Alstrom Syndrome International

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Burleson, TX
Alstrom Syndrome International

To provide support, information, & coordination
worldwide in order to treat and work to cure Alstrom.

Our mission is to provide support, information, and coordination
world-wide to families and professionals in order
to treat and cure Alström Syndrome. Alström Syndrome International is a 501 (c) (3) registered charity. ASI develops, maintains, and manages the largest Alström Syndrome clinical database in existence, conducts international family conferences, and consults with researchers and physicians at hospitals and institutes for an updated medical opinion. Alström Syndrome is a rare genetic disease that affects many parts of the body. Alström Syndrome can affect every organ and cell in the body. Alstrom symptoms can include problems with vision, hearing, stature, heart, liver, kidneys, and often Type 2 diabetes. For more information on Alström Syndrome please visit https://www.alstrom.org/what-is-alstrom-syndrome/

For more information about Alström Syndrome International or Alström Syndrome please visit the website at: https://www.alstrom.org/about-asi/

01/19/2026

Today, we honor the life and legacy of Dr. Martin Luther King Jr., whose words and actions continue to remind us of the power of compassion, unity, and service to others.

At ASI, we’re inspired by his vision of working together to create a more just, hopeful future—one where every voice matters and every life is valued. 💙

“Everybody can be great…because anybody can serve.” - Dr. Martin Luther King Jr.

01/16/2026

As we step into a brand new year, one thing remains constant—the strength, compassion, and connection of our amazing Alström community. 💙

From families and clinicians to researchers and supporters around the world, this community continues to show up, lift one another, and move us forward together. 💪 👏

We’re so grateful for each of you and excited for all that’s ahead in the year to come. 🎉 Make sure you're following along for exciting things ahead, like our 𝘯𝘦𝘸 𝘸𝘦𝘣𝘴𝘪𝘵𝘦!!!

So much more to come! ✨👀 Stay tuned!

01/13/2026

Thanks to the incredible generosity of our community, our Year-End Goal for the Fund Drive closed out the year with 𝙩𝙧𝙪𝙡𝙮 𝗔𝗠𝗔𝗭𝗜𝗡𝗚 𝗺𝗼𝗺𝗲𝗻𝘁𝘂𝗺—𝗿𝗮𝗶𝘀𝗶𝗻𝗴 $𝟵𝟮,𝟬𝟬𝟬!! 💙👏 🎉

Your support helps fuel research, supporting families, advocacy, and the continued growth of our global Alström community. And we’re just getting started!

With a new year ahead and our annual benefit coming up in February, we’re excited to keep the energy going and continue building toward a brighter future for those living with Alström Syndrome. ✨ 𝙎𝙤 𝙢𝙪𝙘𝙝 𝙢𝙤𝙧𝙚 𝙩𝙤 𝙘𝙤𝙢𝙚. 𝙏𝙝𝙖𝙣𝙠 𝙮𝙤𝙪 𝙛𝙤𝙧 𝙗𝙚𝙞𝙣𝙜 𝙥𝙖𝙧𝙩 𝙤𝙛 𝙚𝙫𝙚𝙧𝙮 𝙨𝙩𝙚𝙥 𝙛𝙤𝙧𝙬𝙖𝙧𝙙.

And with your continued support, we’re setting our sights on 𝙧𝙚𝙖𝙘𝙝𝙞𝙣𝙜 $𝟭𝟮𝟱,𝟬𝟬𝟬 𝙗𝙮 𝙩𝙝𝙚 𝙍𝙖𝙧𝙚 𝘿𝙞𝙨𝙚𝙖𝙨𝙚 𝘿𝙖𝙮 𝙖𝙩 𝙩𝙝𝙚 𝙚𝙣𝙙 𝙤𝙛 𝙁𝙚𝙗𝙧𝙪𝙖𝙧𝙮—help us keep the momentum going! 💪

01/06/2026

ASI’s 𝘽𝙤𝙤𝙩𝙨 & 𝘽𝘽𝙌 𝙁𝙤𝙧 𝙖 𝘾𝙪𝙧𝙚 Fundraiser & Silent Auction is just around the corner on Rare Disease Day! Are you joining us?

