item helps us create a warm and supportive space for our ASI families and guests.

🛒 Check out the wishlist here:
https://tinyurl.com/ASIconferencewishlist

Silent Auction Countdown! ⏰ Only a few hours left to make your bids count—and so many great items up for grabs!! ⏳Every...
02/28/2026

Silent Auction Countdown! ⏰ Only a few hours left to make your bids count—and so many great items up for grabs!! ⏳Every bid supports families and research in the Alström Syndrome International community. 💙

🕙 Auction closes at 8:30pm (CST) TONIGHT—get those final bids in before it’s too late!

🛍️ Bid here:

https://events.readysetauction.com/alstromsyndromeinternational/asifundraiserdinner

⏳ Still time to get your bids in! Our Boots & BBQ Silent Auction closes TOMORROW night at 8:30 p.m. (Central Time)—so if...
02/27/2026

⏳ Still time to get your bids in! Our Boots & BBQ Silent Auction closes TOMORROW night at 8:30 p.m. (Central Time)—so if you’ve had your eye on something special, now’s the time to jump in! 💙

🛍️ Browse, bid, and share with family & friends!

https://events.readysetauction.com/alstromsyndromeinternational/asifundraiserdinner

From one-of-a-kind items to supporting a one-of-a-kind cause, every bid helps make a difference for the Alström community.

We’re so excited to have our friends from Kendra Scott joining us at the Boots & BBQ for a Cure Benefit Dinner this Satu...
02/27/2026

We’re so excited to have our friends from Kendra Scott joining us at the Boots & BBQ for a Cure Benefit Dinner this Saturday, February 28!! 💛

Even more exciting, we have a special necklace available just for ASI the next few days! ✨ Can't join us in person? You can shop online right here:

https://kgbtoalstromsyndrome.splashthat.com/

Shop the ASI necklace (and anything else on their website) using the code GIVEBACK-ASI26 while it's live February 26-28 and Kendra Scott will give back 20% of your purchase to ASI!

Our Alström Syndrome International Boots & BBQ Silent Auction is LIVE online!!! 💙 That means you can bid from anywhere N...
02/23/2026

Our Alström Syndrome International Boots & BBQ Silent Auction is LIVE online!!! 💙 That means you can bid from anywhere NOW—whether you're cozy at home or dressing up to join us at the benefit dinner on Rare Disease Day this weekend!!

🕙 Bidding is open NOW and closes the night of the dinner, February 28th at 8:30pm. (Central Time)

✨ Make sure you bid early, bid often, and support a great cause!

💻 Bidders must create a user account to participate.

🛍️ Bid here:
https://events.readysetauction.com/alstromsyndromeinternational/asifundraiserdinner

Today is the last day to purchase your tickets for our Boots & BBQ Benefit Dinner and receive an event t-shirt! 🤠🌵 Also,...
02/18/2026

Today is the last day to purchase your tickets for our Boots & BBQ Benefit Dinner and receive an event t-shirt! 🤠🌵 Also, last call for sponsorship logos to be on the back of the t-shirt! 😉

Don’t miss your chance to enjoy a night of great BBQ, live music, and community as we come together on Rare Disease Day to support families and research for Alström Syndrome.

🤠 February 28, 2026
🍷 Lost Oak Winery in Burleson, Texas!
🌵Dinner served at 6:30 pm
🎸 Live Music from Jesse Jennings

Grab your tickets now, dust the dirt off your boots, and make your plans to join us!! 💙 We can’t wait to see you there!

🎟️ Event details & ticket info in the link below:
https://tinyurl.com/ASIBootsandBBQ

✨ Interested in sponsoring? Please email us TODAY to reserve your sponsorship or get more details!

Sponsorship opportunities include perks like logo placement on event t-shirts (secured before 2/18), social media shoutouts, and more—check out the graphic for full details on each level.

Address

251 SW Wilshire Boulevard #124/304
Burleson, TX
76028

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