🤠 February 28, 2026
🍷 Lost Oak Winery in Burleson, Texas!
🌵Dinner served at 6:30 pm

Enjoy an evening of good food, music, company, and giving back—all to support individuals and families living with Alström Syndrome. Every ticket, bid, and donation helps us get one step closer to a cure. 💙

🎟️ Event details & ticket info in the link below:

https://lp.constantcontactpages.com/ev/reg/9sqb7pw/lp/9303dce5-c900-459d-bdf7-af53724c13ef

Silent Auction will be available in person AND online so you can make a difference from wherever you are. 🎉 Stay tuned for more event details to come!

12/31/2025

The countdown is on! ⏰ With just hours left before 2026, we’re so close to finishing the year strong—and we need your help to get there!!

Thanks to your incredible support, we’ve already reached $50,000 in our Fund Drive. Help us keep the momentum going and push toward $70,000 before the New Year!

Every gift, no matter the size, helps fuel research, support families, and move us forward with hope. 💙

Click the link in our bio and make your year-end gift NOW to help us start 2026 strong. 💪✨ Every gift, no matter the size, helps fuel research, support families, and move us forward with hope. 💙

12/25/2025

Merry Christmas from all of us at ASI! 🎄

Wishing our Alström families, friends, and supporters a season filled with love, warmth, and moments that matter most. Thank you for being part of our community—today and always. ❤️✨

12/23/2025

Thanks to our incredible community, we officially hit our $50,000 December Goal!!! 🎉 👏 WOW!!!

We’re not stopping there! With a little time left in the year, we’re setting our sights on an even bigger milestone $70,000 by the New Year! Every additional gift helps us strengthen family support, advance research and carry this momentum into the year ahead!

There’s still time to be part of the momentum! 💪
If you’re able, we invite you to help us finish strong!

💙 Give now
💙 Share with a friend
💙 Check for Employer Matching

Every donation, big or small, truly makes a difference. You helped us hit our goal of $50,000 by the end of December! Help us finish 2025 strong by hitting $70,000!

12/08/2025

Our latest Science Press Release is here, and we’re thrilled to announce a new partnership with Alstara! 🎉 Plus, take a glimpse of our powerful roadmap for ASI’s research efforts over the next several years.

From collaboration to innovation, momentum is building. 💙 Together, we’re pushing research forward faster than ever.

Check out the full update right here!

12/02/2025

Today is Giving Tuesday—a day when generosity shines brighter than ever. ☀️ We’ve set a fundraising goal of $50,000 this December and need your help!!!

If Alström Syndrome International has touched your life—or simply your heart—we invite you to make a gift that fuels hope, research, and support for families around the world. 💙

🎁 https://www.alstrom.org/?give=PYEVM6DX

Every donation, big or small, truly makes a difference. 🫶🏼 Join us and give the gift of hope today!

11/28/2025

Doing some Black Friday shopping? Don’t forget your ASI holiday merchandise, too!! Help make the season a little brighter, cozier, and full of rare-disease pride! ❄️💙

From festive gear to meaningful gifts that give back, every purchase helps support the Alström community and fuels our mission.

✨ Shop for yourself. Shop for someone you love. Shop for a cause. Your holiday gifts can make a real impact this year!

Browse the Holiday Collection at the Shop Link in our bio!! 👆

11/27/2025

Today, we’re especially grateful for the incredible strength, resilience, and heart of the Alström community. Whether you’re gathering with loved ones, connecting from afar, or enjoying a quiet moment today, please know how thankful we are for YOU.

To our families, clinicians, researchers, supporters, and friends—thank you for all you do to make this community stronger, brighter, and full of hope.

Happy Thanksgiving from ASI! We’re wishing you a day filled with warmth, love, and gratitude. 🍂🦃🧡

11/26/2025

Our Annual Fund Drive is officially underway!
Check your mailbox for your letter and a fun ASI Highlights flyer!! ✨

This past year has been full of progress, partnership, and powerful moments for our Alström community. None of it would be possible without supporters like you. 💙

As we look ahead to 2026 and our upcoming Family Conference next May, your generosity helps fuel research, family support, education, and hope for everyone living with Alström Syndrome.

If you’re able, please consider making a gift today. Every dollar truly makes a difference. Together, drop by drop, we make a lake…and are building a brighter future.

👉 https://www.alstrom.org/?give=PYEVM6DX

Thank you for being part of the ASI family! 💙🌟

Address

251 SW Wilshire Boulevard #124/304
Burleson, TX
76028

Website

https://www.alstrom.org/

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